Community Forums

Eric, Thank you very much for allowing us to share your personal stories. You are amazing and I admire you with all of my everything! You are the fou...

Hello, I have had two ileostomy reversal operations. After my first reversal operation, my tummy (small intestine rather than stomach) made lots of n...

Marcie, Although I cannot know your physical pain and discomfort as you experience them directly, our hearts can connect and I can understand what it ...

I do have NAFLD (nonalcoholic fatty liver disease) (though not too serious) and when I had my ultrasound, I did not have to do anything with my pouch....

Amazing! I spent some of my university years in Buffalo and these really look like the chicken wings my friends and I often ordered from the universi...

p.s. I hope you are not offended by what I wrote. Because I myself have short bowel syndrome like symptoms, I understand how terrible they are and ho...

When you told me the other day about the negative symptoms you had developed and were no longer taking gattex, I was very sorry but to be honest I was...

Dear Marcie and Zvitusk and all others, Thank you very much for praying for me. I had my surgery on 9 March and was discharged one week later. I wil...

Dear Z, Thank you for your kind advice. I have had this 'A1C' test on a few occasions including a few months ago. Although my last test result was t...

I am currently in Tokyo preparing myself for my next operation (my 4th in three years and nine months!) on 9 March. I will be in hospital for about a...

Dear Zvitusk, Thank you very much for posting your story, which gave me so much strength, encouragement and hope. In your case, the initial removal w...

Marcie, Thank you for thinking about me and sending me helpful advice and encouragement when you are yourself going through a big challenge. I think ...

Marcie, I actually have a question. I understand that you have symptoms of short bowel syndrome. According to wikipedia, 'most cases [of this syndro...

Marcie, We all love you and will be praying for you with our sincere heart and soul. I have the same issue - I am eating so much but my body (small i...

Hello Reggie, Almost four years ago I had a loop ileostomy for four weeks and towards the end of this period, I could see that it was coming out sligh...

Marcie, Thank you very much for your kind and thorough advice. You told me your story before and it's amazing that you overcame all these. I admire ...

Marcie and Zvitusk, Thank you for your kind comments. Of course, if I really suspect a blockage, I would go to a hospital's A&E as soon as possib...

Eric, thank you very much for your very helpful advice. You are right. I already have enough complicated issues and I certainly don't want them to b...

Eric and others, thank you for your advice. I love non-sweet cold pressed green vegetable juice - more than sweet fruits smoothies. On that day, I h...

I use a midi size one piece pouch and I empty my pouch at least thirteen times (including at least three times during my sleeping hours) each day. I ...