Healing the Skin around the Stoma – OSTOMY TIPS (w/ Video)

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The ideal appliance will fit in a way that protects your skin while also providing a durable, and secure fit. Unfortunately, not every ostomate can achieve this balance so easily, so many will experience a breakdown of skin around the stoma.

Video

This happened to me a short while after getting my ostomy, as my new stoma was still shrinking down from its swollen state. I was quite inexperienced, so rather than change my appliance more often, I’d try to get 5+ day wear time, which meant that as my stoma became smaller, it left room for my output to eat away at my skin.

As you can see from the photos below, I had fairly deep erosion of the skin, and it hurt a lot. At the time, I had used the “crusting technique”, which involves putting stoma powder on the exposed, raw part of my skin, dust it off and apply a barrier using either barrier wipes or cavilon spray. You do this a few times to build up protection on the skin, and to allow the wafer to stick to something other than the powder. This technique does work for many people, but it worked very slowly for me.

Very painful peristomal skin 28 days post op
Very painful peristomal skin 28 days post op

More recently, as I’ve been in between wafer samples, I began to get more breakdown of the skin. I attempted to remedy this using the crusting technique, but I wasn’t getting the results I wanted; so instead, I opted to simply use a barrier ring without any powder or barrier wipes. The results impressed me, and my skin has probably never looked that good around the stoma.

Ostomy Barrier Ring on wafer
Barrier rings can be applied to a wafer (just remember to remove the release liner from the wafer first!).
Ostomy Barrier Ring on skin
Barrier rings can also be molded to fit around any size or shape of a stoma.
Healthy skin around the stoma
Healthy skin around the stoma.

And here’s another example of how quickly this method can heal damaged skin:

Stoma Healing after 2 days small
Two days and look at the difference!

Now, I continue to use a barrier ring when I notice more breakdown of the skin. I may continue to use them more regularly, but they are quite expensive and I’m not done trying new appliances that might offer a better fit.

Here’s a video showing how I change my appliance, including how I use barrier rings.

Before you change your routine, you should check with your stoma nurse first, unless you’re willing to experiment on your own.
If you’re interesting in the “crusting technique” for healing peristomal skin, check out THIS article.
QUESTION: What techniques have you tried to heal up your skin?
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ChrisandBagpus
15 days ago

Yes
I am putting the cream under the wafer and its not affecting the wafer sticking. On changing the wafer I rub a thin coating of the cream around the stoma, on the skin that goes under the wafer. I allow it to soak in first, for as little as 5 mins, its amazing how fast the skin soaks it up I them wipe around with a cotton pad to mop up any built up cream. I had notice my skin can get dry, flaky and shiny. I’m thinking this is a result of the inability of air to reach the skin enough.
This is a homemade cream with only natural ingredients, not sure how commercial creams might compare since they may add preservatives etc to lengthen the shelf life

ChrisandBagpus
17 days ago

The marigold cream is working well for me. 
By your post I think your trying it as well.
Mine is a home made cream but several companies produce a commercial product weleda will be a more natural product than some (read the labels)
be interested in how you get on.
chris

mariedianels
18 days ago

I have just begun playing with 
homemade cream of marigold (calendula). 
It’s too early to say, but I found some good less itching and the wafer’s adhesion has not been effected as long as the excess is cleaned off and the stoma is allowed to air for as long as possible. Calendula is a long-used skin healer and removes the steroid or corticoid creams I never do well with! Does Weleda do a calendula diaper cream? 
The recent warm weather is on my side and my Stoma nurse tells me, More skin disorders have occurred. It reminded me that professional cyclists get sore butt problems and use nappy creams mostly lanolin to alleviate the pain and chaffing of the clothes rubbing over their sweaty butts, while lanolin is really greasy (girls keep calm here: lol:) I have found and others have mentioned Omeprazole (Drugs.com list scratching, skin rash) skin problems as a side effect. 

It’s worth 
pointing out.

mariedianels
2 months ago

Very useful information. Can you please tell me the tips. How to take care and diet for the patient of depression, mental health, and psychologist.

mariedianels
2 months ago
Reply to  VeganOstomy

@VeganOstomy
Ok, thank you.

john68
2 months ago

Hi Folks, For any redness I will use Nivea post shaving balm. It doesn’t contain alcohol and is non greasy so as long as you let it dry it will not effect adhesion. 

