Community Forums

My history was temporary ileostomy followed by a couple of years of suffering due to a failed anastomosis followed by a permanent colostomy. Since I'...

@tigerlily You can get it in capsules or as a straight powder. I don't care for how it changes my output now (post colostomy) and didn't try it with ...

The below are sort of guesses, since I had multiple issues going on after my ileostomy was reversed, culminating in a permanent colostomy. I had an ...

I also like rinsing my bags. I use cold water, and if I can feel sudden cold around my stoma then I know the water is getting under the wafer. Nice...

Found this thread old thread when I did a google search for Hollister AF300. I've been using the Coloplast 'filtodor' filters. These stick on t...

You mean, like this: /p>

The discussion is relevant because people use and have success with one type of cyanoacrylate skin protector, and apparently at least one other person...

Welcome Alida! I've noticed that because I know what I am looking for I will be aware of my bag odor before other people...but if I ignore the ini...

On different cyanoacrylates: I am not even close to an expert, and had to look this up. All cyanoacrylates are of the form CH2=C(C≡N)COO-X 'X' r...

Fairly clingy for a while, but this is the aspect that I want to improve. With respect to diet, for me it seems mostly a question of being consist...

I'm sorry you are not finding others with a similar situation. I believe there is a Facebook ostomy group, and you might try asking the nurses at a c...

Bit of an update. I am currently using a home made lubricant that consists of 5g PEO, 5g low viscosity methylcellulose and 6g xanthan gum per liter. ...

Had my second dose of the Pfizer vaccine about a week and a half ago. Only side effect was a rather sore arm. No noticeable change to my stoma. -...

In general I find that my wafers last longer than my pouches, and put on a new pouch when I change the wafer. I rinse my bags out when I empty them, ...

I'd say my recipe is currently functional but could use some improvement. Most of my output simply slides out of the bag, and a quick rinse takes ca...

I tried using mineral oil mixed with a few drops of essential oils as a lubricant. I loved the way it made my output slide out, but it seemed to mak...