Healing the Skin around the Stoma – OSTOMY TIPS (w/ Video)

Share on facebook
Share
Share on pinterest
Pin
Share on twitter
Tweet
Share on email
Email
Share on print
Print
Share on whatsapp
WhatsApp

The ideal appliance will fit in a way that protects your skin while also providing a durable, and secure fit. Unfortunately, not every ostomate can achieve this balance so easily, so many will experience a breakdown of skin around the stoma.

Video

This happened to me a short while after getting my ostomy, as my new stoma was still shrinking down from its swollen state. I was quite inexperienced, so rather than change my appliance more often, I’d try to get 5+ day wear time, which meant that as my stoma became smaller, it left room for my output to eat away at my skin.

As you can see from the photos below, I had fairly deep erosion of the skin, and it hurt a lot. At the time, I had used the “crusting technique”, which involves putting stoma powder on the exposed, raw part of my skin, dust it off and apply a barrier using either barrier wipes or cavilon spray. You do this a few times to build up protection on the skin, and to allow the wafer to stick to something other than the powder. This technique does work for many people, but it worked very slowly for me.

Very painful peristomal skin 28 days post op
Very painful peristomal skin 28 days post op

More recently, as I’ve been in between wafer samples, I began to get more breakdown of the skin. I attempted to remedy this using the crusting technique, but I wasn’t getting the results I wanted; so instead, I opted to simply use a barrier ring without any powder or barrier wipes. The results impressed me, and my skin has probably never looked that good around the stoma.

Ostomy Barrier Ring on wafer
Barrier rings can be applied to a wafer (just remember to remove the release liner from the wafer first!).
Ostomy Barrier Ring on skin
Barrier rings can also be molded to fit around any size or shape of a stoma.
Healthy skin around the stoma
Healthy skin around the stoma.

And here’s another example of how quickly this method can heal damaged skin:

Stoma Healing after 2 days small
Two days and look at the difference!

Now, I continue to use a barrier ring when I notice more breakdown of the skin. I may continue to use them more regularly, but they are quite expensive and I’m not done trying new appliances that might offer a better fit.

Here’s a video showing how I change my appliance, including how I use barrier rings.

Before you change your routine, you should check with your stoma nurse first, unless you’re willing to experiment on your own.
If you’re interesting in the “crusting technique” for healing peristomal skin, check out THIS article.
QUESTION: What techniques have you tried to heal up your skin?
Share on facebook
Share
Share on pinterest
Pin
Share on twitter
Tweet
Share on email
Email
Share on print
Print
Share on whatsapp
WhatsApp

162
Leave a Reply

avatar
newest oldest
Michelle
Guest
Michelle

I do home healthcare for a client and he is having an issue with skin breakdown around his stoma, we have tried the caking method as well as the moldable ring and it simply is not adhering which causes the output to sit on the skin longer and then it leaks. Are there any other options for him to try??

john68
Member

I know before surgery I had a lot of stomach pain and of course the sickness and cold sweats. And who can forget the sore bum!! Was getting to the stage where I was considering keeping the toilet paper in the fridge 😃❄️❄️.

john68
Member

This is my take on why we think the stoma it’s self is sore, the little guy or girl 😃 does his wriggling as we pass out put when this happens that causes a certain amount of movement skin and wafer wise hence if there is broken skin or not enough room pain occurs. I do know the proper name for the stoma moving!! Peri……Ok now it’s obvious I can’t spell it!!!!😂😂

LK
Member

@john68 I believe the word you’re looking for John is peristalsis. I remember a bit from my nursing days.😂! I truly felt the pain was situated only to the stoma. It was also a new pouch on when that happened. I also question that if it does not hurt, being made of the same material of the stoma why do we get pain and credit it to the bowel hurting?🤔. The erosions, tho we can’t exactly feel or place them seem to be a symptom of disease and when active I certainly have a lot more pain.🤯.  There is so much more I want to understand 🤓about the guts. I know when I touch my stoma she does not hurt yet l  place the pain right with my bowel.🤔. I think we need a scientist here 🏅🤓.I have to ask if everyone gets pain with the flares of disease? I know I have a different type gut being shorter then short and with bowel wall thickening, but does everyone experience the pain?🤔

