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Rick
 Rick
(@rick)
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July 17, 2020 11:40 am  

Hi,

I have tried both major deo/lubs, and I usually put in 3 nice squirts rather then counting drops. The bottles of this go so fat and are expensive.  Anyone discover a homemade recipe for this?  I read something about baby oil, but am worried it might cause leakage.

thanks


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VeganOstomy
(@veganostomy)
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July 17, 2020 11:56 am  

There are plenty of DIY options that I've heard of ranging from PAM spray to baby oil. Provided that the product you use is safe (i.e. something you'd be able to put in your mouth) then there should be no harm in using them around your stoma. 

However, if oil gets around the cut-out in your wafer, it can potentially cause a leak. That said, I do not suggest putting tablespoons worth of oil in your bag, just put a small amount that's enough to spread and coat on the inside walls of the bag and you should be fine. 

If you do try any DIY options, please let us know how it goes! I have been in the process of writing a DIY ostomy supplies article and this is a category that's included. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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LLNorth
(@llholiday)
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Posts: 252
July 18, 2020 1:13 pm  

M9 drops (which I use every time I empty) work really well as a deodorant for me - and the Hollister Adapt works well as a lubricant but only for a short time. There doesn’t seem to be a way to keep the lubricant from sliding down to the bottom; it’s just gravity, I guess. Really the only way I can think of that would really work would have to be in the composition of the inside material of the pouch, at least the upper half.

.... did you ever see National Lampoon’s Christmas Vacation? The non-stick stuff Clark Griswold sprayed on the flying saucer before he took it down the hill really worked!

Colostomy 4/30/18
I love the smell of coffee in the morning. It smells like .... victory.


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VeganOstomy
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July 21, 2020 10:52 am  
Posted by: @llholiday

M9 drops

This has been the most effective deodorant I've used. I do also squirt this in my bag, so it doesn't last as long as it would if I was using it more conservatively, but results are what I'm after when I use it. 

Posted by: @llholiday

Really the only way I can think of that would really work would have to be in the composition of the inside material of the pouch, at least the upper half.

This would likely be a very interesting solution if it weren't so cost-prohibitive. I'm not suggesting that add a teflon coating to the inside of the pouch, but something safe and similar would likely be more effective than liquid lubricants. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Tony H
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Posts: 169
August 3, 2020 5:34 pm  

its funny but at the start i was really obsessed that there was an odor coming from my pouch and used most everything with varying degrees of success ,

for the last year or so I am using hollister two piece system and don't experience any odor anymore ,

the one difference is that I have arthritis and emptying is awkward so my doctor prescribes as many pouches as i need so I don't empty anymore , just change pouch and the flange lasts about 4 or 5 days 


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Terri
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August 3, 2020 11:51 pm  

The M9 drops work well for me as far as odor but as far as lubrication (and I know this might sound crazy but) I used castor oil...yeah, that stuff.  Figured the "viscosity" was enough to coat the bag for a while and not be harmful...at least you don't have to take it by mouth. 

A work in progress...
Colostomy - May 8, 2020 due to Cancer


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sjlovestosing
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August 5, 2020 7:40 pm  

@tallen

Hi Terri,

I also use the M-9 and love the way it controls odors. I use mineral oil to lubricate mine. I like the way how things just slide out of the bag.😁

Stella


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Rick
 Rick
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August 10, 2020 10:00 am  

@sjlovestosing

 

my biggest odor issues were primarily overnight and first thing in the morning. I found if I use the M9 drops at night in addition to eating devrom chewable tablets at meal time at night, it really decreases any odors.  The Devrom internal lubricant chewable tabs were on my ostomy supply site. I think on amazon to.


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Fred
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August 10, 2020 10:20 am  

I use the Hollister Adapt and as mentioned above it doesn't last. It occurred to me just now that petroluem jelly/vaseline may work as a lasting lubricant. Has anyone tried using petroleum jelly?


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VeganOstomy
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August 10, 2020 10:39 am  
Posted by: @fred

Has anyone tried using petroleum jelly?

I have not heard of this being used, and while it would be considered safe if it came in contact with your stoma, I would worry that it might erode the wafer faster. Not really sure unless someone wanted to share their experience :) 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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sjlovestosing
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August 10, 2020 12:43 pm  

Rick

It sounds like you have your odor problem under control :-) .

Fred,

I'm not sure about petroleum jelly, but I have had no problem with mineral oil - as long as I add the M-9, since mineral oil has no deodorant control. It's relatively inexpensive and lasts much longer than the Adapt. I usually change my appliance every 3-4 days and have had no issues with my bag falling off or leaking because of it. 

Stella


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john68
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August 10, 2020 1:04 pm  

I have never used petroleum jelly for my ostomy, but I do know it will degrade plastic and rubber. 

ileostomy 31st August 1994 for Crohns


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