ChrisandBagpus
2 months ago

I have just started experimenting with a homemade marigold (calendula) cream. Its too early to say but I noticed some positive less itchiness and it hasn’t effected the adhesion of the wafer as long as excess is wiped off and the stoma is allowed to air for as long is possible. calendula is a long used skin healer ( weleda do a calundula diaper cream?) and avoids the steroid or cortisoid creams which I never do well with!
The recent warm weather has for me and my Stoma nurse tells me others, caused more skin problems.
It reminded me that professional cyclist get sore butt problems and use nappy creams mainly lanolin to reduce the soreness and chaffing from the clothing rubbing over their sweaty butts, ( girls stay calm here :lol: ) lanolin is very greasy though.
I have noticed and others have reported skin problems from Omeprazol (Drugs.com list itching, skin rash) as a side effect. Its worth noting.

lpavlovi
lpavlovi
2 months ago

Rosmary, Let me add the most important thing that we have done to heal my daughter’s skin. We always got to Ostomy RN, Dermatologist, and internist first to discuss what we are doing. And because of COVID we have isolated since March 2020. Most of our med. appointments are video where we share photos of my daughter’s stoma….

We work with the medical professionals to confirm which creams, sprays, methods we should use. But across the board, they all recommend giving the area “air” for healing the skin. We now call it the stoma’s “spa” treatment. Air, followed by creams (sprays whichever the doctor’s…advise with our input as to what seems to be working or not), her shower and then putting on her appliance (sometimes with the aerosol steroid prescription b/c it dries quickly first) for the rest of the day.

We also named her Ostomy in 2015 during recovery from her surgery – It is Olliie Ollie ileostomy. So we really say we are giving Ollie his spa treatment. It has helped us in discussing all the issues that have arisen in the last 5 years.

But we keep learning every day. We watched Eric’s videos on every issue multiple times.

If you want photos, please email me

Shazzon
3 months ago

Can u use a convex wafer if you like how they fit can they cause damage to your ostomy

Rosemary Purdy
Rosemary Purdy
3 months ago

Hello. I’m so sorry to say I am still so sore I don’t
sleep My husband my caregiver doesn’t sleep we are upset nothing is working and I have to live like this my quality of life is terrible I am fire red itchy and very painful all around the stoma.During this COVID-19 time we can’t get help I surely do not want to go to a hospital I’m really in so much pain Today we will try nasal spray we tried everything else I only wish something can give me some relief We need a break as we have to be carful.

Kim
Kim
2 months ago
Reply to  Rosemary Purdy

Try a little milk of magnesium around it, let it dry good before putting on bag or ring.

lpavlovi
lpavlovi
2 months ago
Reply to  Rosemary Purdy

Hi Rosemary, I hope that you have made some progress in healing your stoma and skin issues. I am my daughter’s caregiver. She is 57 years old and had Crohn’s disease since 15 years old and has had an ileostomy since 2015. She also has Diabetes which contributes to skin healing issues and other medical issues, caused by steroids which she had for the Crohn’s.

She has had many peri-stoma skin issues.We have had assistance in dealing with her issues from an Ostomy Care Center RN, her internist and dermatologist but it boils down to try and error from applying all the standard creams, steroid sprays (aerosols)…

The best result come with leaving the appliance off for hours each day from 2 hours to 5 hours. And for many consecutive days.

The skin needed air and time off adhesive products to begin healing. There was no advice anywhere on how to keep her appliance off for that many hours but we invented a method using a baby diaper but not worn in the traditional way. Instead I just flatten it out, so that I can place it under her stoma flat against her stomach and used paper tape, Nexus, to hold it in place while she sits in her Lazy Boy chair.

We air it out for at least a few hours followed by the application of a prescribed cream that is half anti fungal and half steroid. This is kept on her skin for at least an hour or more. Then we wipe off the excess and she gets her shower.

Note this is not easy. She has to sit in place for the most part but we have used an stoma plastic cup with some wet gauze it in to absorb leaks/poop while she gets up to urinate or walk around the room or even put some pieces in a jigsaw puzzle. I change the diaper as needed usually about 2 every hour or so.