SqueakyandLiza
Member

@dlkfiretruckLinda—you are so funny with all your new emojis. You are like a kid in a candy store. 😂🍭 And, so you know, I always have my phone lying on the bed when I sleep, so when I am online in the middle of the night, I usually am lying in bed, often after getting up to empty my bag.  😀

Bill Bell
Member

Posted by: @dlkfiretruck … but does everyone experience the pain?🤔

I never had any pain when I had Ulcerative Colitis and have never had one since my ileo operation 3 years ago.  Maybe I don’t have the nerve endings that others have.  Just lucky I guess.  I never have problems with the whole bag thing. :-P 

LK
Member

Hi Mary, and Welcome. I know what you mean about the stoma hurting which is why it puzzles me that we are told it does not hurt. When I first had mine, I had made the hole too small and l could feel it was too small for the size of my  stoma.  Gas was trying to escape. I layed down and watched  the stoma bulge with gas, escape,  and then the stoma went back to its size and that particular pain went away. The hole in my wafer was not much smaller then usual, but it was small enough to make the difference. I replaced the pouch with a slightly bigger hole I had cut in the wafer and since, it has only ever felt some what I called pain in my stoma, if I had cut the  hole & it had a little outward notch in  the wafer that my stoma touched, it would hurt there. Sometimes if the hole l cut even a bit too small and the stoma touches the wafer and the edge of the hole is not softened yet, I will be aware of it. This is one good reason to not have an exact hole as to the edge of the skin. When you cut the hole, cut it on the outside of the line otherwise you inadvertently make the hole too small.  Turn  the pouch when cutting the hole , not the scissors. This avoids the bit of pointed edges I talk about. The skin does toughen up in time and can  take the bit of a lot better as we go on  in life. I hope this help.Linda…doesn’t anyone sleep around here, and Liza…go back to bed.😴

john68
Member

Hi Mary, when we have pain it’s not the stoma but the skin around the stoma. Is this pain new or part of on going skin problems. It could also be that the wafer is to tight or pulling on the skin. Changing to often can cause problems but if it’s causing distress I would change. Have a good look at the wafer and skin when doing.

Mary
Guest
Mary

I have an ileostomy,
I changed my appliance yesterday, Wednesday, this evening my stoma hurts?
Should I change the appliance again?

john68
Member

Crusting and other remedies are good for a small or mild troubles but Eric is right seeking help from a stoma nurse is best 

Tina
Guest
Tina

Hi, I’m new to the forum but have had my ostomy since 2016 and have tried a few appliances because I have a sensitivity to the adhesive and finally found one that has worked for me. However, lately the base plate hasn’t been adhering well and then starts to lift around the edges and that gets very itchy for me and I try soooo hard not to scratch but I do a lot of it when I’m asleep and now my skin has been so red and raw and I’m having to change my bag too frequently, please what can I do for that? Is there a tape that heals the skin at the same time? I’ve also tried the crusting but find that things don’t stick well after that either. I wish they made a base plate made of all skin barrier ring. :)

Alison
Guest
Alison

Hello all,
I have found Eric’s videos and info very helpful. My surgery was 8 weeks ago and I am very happy with my recovery (and freedom from the toilet!). The lower half of the colon was removed, and while I did have solidified output at the beginning, the past 4 weeks have been like mud – not quite diarrhea. However, there is a problem with the juncture of skin and stoma. That is to say, as the stitches dissolved, the skin wasn’t yet closed around the stoma. Now a real gap is evident, and the skin’s edge is raised, like a bumper, and irregular. There is also a broad area of skin at one side that has remained a red wine colour – it is sore to the touch. Of course, I have seen the surgeon several times since the surgery, and as it became more painful at about week 4, instead of less, he prescribed 10 days of two antibiotics at week 6. At the visit after that he again examined things, poked etc. While it is less painful than before the drugs, the gap appears wider. He is concerned, yet suggested a wait and see approach, and return in two weeks. I asked if he could restitch but he said this is not possible.

Today’s pouch change revealed seepage under the wafer, again. The “bumper” isn’t helping I suppose. Yes I have tried convex wafer (suggested by visiting stoma nurse, made it hurt a lot), rings (suggested by hospital stoma nurse, seemed to make stoma retract, more seepage), and paste (seemed to dissolve, and fail). This last time I tried cutting the wafer tighter to the stoma, and used no extra product. This was more comfortable, but was just an illusion of success! I have let the skin “air” a couple of times, sitting in the sun awhile. Yet the problem continues. Today I turned again to the Google search, and of course there really only is your site! I watched the “crusting” video (thank you and will try that now.) But I was very struck by how different my stoma looks – and now I am getting rather worried.

So here are my questions (at last). Has anyone had this issue of the skin remaining apart from the stoma? What was done to help it heal properly? I do trust my surgeon, but it seems time to reach out for other input.

Cheers,

Alison

Michael Dennis
Guest
Michael Dennis

Great video, thank you. I’ve had my ostomy for five weeks now. I’ve been struggling with leaks almost daily it seems. After watching your video I realize I’ve been doing a few things wrong, which I’ll now correct. My skin is in pretty bad shape, I think following your tips though will help it heal. Thanks again!

Dona
Member

Hi Suzanne,Welcome to the forum and thanks for the tip about healing and protecting the skin with the milk of Magnesia. Great tip! I wrote it down so I can refer to it when needed.I hope you continue to add your voice to ours and post more tips since you have so much experience to share. 

john68
Member

To explain a little more, A granuloma is on the side of the stoma. They are very weepy and eroded my wafer each time. I had the little pests removed a few months back with great success. The erosion never lead to a leak but it comprised the seal. That coupled with a little scar left from the removal was proving slow to heal. It’s easy to apply and adding a little stoma powder provides an excellent crust. Once again impressed and proves how valuable sharing experience and ideas is. So cheers Suzanne and Eric for providing the forum 👍

SqueakyandLiza
Member

@john68I think I have had something similar. A couple times when I saw the ostomy nurse, she used silver nitrate (I think) to burn something on or around my stoma. It was a stick with the silver nitrate at the top and she used some lidocaine to numb it and then just touched it with the tip of the stick. I am probably due to go back and have her check it again. 

sjlovestosing
Member

Wow John, it sounds like Suzanne had the fix you needed. I am glad things worked out for you!What a blessing that she found this site.Stella

john68
Member

I have been trying out the tip posted by Suzanne About using the Milk of Magnesium. I have a sore spot of skin where I had a granuloma removed. It was healing but slowly. I followed what Suzanne said and after 2 treatments the difference is remarkable. Many many thanks for sharing this tip. 😀👍

john68
Member

Experience speaks for itself. After many years respect

Suzanne
Guest
Suzanne

In the late 70’s (ileostomy in 1974) I saw a ostomy nurse in OKC. She recommended this procedure. Get a new small bottle of original non flavored Milk oh Magnesia. DO NOT SHAKE. Pour off the liquid watery part. Now, shake. Gently pat on a thin coating of the thick white stuff left in the bottle. This feels great on skin. Now, dust with stoma powder. Then spray on a thin layer tincture of benzoin. Let dry about 60 seconds. Touch skin without the milk of mag goop. It should feel tacky. If not repeat spray routine. Then put on the Eakins seal and then faceplate, and the bag. I’ve had my ileostomy 45 years and have been a pharmacist 42 years. I’ve explained this procedure many times and it usually helps.

Susan
Guest
Susan

Hi,
My mom had an ileostomy a few months ago and she gets a fair bit of leagage lately. Is it normal for the area that is affected most by the leakage to burn and itch after the appliance and wafer have been attached. The itch and burn isn’t spreading, just localised to the area that was most affected. I’ve been worried about another leak, but the area seems really dry.

Glad I found the site. You’ve been invaluable.

Dona
Member

Hi Tracy,If you can’t find a stoma nurse is there a dermatologist in your area that you might see about healing your skin?They might have some suggestions. You do need help, and soon. The only way to get the wafer to stick properly is to have a good place for it to stick too. Thats sounds simpler than it is.If you do find someone to consult with, be sure to take all the things you use for your stoma care with you to the appointment ( bags, wafer, pastes, powder…everything) so they can see what you are dealing with. Most doctors have no idea what the ‘stuff’ we use actually looks and feels like.Good luck. Let us know how this goes.