It is hard to explain and I have photos that I could email to you but do not want to post them here even though there is nothing wrong with them.

We have followed Eric, Vegan Ostomate, online and on YouTube who has been a help in so many ways. Thank you Eric. My daughter’s Ostomy RN also noted what great advice you give.

LLNorth
3 months ago

Rosemary, my situation is not like yours – goodness, what a trouper you must be – but one thing that made a difference for my skin was the Hollister Cera Plus barrier ring. My skin seems to be very sensitive to that material and the Cera Plus was so soothing. Perhaps after you heal up this might be something to try to keep things calm. Best of luck to you with this, hope things  get resolved soon so that you have no more soreness.

john68
3 months ago

Hi Rosemary, I am sorry to hear of those troubles. A number of things come to mind. The stoma is it flush or raised. If it’s flush a convex wafer May be needed. Barrier rings and proper measuring of the stoma can help plus making contact with a stoma nurse would be important. Stay in touch 

Rosemary Purdy
Rosemary Purdy
3 months ago

Tell me more about nasal spray and milk of magnesia How and wear.
My amazing caregiver is throwing his hands up I leak often sometimes 3 bags in a day My stoma is SO Sore and bleeds I don’t know what to do first Ostomy was 9/23/2917 that failed in 4 days 2 weeks later 2nd Ostomy that failed 3rd surgery was the illiostomy I had that was in Dec 2017 besides an open wound that has a fistula that’s leaks. Soooo sore I had a surgery 9/2019 take down for 8 fistulas at Mayo Clinic in Minnesota all from bad surgeries and mesh I have had many wound care nurses not too many stoma nurses. Please help Mayo saved my life but these leaks bleeds and sore and pain thank you

SqueakyandLiza
3 months ago
Reply to  Rosemary Purdy

@Rosemary Purdy
I am so sorry for what you are going through. I can empathize, as I have had many problems with leaks. You have 2 issues to deal with.  Preventing future leaks and healing/protecting your skin. 
As far as preventing leaks, you first need to identify what is causing them. In my case, it was a combination of a recessed stoma with openings on both sides, and significant scar tissue and unevenness in the skin to the left of my stoma, which is where all the leaks occur. For me, a combination of a deep convex wafer and stoma paste are the most helpful.
For your skin, my stoma nurse recommended using nasal spray to reduce the redness (I believe it has a mild steroid in it). She said to just spray it on the red skin around the stoma and let it dry before putting a new appliance on. For protecting the skin, you can use barrier wipes and stoma powder to form a protective crust on the skin. I believe the milk of magnesia does something similar. The best thing for me personally has been Marathon. It comes in little tubes with a sponge end to apply it. When it dries, it leave a protective layer on your skin. It is rather spendy, but it was a life saver (or rather a skin saver) for me when my skin was at its worst. 
Please feel free to ask any questions. If you determine why you are having leaks, people may have more specific advice to prevent them. 
 Best wishes to you. 

Rhonda
Rhonda
5 months ago
Reply to  VeganOstomy

What does the nasal spray help with? And How! I’ve had a stoma for a few years now, but I am still trying to learn.
I was in a coma when my surgery occurred and suffered with seizures after that and I have problems with memory. My husband was taught to change my appliances and slowly over a long period of time, I learned to do it for myself.
Any tips will be a welcomed change.

Larry Campbell
Larry Campbell
6 months ago

Thank you Eric for your amazing videos. I am a bit confused. I mainly use Hollister 2 piece. Can you apply it without a barrier ring? I just continued changing the same way as in hospital with the ring. Again thank you so much for your calm advise.

Larry

john68
6 months ago

Hi Gemma, If you don’t use already a can of Adhesive removal spray can make the process of removing the wafer a lot easier

Gemma SMITH
Gemma SMITH
6 months ago

Thanks so much everyone for your help he left a message with his stoma nurse no ring back yet tho :( and he is trying to change his bag every day method and soaking it in the bath to c if that helps at all I will get him to read this as soon as as all great methods and super helpful thanks so much xx

john68
6 months ago

Hi Gemma, As Eric has said getting a stoma nurse/ medic to have a look is important, even in these strange times there are still ways to do this. Can you think of when things changed and what maybe differently he has been doing. Could he be putting the wafer on sitting and then it’s causing it to pull when standing.their is always a reason and always a solution. Keep in touch and best wishes 👍

Gemma SMITH
Gemma SMITH
6 months ago

My husband had his done 2 years ago now and it really bleeds when he changes his bag like the skin has split and he has been using the crusting method with no joy i sent him yr video as I just want him to not bleed really to have healthy skin around his stoma .