LK
Member

Welcome Andy and Tracy.  Getting past a leaky time is hard. Making sure your skin is dry and the whole fit is good and some pressure and warmth applied to the new wafer area will help a pouch stay on. Spend extra care around the hole you cut. Measure often. If you need more  paper charts ask a company to send you a handful.  if you are using the barrier wipes, it is possible to use too much in trying to protect our skin. Have you tried just using the wafer only, no pastes and such? If you have not, maybe experiment. With the barrier if you use it of course.

Tracey, you really need to be seen in  emerge. If you have no one to drive you then call an ambulance. This way there is no wait in chairs. You need to advocate for yourself here.  A few words doctors pay attention to…I think it is infected.  Even if it does not look infected, say so. Let them decide. Tell them you can’t do this alone and need the help to figure out what is going on. Also tell them you have no quality of life because you have no clue what is wrong  and how to fix it. Cry of you ga e to. You are so strong I  trying g to work this out for yourself, but now it is time to insist on help. Do as Donna said, and do your best to make them understand. You Re too new to this to be trying to figure this out on your own. If you develope a major infection that is no good either.  Please get some professional medical advice ASAP. Let us know what happens.

HeyKarrieann
Guest
HeyKarrieann

Don’t get discouraged… it takes practice and lot of it. I was in tears because it seems that I had leaks every day, some times more often in a single day. Now I’m comfortable with changing my appliance about once a week… although few days ago I had a “pancaking” situation going on which was a mess but I kept calm and worked through it. Relax, set everything that you need out (even things that you may not have used) and work through it all! 😁
I’m a colostomy mate since October 2018 and still feel like I’m new at this. YouTube by veganostomy and others like him really go a long way for learning… glean information from many of the Ostomymates and apply what works… but make adjustments when things change, like the size of your stoma and such. I wish the best for all those who read this.

john68
Member

Hi Tracy, Have you contacted a Doctor to see what they could do or organise. 

Tracy Scarbrough
Guest
Tracy Scarbrough

I have a horrible sore hole next to my stoma from leaking. I have been bagless for 6 days now trying to heal. What is the best thing to heal the sore so I can put a bag on? I am miserable!
Please help. I have been laying on dog pads and diapers catching the urine.

Andy
Guest
Andy

I am an new ostomate has surgery 3/18/2019. It has been extremely difficult preventing the leaks. We know exactly where the spot is. So we put the hollister thin rings on the area but still get leaks. I have many crevasisis in that are so we use the puddy to make it flat but still no results. I have been recommended to get convex which I have but I have notice a lot of debris behind the wafer when I remove it. Just seen if I can get any recommendations this is preventing me living a normal life because of been afraid if leaking in meeting or event. Please help anyone thank you

SqueakyandLiza
Member

Hi Andy, I have had the same problem. What is working relatively well for me is a combination of a convex wafer, either a one piece or two piece with adhesive, rather than the snap in place type connection, and some paste, all around the skin around the stoma.  The stomadhesive or brava paste work for me, but the eakin paste does not. And the rings don’t help me. I get leaks every time. I also use the curved bracket things to secure the wafer in place, at least on the one piece appliances.  I’m still pretty new myself, but that is what seems to work for me. Liza

LK
Member

Kscarver34-Welcome! Just as John said, take a plastic bag,tuck it into the waist band of your britches when you do a pouch change. This helps spare your clothing. It is a great catch all for trash too,tie and toss. To keep the skin as dry as you can in a change, Eric recommends wrapping some non sterile gauze around the stoma changing as need be. You can often find it in a bulk package, ask a store manager they may bring it in for you.  Barrier Rings can be softened by the heat of your hand and manipulated to be made thinner, wider, or a different shape or to fill in a dip if you have one. I never liked the stickiness of it on my fingers so I have done this between kitchen plastic wrap. Several years back I had a stubborn area that did not want to heal around my stoma, so I used the baby diaper rash cream Penaten and using a q-tip placed a thin layer on the area and then the stoma powder. This worked fabulously and I had it on hand. I have resorted to it a few times since. Rest assured that eventually the skin toughens up, swelling goes down and you figure out your own tips to share here. All the best to you both. It is always great to hear of another supportive spouse in action! Keep up the good work, you found the best site available here and any questions or concerns you may have, just log in, say so or feel free to create your own forum. All the best!  ‘;D.  

john68
Member

Hi Skcarver, welcome. Take waste bag a tuck into the waist band of the shorts open out and I works a treat. It sounds like your husband needs a convex wafer, the skin will only be properly healed when the leaks are stopped. It sounds like it’s not a stoma nurse who is dealing with this and they would best placed to measure and suggest a suitable appliance. The stoma so soon after surgery is still changing and needs to be measured to get a good fit for the wafer. 

LK
Member

I wonder if you are talking about Mercuricrome…something like at in Canada. It comes in a little bottle with a glass probe that has a ball on the end. An antiseptic and is bright red. You paint it on the wound. My friend just asked his phone for Mercuricrome and it came back Merbromin.  My Mother always had one in the bathroom medicine cabinet. Interesting informtion miguel ig…Thank you.

miguel ig
Guest
miguel ig

A good tip my nurse gave me,when the skin is irritated I use merbromina (this is the name in Spain) is a red antiseptic liquid used for decades but now not so popular as betadine.
I use it before cavilon spray and then the waffer,after the first use I saw the results

vicky denno
Guest
vicky denno

I find that to get rid of rashes I pour isopropyl alcohol directly on the stoma area and then follow up with A LOT of peroxide (cheap and simple) I let it bubble out and then because I have extremely oily skin I repeat the alcohol. It may burn a little but your rash will disappear. I have had my ostomy since 1981 (it seems like forever). I have been doing this forever–almost my whole life.

LK
Member

Gladys and Kriss…I would strongly recommend that you both make a doctors apt. and ask if what you are seeing is a fungus. This can happen under the plate and it can spread. This is not a diagnoses, just a suggestion. It can be treated. It can be ended. Welcome to this site, and good luck, let us know what the results are and what the doc says. All the best! Heal and heal well.

youngKriss
Member
youngKriss

Am Kriss my ileostomy has been discharging whitished flerm, and too much liquid ,so i change the bags 2times a day, my skin is now making sore , any help

Gladys
Guest
Gladys

Hi I am new to this my surgery was four months ago can anyone tell me how I can slow down that white spongy discharge that builds up on the wafer it builds up so fast it covers my stoma and I have to constantly change my bag almost every day. I tried using the ring but it still comes out and covers the hole. I don’t know what I am doing wrong any help would be greatly appreciated . Thanks

john68
Member

Hi Gladys, does the output in the bag look normal, As Eric says it sounds very like the wafer is breaking down. Maybe discuss a different system with your stoma nurse. 

john68
Member

Hi Sandra, Their are a lot of reasons for the raw skin and its a matter of trying to trouble shoot and work out why. https://www.veganostomy.ca/ostomy-leaks-tips/  " rel="nofollow"> https://www.veganostomy.ca/healing-skin-around-the-stoma/https://www.veganostomy.ca/ostomy-leaks-tips/  

Kathleen
Member

john68 – Thank you for those tips. I will have another attempt and see how we go.

john68
Member

Hi Kathleen, those sore bits can be quite weepy and the orabase when applied can spread further than needed. Make sure the area is really dry and use sparingly. also I found that a little dust of stoma powder on top of the paste before the wafer helped. Any additional products always apply as little as possible.

Sandra Pullen
Guest
Sandra Pullen

I had my colostomy Dec 1 2017. I have tried everything that’s been suggested to me and have been to wound treatment center. It is now Oct 2018 and my area around stoma is still red and raw looking. I hope this is not what I have to look forward to from now on. Anyone have any suggestions?