LLNorth
6 months ago
Reply to  Gemma SMITH

@Gemma SMITH Can you contact a stoma nurse? It can be hard to actually see someone in person these days but even oven getting on t he phone might get things started as we move towards “elective” surgeries (in our state they began to do these again just a few days ago). Eric mentioned barrier rings, for some relief. I have recently started using CeraRings which are soothing to my skin, which was irritated (though not like your husband’s – I am so sorry he is experiencing this misery) and occasionally bled at one edge of the stoma, where the stitches had been. They are helping quite a lot. I hope things resolve soon for your husband and he feels much better.
ps – A little applesauce can gently thicken output – he might try it if he hasn’t already.

Joyce dillihay
Joyce dillihay
8 months ago

My son had his ostomy since oct 17,2019 and it has been really hard for him to keep the rash away and alot of leakage.what can i do?

JoAnn
JoAnn
5 months ago
Reply to  VeganOstomy

My name is JoAnn and I had a lot of irritation and it itched so bad and I didn’t know what was happening. My ostomy is a few months old and I called my ostomy nurse and she told me to try nasal spray (any kind) and see if that works for me and so I did and I was so relieved. She told me it is an old remedy that has been around a while. It truly works. I now keep it on hand always. Give it a try and good luck.

Valarie
Valarie
11 months ago

When would I use the liquid skin protectant?

Bronwyn
Bronwyn
9 months ago
Reply to  Valarie

I use Marathon liquid skin protectant regularly as I get skin maceration but no leakage. I have an ileostomy and my stoma changes shape considerably depending on if lying down or standing up. It goes so low when lying on my left side that I can’t wear a barrier. The skin protectant lasts 3 days on me.

JoAnn
JoAnn
5 months ago
Reply to  Valarie

I clean the area good and put the nasal 6on with gauze and let it dry and apply the ring and then put everything else back on as usual. I don’t use anything else, just the nasal spray.

dieffenk
1 year ago
Reply to  VeganOstomy

@veganostomyHi Eric, I meant to say I had a proctectomy and my drainage is from that area of where they closed the rectum and anus. I have since called the surgeon and they said I might always have this drainage or it could go away. ( I do not have a fistula at this time). By the way I have tried today with the aloe vera  gel on my inflamed peristomal skin. I will let you know if it help healing.Thanks,Kevin

john68
1 year ago

Hi and welcome, I can’t advise on the second part of your post, but am glad to hear that barrier rings are making a difference. Lots of brands to choose from and different ways of using them. 