madrikh52
Member

Hi Sandra, I want to reply because I have had ongoing skin issues for more than 2 years. I have had my colostomy since 2013. In August of 2016, my peristomal skin started itching. (I won’t go into every detail, I can hardly remember all of it anyway, since my mom and sister were both terminally ill and died during that 2 year period). Suffice it to say, I saw the WOC nurses many times, each had a different idea for me and none of the ideas helped. Early this summer, I just couldn’t take it anymore, so I went to my dermatologist. Long story short, I was eventually referred on to a specialist about 3 hours from my home. Her theory is that I used something around the time of the onset of the itching that I had an allergic response to and my skin has never had a chance to recover since it is constantly dealing with the insult of ostomy products. So, even though I have tested negative for an allergic response to the products I currently use, I have continued to have itchy, rashy, red peristomal skin. I hope this is making sense.Please ask me questions if you want  more details, because there is a lot more to the story and I’m not in the clear yet. My encouragement to you is, don’t give up! You shouldn’t have to live with angry skin. Marci

heirloom
Member
heirloom

Is the area the same impression as the waffer product adhesive? Is there drainage? Any eruptions on the skin?

john68
Member

Hi, The small points you describe sound very like granulomas. They can be quite sore depending where they are around the stoma. They can be treated by applying Orabase Paste or the silver nitrate as you describe. The silver nitrate must be used very carefully and could cause major damage to the stoma or the rest of the skin. The stoma nurse advised me to use a barrier ring on top of them as they can be weepy and cause problems under the wafer. I only use a small part as I don’t need the full ring! Again silver nitrate will burn!! and the sticks activate when wet.

Kathleen
Member

I put some orabase ointment on the sore bits but then the bag wouldn’t stick to the skin. Did I do something wrong? I am trying sudocrem next. 

Deana Riggs
Guest
Deana Riggs

Hi,

This is exactly what my stoma looks like and it hurts. I have tried both methods and neither has worked. How is this working for you?

bob
Guest
bob

Could try using cortisone CREAM but use it without aloe- as aloe is slippery- when changing the pouch- set aSIDE some time to apply cream to affected skin- allow to absorb into skin for 5-10 minutes or so (have toilet paper or paper towel ready to prevent ostomy output from flowing out all over the place while pouch is off)- wipe off as much as you can- apply karaya powder to weeping skin- then barrier spray or hollister medical adhesive over the karaya- it will take a few changes to start to see improvement- but the cortison should help heal things up nicely. I used to use Karaya pouches for nearly 30 years=- they were absolutely fantastic for nice healthy skin- never had any issues with weeping broken skin- but they stopped making them so i had to switch to hydrocolloid pouches from hollister and now have bad skin all the time because seal will not adhere to my skin tightly aroudn hte edges near the stoma- always battling skin irritation and can only wear pouches 1 day- Tried Ekins- no help- messy to change- etc- and liquid woudl work it’s way under the eakins just as bad as the regular seal. Wish htey’d brign back the Karay pouches- (Yes, they were hard to change- scraping off the stuck on Karaya was a pain, but coudl wear pouches 2 days and skin was always in great shape)

bob
Guest
bob

if you wanted to try cortison with aloe (as Aloe can be very healing as well as the cortison)- you could leave it on for 5-10 minutes, then clean it off really really well- probably with somethign like alcohol to make sure all the oils fro mthe aloe are gone before applying ostomy pouch

Laura Lang
Guest
Laura Lang

I was allergic to most wafers. I ended up in the convatec durahesive with no tape barrier and with a hollister cera ring and nuhope adhesive, I get 7 days between changes. It took a long time to figure out what would work. The cera ring was what stopped my itching.

Robert
Member

Hi Chris looks like I’m a day late . I have used the marathon before and it worked well for me but I did not have blisters I did have a bad irritation though . So like Eric said I would be cautious about putting anything on open blisters .

Chris
Member
Chris

Thanks for your advice! I adjusted the appliance today and used a lot of stoma powder! It doesn’t hurt quite as much so I am hoping it will start to heal!

Dana
Guest
Dana

Hello my husband has a colostomy and is taking chemo. His skin around the stigma is beat red and really moist. This doesn’t happen often. But right now it is really bad. A pouch will not stay on because its so wet. What can I do to help him with this.

John Small
Guest
John Small

My peristomal skin is always a bit moist. I have a strange purple condition just under the top layers of skin that neither stoma nurses nor surgeons can quite identify or help with. It’s probably not as moist as your husband’s, but I have found that, in my case, Convatec 2-piece systems have built-in adhesive properties in the barrier ring/wafer/baseplate that work much better than Coloplast adhesives. Hollister products perform somewhere in the middle. So I get almost double the wear time and much better skin protection.