LK
1 year ago

Michelle, your client is lucky to have  you. Welcome to VO. Pat yourself on the back for going the mile for  your client!Kevin,   same to you! Glad  you are here! When I was having skin irritation in the beginning and no stoma nurse, an hour away from the GI, basically on my own, and no Eric!  I have eczema, and very sensitive skin issues. The first thing I do is to take 3 connected squares of TP folded in half from side to side once. This  bakes it 1 1/2 squares.  Then from opposite corners, I fold that  in half, it will look   like two triangle flags, connected.   I wrap that around my stoma to catch the fluids it makes. I use 3 ply for this and found I leave less behind on the stoma as 2 ply when I need to change it. Eric suggests using gauze squares for this job. I found going back to the basics, taking my time with cleaning the  skin, water  only and a soft cloth, fanning it the dry with the plastic from the back of the wafer.  Adding the Barrier wipe, and or spray, fanning  it dry.  Spraying some on a wipe where the fold is   and protect around the edge of the skin where the stoma meets. Using one end of  a cottonless q-tip to gently push  my stoma thru the hole it helped make the difference for me. Also if you can, fold the wafer in half where the hole is, away from  your tummy, and put that on first to the lower part of the skin and stoma.  Them move the stoma thru with the q-tip,  and put the rest of the wafer on your tummy. Spend extra time gently pressing around the opening of the stoma hole you cut,  as soon as possible to make sure you adhere it first and as well as you can, then, work on pressing on the rest of the wafer then back to around  the hole a few times. I use a “warm” hot water bottle,  protecting the stoma with a dry wash cloth,  single layer.  As soon as I can, I lay down with it over the wafer to give press gently, extra encouragement to stick where I want it to stay. Make sure you also get the slightly thicker outer edge too. If you go to long and use too warm water  you risk swet forming under the wafer. I go about 5 min. fo the rest. Stay untill the area us cooler after the bottle us removed.I use barrier wipes and spray because I like a slightly thicker layer of barrier simply because my  skin is so sensitive. I worry less that I  have removed what I just put on using the spray. Fan dry.  Now, however, I will use a square of TP folded into a triangle, then,  roll it as tightly as I  can from edge  to edge to form a tight point.  Push the stoma thru with the point, then place the rest of the wafer on your tummy. The TP makes the stoma dryer and is easier on the stoma then a tip.  Try not to get TP on the wafer but if you do it is up to you if you want to risk using it or not. I find it depends on the size of TP that touched  the  wafer,   you can judge that your self too. I rinse my bag every time I empty and then use 2-3  squares of TP,  triangle it over my index finger and wrap it around it.  Then slip that into the bag, finger and all. I wipe that bit of plastic that folds over on the opening. It is away from you, and I dry that first then the inside of the mouth, and as I pull it out I can easily get the corner edges clean and dried too. I hope this  is  helpfull to you both. Be well. Linda 

john68
1 year ago

Welcome Kevin, Good advice from above, as pointed out getting to the source of the problem is key, Eric has lots of help about skin condition on the site, I have come across a seal/ring from Salts which contains aloe Vera 

dieffenk
1 year ago
Reply to  john68

@john68Thank You John for the advice, appreciate it!

sjlovestosing
1 year ago

Welcome, Kevin! You are in good hands here. Eric is a gem and very knowledgeable.I tend to use only the products that are specifically used for my ostomy. So, when I first had issues with my skin, I used a stoma barrier wipe with Holister’s stoma powder. I was also given an antifungal powder by my ostomy nurse as it appeared that what I had around my stoma was some sort of fungus. This powder cleared up my issues. I also use Sensura Mio 1-piece from Coloplast, which helps to keep my skin healthy. Good luck in finding the right solution for yourself and keep coming back here. You’ll find a great deal of info and support.God bless,Stella

Kevin Dieffenbach
1 year ago

Hi Eric,
I am new, my surgery was on October 17 2019. You have been more help than the ostomy nurse at the hospital!I
Has anyone tried to use 100% Aloe Vera gel on the damaged skin? It is suppose to absorb well into the skin without any residue. Maybe it would not interfere with the appliance staying on?
This process has been very hard, and you have made it a bit easier.
Thank you.

dieffenk
1 year ago
Reply to  VeganOstomy

@veganostomyHi Eric, thanks for your reply. I am now using barrier rings and my peristoma skin seems to be getting better. I believe I was having some leakage.i had a prostatectomy as well, and I continue to have drainage from that area. Did you or do you have this issue as well?thanks again Kevin

Diane Adams
Diane Adams
11 months ago
Reply to  VeganOstomy
ChrisandBagpus
6 months ago
Reply to  VeganOstomy

Posted by: @VeganOstomy
@Kevin Dieffenbach
Hi Kevin,
Welcome and thank you for asking. 
I haven’t personally used aloe on the skin under my wafer, nor have it heard of any stoma nurse recommending that, so I hesitate to recommend it. 
Barrier rings have helped me more than any other product in this regard, however, the cause of sore or raw skin would need to be addressed as there could be different ways to tackle the issue. 
Do you know what’s causing your skin to be damaged? 
 

Hi after my surgery the stoma nurses here in the UK used a Manuka honey gauze pad, they cut it into strip and applied directly to the bleed. seemed to work quite well at healing it quickly. The pads were also used extensively on the patient in the next bed who had lots of weeping pressure sores on the advice of a specialist wound nurse.
Chris not be posting of late. still in recovery from the chemo/radio. I thought this bit of information might be helpful
Back soon when I’m more awake and Bagpus is less grumpy :-? 
 