Bubbles
Member

Try Safe n Simple Barrier sheets to heal skin . Place directly onto skin then your wafer on top. 

Jimmy
Guest
Jimmy

I have had a stoma since 09 Sept 2014 as a result of my own stupidity by not taking action when I first noticed the signs of cancer as in blood in the toilet. In the last 8 months I have been having a red weeping sore around the wound. I have been using Convatec 22771 with an Eakin Cohesive ring after spraying the area with Convatec sting free skin barrier. The pain on the skin became more than I wanted to deal with so after I cleaned up I took plastic wrap and cut it to about 4 inches wide, put it over the wound leaving a ballooned area and taped it to the skin after spraying with sting free. The plastic wrap fills up once or twice a day but I change it and clean up each time but I am able to get out and do things in public without odor. After 4 days the skin issues have been resolved and I can once again use a bag.

I am going to try some of the possible solutions that I have read here and will make a follow up comment if this helps my situation.

Lori
Guest
Lori

Hello Jimmy, I actually use tissue paper folded up and use press and seal (just next to plastic wrap in strores) over it so you avoid using tape on your skin . The press and seal sticks on your skin and tissue paper absorbs any fluid . When changing just wrap up everything in the press and seal and dis guard. Good luck.

Tammi
Guest
Tammi

I want to thank you for your web site and videos. My husband has a colostomy after surgery for colon cancer then a perforated colon with sepsis and months in the hospital so I am the one changing his appliance as he was/is too weak to do so. I have had to deal with several issues and an ever changing stoma. They found another colon leak so in a few weeks he will have surgery to reconnect his colostomy and then they will create an ileostomy. Your web site has been a tremendous help. I really appreciate it!!!

Tom
Member
Tom

Hey! Been following your blog since I got my temporary double barrel ileostomy back in November. Thank you so much for the wealth of information and tips. It’s been like having a second stoma nurse!

I just needed a tip on the size of my stoma. I’ve put weight on since having the stoma and It’s prolapsed a bit. The colon end of my stoma is rather bulbous and it makes changing my appliance hard, so i kind of have to wait until some peristalsis happens. My question is that I’ve noticed when i lay on my back, the actual circumference of my stoma hasn’t changed since surgery but when I’m upright (like anyone is for most of the day), the stoma kind of “fills out”. I’m not sure what to do as I’ve been cutting my appliance to the size of it as it appears when it is larger, which is fine as it seels the gap between stoma and bag, but when I lay on my back at night, it shrinks. This has lead to irritated weepy skin and the powder isn’t helping much. I’ve ordered some protective sheets from Brava i hope will help.

Thanks!

Rob
Guest
Rob

Hello to all,

I am a new permanent ileostomate(3 weeks). At the age of 54, I now am cured of my 20 years of having UC. I am so relieved and happy to have had the surgery and now will be involved with using stoma appliances and I am actually excited…There are soo many options and remedies that it truly puts my mind at ease and am very happy for this site.
I am currently using Coloplast products and their customer service is excellent. I have had no issues with getting samples. One of there recommended sites for ordering supplies is CanMedDirect.ca. There prices are actually very reasonable.

VO, in my opinion, your videos and advice are top notch!

To all, take care and all the best!

Rich T
Member
Rich T

This may be a weird one, but have you ever had sores and bleeding not on the skin at the base of the stoma, but around the shaft of the stoma itself. I have tried barrier rings molded up and around the stoma, doing the turtleneck thing, but the blood and (i guess clear inflammatory fluid) are REALLY doing a number on the survivability of the stoma cover (it doesn’t leak poop ever, but blood is what starts to leak out.

Would you recommend barrier ring, just stick with it for a while longer, or do you know of any tips for this situation? The stoma nurses at my hospital are usually great, but they just kind of shrugged about this one.