LLNorth
6 months ago
Reply to  ChrisandBagpus

@ChrisandBagpus i have been thinking of you. Chemo and radiation made my stoma grumpy, also (I, however, was a little ray of sunshine, as always – well, maybe not). Have you finished with the treatments yet?

Michelle
Michelle
1 year ago

I do home healthcare for a client and he is having an issue with skin breakdown around his stoma, we have tried the caking method as well as the moldable ring and it simply is not adhering which causes the output to sit on the skin longer and then it leaks. Are there any other options for him to try??

john68
1 year ago

I know before surgery I had a lot of stomach pain and of course the sickness and cold sweats. And who can forget the sore bum!! Was getting to the stage where I was considering keeping the toilet paper in the fridge 😃❄️❄️.

john68
1 year ago

This is my take on why we think the stoma it’s self is sore, the little guy or girl 😃 does his wriggling as we pass out put when this happens that causes a certain amount of movement skin and wafer wise hence if there is broken skin or not enough room pain occurs. I do know the proper name for the stoma moving!! Peri……Ok now it’s obvious I can’t spell it!!!!😂😂

LK
1 year ago
Reply to  john68

@john68 I believe the word you’re looking for John is peristalsis. I remember a bit from my nursing days.😂! I truly felt the pain was situated only to the stoma. It was also a new pouch on when that happened. I also question that if it does not hurt, being made of the same material of the stoma why do we get pain and credit it to the bowel hurting?🤔. The erosions, tho we can’t exactly feel or place them seem to be a symptom of disease and when active I certainly have a lot more pain.🤯.  There is so much more I want to understand 🤓about the guts. I know when I touch my stoma she does not hurt yet l  place the pain right with my bowel.🤔. I think we need a scientist here 🏅🤓.I have to ask if everyone gets pain with the flares of disease? I know I have a different type gut being shorter then short and with bowel wall thickening, but does everyone experience the pain?🤔

SqueakyandLiza
1 year ago
Reply to  LK

@dlkfiretruckLinda—you are so funny with all your new emojis. You are like a kid in a candy store. 😂🍭 And, so you know, I always have my phone lying on the bed when I sleep, so when I am online in the middle of the night, I usually am lying in bed, often after getting up to empty my bag.  😀

Bill Bell
1 year ago
Reply to  LK

Posted by: @LK … but does everyone experience the pain?🤔

I never had any pain when I had Ulcerative Colitis and have never had one since my ileo operation 3 years ago.  Maybe I don’t have the nerve endings that others have.  Just lucky I guess.  I never have problems with the whole bag thing. :-P 

LK
1 year ago

Hi Mary, and Welcome. I know what you mean about the stoma hurting which is why it puzzles me that we are told it does not hurt. When I first had mine, I had made the hole too small and l could feel it was too small for the size of my  stoma.  Gas was trying to escape. I layed down and watched  the stoma bulge with gas, escape,  and then the stoma went back to its size and that particular pain went away. The hole in my wafer was not much smaller then usual, but it was small enough to make the difference. I replaced the pouch with a slightly bigger hole I had cut in the wafer and since, it has only ever felt some what I called pain in my stoma, if I had cut the  hole & it had a little outward notch in  the wafer that my stoma touched, it would hurt there. Sometimes if the hole l cut even a bit too small and the stoma touches the wafer and the edge of the hole is not softened yet, I will be aware of it. This is one good reason to not have an exact hole as to the edge of the skin. When you cut the hole, cut it on the outside of the line otherwise you inadvertently make the hole too small.  Turn  the pouch when cutting the hole , not the scissors. This avoids the bit of pointed edges I talk about. The skin does toughen up in time and can  take the bit of a lot better as we go on  in life. I hope this help.Linda…doesn’t anyone sleep around here, and Liza…go back to bed.😴

john68
1 year ago

Hi Mary, when we have pain it’s not the stoma but the skin around the stoma. Is this pain new or part of on going skin problems. It could also be that the wafer is to tight or pulling on the skin. Changing to often can cause problems but if it’s causing distress I would change. Have a good look at the wafer and skin when doing.

Mary
Mary
1 year ago

I have an ileostomy,
I changed my appliance yesterday, Wednesday, this evening my stoma hurts?
Should I change the appliance again?

john68
1 year ago

Crusting and other remedies are good for a small or mild troubles but Eric is right seeking help from a stoma nurse is best 

Tina
Tina
1 year ago

Hi, I’m new to the forum but have had my ostomy since 2016 and have tried a few appliances because I have a sensitivity to the adhesive and finally found one that has worked for me. However, lately the base plate hasn’t been adhering well and then starts to lift around the edges and that gets very itchy for me and I try soooo hard not to scratch but I do a lot of it when I’m asleep and now my skin has been so red and raw and I’m having to change my bag too frequently, please what can I do for that? Is there a tape that heals the skin at the same time? I’ve also tried the crusting but find that things don’t stick well after that either. I wish they made a base plate made of all skin barrier ring. :)

Alison
1 year ago

Hello all,
I have found Eric’s videos and info very helpful. My surgery was 8 weeks ago and I am very happy with my recovery (and freedom from the toilet!). The lower half of the colon was removed, and while I did have solidified output at the beginning, the past 4 weeks have been like mud – not quite diarrhea. However, there is a problem with the juncture of skin and stoma. That is to say, as the stitches dissolved, the skin wasn’t yet closed around the stoma. Now a real gap is evident, and the skin’s edge is raised, like a bumper, and irregular. There is also a broad area of skin at one side that has remained a red wine colour – it is sore to the touch. Of course, I have seen the surgeon several times since the surgery, and as it became more painful at about week 4, instead of less, he prescribed 10 days of two antibiotics at week 6. At the visit after that he again examined things, poked etc. While it is less painful than before the drugs, the gap appears wider. He is concerned, yet suggested a wait and see approach, and return in two weeks. I asked if he could restitch but he said this is not possible.

Today’s pouch change revealed seepage under the wafer, again. The “bumper” isn’t helping I suppose. Yes I have tried convex wafer (suggested by visiting stoma nurse, made it hurt a lot), rings (suggested by hospital stoma nurse, seemed to make stoma retract, more seepage), and paste (seemed to dissolve, and fail). This last time I tried cutting the wafer tighter to the stoma, and used no extra product. This was more comfortable, but was just an illusion of success! I have let the skin “air” a couple of times, sitting in the sun awhile. Yet the problem continues. Today I turned again to the Google search, and of course there really only is your site! I watched the “crusting” video (thank you and will try that now.) But I was very struck by how different my stoma looks – and now I am getting rather worried.

So here are my questions (at last). Has anyone had this issue of the skin remaining apart from the stoma? What was done to help it heal properly? I do trust my surgeon, but it seems time to reach out for other input.

Cheers,

Alison

Michael Dennis
Michael Dennis
1 year ago

Great video, thank you. I’ve had my ostomy for five weeks now. I’ve been struggling with leaks almost daily it seems. After watching your video I realize I’ve been doing a few things wrong, which I’ll now correct. My skin is in pretty bad shape, I think following your tips though will help it heal. Thanks again!

Dona
1 year ago

Hi Suzanne,Welcome to the forum and thanks for the tip about healing and protecting the skin with the milk of Magnesia. Great tip! I wrote it down so I can refer to it when needed.I hope you continue to add your voice to ours and post more tips since you have so much experience to share. 

john68
1 year ago

To explain a little more, A granuloma is on the side of the stoma. They are very weepy and eroded my wafer each time. I had the little pests removed a few months back with great success. The erosion never lead to a leak but it comprised the seal. That coupled with a little scar left from the removal was proving slow to heal. It’s easy to apply and adding a little stoma powder provides an excellent crust. Once again impressed and proves how valuable sharing experience and ideas is. So cheers Suzanne and Eric for providing the forum 👍

SqueakyandLiza
1 year ago
Reply to  john68

@john68I think I have had something similar. A couple times when I saw the ostomy nurse, she used silver nitrate (I think) to burn something on or around my stoma. It was a stick with the silver nitrate at the top and she used some lidocaine to numb it and then just touched it with the tip of the stick. I am probably due to go back and have her check it again. 