John
Guest
John

Hi Rich. I sometimes have several small points around the outside of my stoma that bleed, just as you describe, and blood is obvious in the bag when I empty it. My surgeon looked at it and pointed it out to me and told me to use silver nitrate sticks to chemically burn/cauterize those points. The areas where I touch the stick to turn gray and the bleeding stops. Those spots will heal. I discard the used stick carefully by wrapping the tip in a tissue before putting the stick in the garbage. Be sure kids or pets don’t get into that garbage and be sure to lock up the silver nitrate sticks. They are sort of dangerous for kids/pets. Every time I change the bag I look to see if more spots have sprung up on my stoma. I bought a tube full of 50 silver nitrate sticks from Shoppers Home Health Care for maybe $50 or something.

Lori Bayne
Member
Lori Bayne

I just wanted to send a quick note to say thank you so much for your videos and advice! I have a temporary ileostomy. I am two weeks in with this which I will have for three months if all goes well. I too have experienced the skin breaking down around the wafer just recently. I think I did not anticipate how quickly the stoma would shrink and sized my wafer way to big. My stoma does not stick out very far and the ostomy nurse said it would likely cause more irritation as a result. I tried barrier rings for the first time today and I am hoping and praying it works. The irritation is very painful when I walk. There are lots of good ideas here I am going to try. I have been told to change the wafer every 4 days or every 7 days, but I am reading here I may need to change sooner with the irritation. This whole process can be emotionally and physically draining for us new ostomy folks and finding your site has been a life line. Thank you!!

Mary Ann
Member
Mary Ann

Hi Lori,
I just got a temporary diverting ileostomy which I will have for 3 months also. If you don’t mind, may I ask why you had your procedure. Mine is a trial for conservation of colectomy for slow transit constipation.
I did fine up until 8th day post-op when I started having increased pain and tenderness over the stoma. Pain goes from rib to groin.

Mary Ann
Member
Mary Ann

Lori,
I am new to this site as I read further, you explained your situation. I hope you are doing well In your recovery.
My situation/diagnosis of slow transit constipation seems rare. My colon just refuses todo its job! 🤪

Sarah
Member
Sarah

I have had my ileostomy for about 3 months. Recently I have noticed breakdown of the skin just underneath my stoma. I use the stoma powder and then apply the barrier ring and the the wafer. And I was changing about every 3-4 days. But the last couple changes I noticed the red skin not healing. It is not bleeding or oozing anything but I am concerned with it seeming to get larger every time I change. I am not having any leaks, I just notice this when I change the bag. I called my nurse and she said it sounded like I was doing everything right and maybe I need to change more often. But that concerns me of what it will do to the rest of my skin, especially the already irritated part. I use all Hollister products and through trial and error thought I had it mostly figured out. But now I am not so sure. I just don’t want the irritated skin to get worse and am not sure what to do next? My stoma does contract and sink down at times so I am not sure besides the barrier ring what else to do to help with that? Any help would be appreciated. Thanks!

Reva
Member
Reva

My urostomy is 7 months old and buried. I have lots of bumps and folds in my belly which made it very difficult to find products. I finally found a bag and wafer that works for me but the area around my stoma has broken down. My doctor says the longer I keep the bag on the better, but it’s not getting any better. I am using calamine lotion and airing out the stoma for about an hour. Is it better to change the bag more often?

Rachelle
Member

My stoma nurse recommended two products that healed my very deteriorated skin surrounding my stoma super quick. The first was using Domboro soaks for 15 minutes on the skin around my stoma for 15 minutes with every change. It is found at a pharmacy and is an antiseptic powder you mix with water. I would simply soak paper towel strips in the solution and wrap around my stoma. After dry, I applied Hollihesive under my flange and within a few weeks (4-5 changes every 3-4 days) the skin was tremendously improved. Good luck!

sally
Guest
sally

for those who are having rashes etc. I swear by calalum lotion it has helped me in a big way . doesn’t cost a lot , just make sure it is dry before you but the bag on can buy it in the drug store . belive me it works .I I was beside myself with raw skin . great stuff and you save a ton of money . I don’t spend money on all this stuff they have out , good luck

Jenifer Olson
Guest
Jenifer Olson

I’ve had my ostomy for 10 years now and I’ve tried so many things to help with skin erosion, oddly enough after all the expensive treatments I found that plain old diaper rash cream works best for me. If it gets real bad there’s a product called Marathon liquid skin protectant…. Its pricy but works of you have a large affected area and lasts about 3 days.