sjlovestosing
1 year ago

Wow John, it sounds like Suzanne had the fix you needed. I am glad things worked out for you!What a blessing that she found this site.Stella

john68
1 year ago

I have been trying out the tip posted by Suzanne About using the Milk of Magnesium. I have a sore spot of skin where I had a granuloma removed. It was healing but slowly. I followed what Suzanne said and after 2 treatments the difference is remarkable. Many many thanks for sharing this tip. 😀👍

john68
1 year ago

Experience speaks for itself. After many years respect

Suzanne
Suzanne
1 year ago

In the late 70’s (ileostomy in 1974) I saw a ostomy nurse in OKC. She recommended this procedure. Get a new small bottle of original non flavored Milk oh Magnesia. DO NOT SHAKE. Pour off the liquid watery part. Now, shake. Gently pat on a thin coating of the thick white stuff left in the bottle. This feels great on skin. Now, dust with stoma powder. Then spray on a thin layer tincture of benzoin. Let dry about 60 seconds. Touch skin without the milk of mag goop. It should feel tacky. If not repeat spray routine. Then put on the Eakins seal and then faceplate, and the bag. I’ve had my ileostomy 45 years and have been a pharmacist 42 years. I’ve explained this procedure many times and it usually helps.

Susan
Susan
1 year ago

Hi,
My mom had an ileostomy a few months ago and she gets a fair bit of leagage lately. Is it normal for the area that is affected most by the leakage to burn and itch after the appliance and wafer have been attached. The itch and burn isn’t spreading, just localised to the area that was most affected. I’ve been worried about another leak, but the area seems really dry.

Glad I found the site. You’ve been invaluable.

Dona
1 year ago

Hi Tracy,If you can’t find a stoma nurse is there a dermatologist in your area that you might see about healing your skin?They might have some suggestions. You do need help, and soon. The only way to get the wafer to stick properly is to have a good place for it to stick too. Thats sounds simpler than it is.If you do find someone to consult with, be sure to take all the things you use for your stoma care with you to the appointment ( bags, wafer, pastes, powder…everything) so they can see what you are dealing with. Most doctors have no idea what the ‘stuff’ we use actually looks and feels like.Good luck. Let us know how this goes.

LK
1 year ago
Reply to  Dona

Welcome Andy and Tracy.  Getting past a leaky time is hard. Making sure your skin is dry and the whole fit is good and some pressure and warmth applied to the new wafer area will help a pouch stay on. Spend extra care around the hole you cut. Measure often. If you need more  paper charts ask a company to send you a handful.  if you are using the barrier wipes, it is possible to use too much in trying to protect our skin. Have you tried just using the wafer only, no pastes and such? If you have not, maybe experiment. With the barrier if you use it of course.

Tracey, you really need to be seen in  emerge. If you have no one to drive you then call an ambulance. This way there is no wait in chairs. You need to advocate for yourself here.  A few words doctors pay attention to…I think it is infected.  Even if it does not look infected, say so. Let them decide. Tell them you can’t do this alone and need the help to figure out what is going on. Also tell them you have no quality of life because you have no clue what is wrong  and how to fix it. Cry of you ga e to. You are so strong I  trying g to work this out for yourself, but now it is time to insist on help. Do as Donna said, and do your best to make them understand. You Re too new to this to be trying to figure this out on your own. If you develope a major infection that is no good either.  Please get some professional medical advice ASAP. Let us know what happens.

HeyKarrieann
HeyKarrieann
1 year ago
Reply to  LK

Don’t get discouraged… it takes practice and lot of it. I was in tears because it seems that I had leaks every day, some times more often in a single day. Now I’m comfortable with changing my appliance about once a week… although few days ago I had a “pancaking” situation going on which was a mess but I kept calm and worked through it. Relax, set everything that you need out (even things that you may not have used) and work through it all! 😁
I’m a colostomy mate since October 2018 and still feel like I’m new at this. YouTube by veganostomy and others like him really go a long way for learning… glean information from many of the Ostomymates and apply what works… but make adjustments when things change, like the size of your stoma and such. I wish the best for all those who read this.

john68
1 year ago

Hi Tracy, Have you contacted a Doctor to see what they could do or organise.