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Where Did I Go? (Sept 2018 Update)  

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Marcie
(@shulmjs)
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Posts: 1463
September 13, 2018 12:34 pm  

We understand Eric…………..  Not to worry-- now get back to taking care of  yourself with NO mental stress here...………  We have lots of back logged information to get back into and advance ourselves with all the new approaches you have done.. This should take us a bit of time..  We will take care of each other the best we can..  After all-we are family Right !!!!!!!! 

 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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Zvitusk
(@zvitusk)
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Joined: 2 years ago
Posts: 396
September 13, 2018 5:33 pm  

Please accept my sympathy for the troubles that you are bearing.
I am sure that you have heard that God only challenges those who are capable of overcoming the difficulty.
You know how much we respect your strengths. We constantly praise your accomplishments. We pray that you will find the source of the pain and cure it.
Then, you can tell us about it so that we can overcome it , too.
Respectfully,
Z
P.s. your frustration with a drug addled relative is a common problem. It seems that no family is immune to this disease. Especially now, when the opioid epidemic is not due to moral weaknesses.
Prayer does work.
You cannot teach "stupid".
You can pray for "stupid " to survive and recover.
Z


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Lisaj
(@lisaj)
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Joined: 7 months ago
Posts: 7
September 13, 2018 7:18 pm  

You’re so awesome Eric- you got me through one of the most difficult times. Please don’t feel guilty. I watch your videos several times so personally I don’t need new content! I have been so overwhelmed with questions that no one else can seem to answer. Your website is alive and well. I am sure you will get through this and be yourself again soon. I wish you all the best health and strength as you deal with your family member. Been there- it’s awful- totally powerless. I know it really sucks. Hang in !


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Robert
(@njewell1)
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Posts: 667
September 14, 2018 11:02 am  

Hey Eric . First off you have no reason to be sorry for anything you and your site have helped me and so many others so much and will continue to do so . Take a break . I am sorry to here that a loved one of yours is having a problem of such magnitude and I am sure it is very frustrating for you . I am wishing you and your Loved one the best with getting through this problem . You know even if we all can't be there physically to help we are ALL there for you with moral support and prayers . I am also sorry to hear that you are having such problems with your health and I am wishing you the best with everything they will get it figured out . You are a FIGHTER and I know you will get through all of this .

Subtotal colectomy and Proctectomy , Ileostomy , Ulcerative Colitis


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LK
 LK
(@dlkfiretruck)
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Joined: 2 years ago
Posts: 305
September 14, 2018 3:00 pm  

Hey there Eric... Addiction is a nasty issue. It is a whole other kind of pain. So sorry you are going through so much right now. As for yourself, have you or will you be seeing a Rhuematologist?  They deal with chronic pain issues all the time and often know things our GP may fail to recommend or see.  They also do blood work that our GP's never think to do. It would not hurt to see one. Auto Immune disease is a tricky thing. I recently discovered how linked together my IBD and Ankylosing Spondylitis are.  Eric, we get that you can not be on the job  24/7.  We love you for what you are doing and have done for us all.  You are taking your priorities the way they need to be handled and I admire you so much for you that.  We would all do the same. Family first is a must.  Take all the time you need. New content is always welcome, the old never gets old, it is ongoing and continues to teach even after the fifth time of viewing or reading.  Anything else is bonus. You will get to these other things eventually, and as usual, you will do an awesome job. One day at a time Eric. It happens when it happens. I too will keep you and your loved one in my prayers.

Linda

Linda


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VeganOstomy
(@veganostomy)
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Joined: 5 years ago
Posts: 2074
September 15, 2018 11:35 am  
Posted by: Linda Knelsen

 As for yourself, have you or will you be seeing a Rhuematologist?  

I have. They ran many tests and found nothing. The pains aren't only in the joints, so it adds more layers of complexity to the situation. 

They also do blood work that our GP's never think to do.

Yup, many tests that even the nurse who drew my blood wasn't familiar with! They come back "normal". 

Auto Immune disease is a tricky thing. I recently discovered how linked together my IBD and Ankylosing Spondylitis are. 

I tested negative for AS, but at this point we don't know if what I'm experiencing is autoimmune related or simply an abnormal immune response to the shots. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Andrea Manson
 Andrea Manson
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September 16, 2018 1:56 pm  

Get well, my friend. You are an amazing man with an amazing helping caring heart. Sending your healing thoughts.


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Frank
 Frank
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September 16, 2018 2:11 pm  

So sorry to hear of your health struggles and those of your loved ones. Be good to yourself and know that your site helps many people, regardless of any additional updates. Peace to you, Eric, and thanks for all your help during the early days of my ostomy, when I was quite discouraged.


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Lynn Newton
 Lynn Newton
(@Lynn Newton)
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September 16, 2018 2:24 pm  

I am so sorry to hear of your struggles! Take the time you need for yourself and your family. We all here understand and support you. Persevere and resilience. Stay strong, my friend, and know people care about you.


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Sharon
 Sharon
(@Sharon)
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September 16, 2018 2:27 pm  

I am sorry to hear about your health problems. I love all the information you have available. If it wasn’t for you I would not know too much about my ostomy. I just want to say that I have lupus and sjogrens ,heart disease and had cancer hence the colostomy . I believe through my own experience I do better with out vaccines. Every time I have a flu shot I get terribly ill and I was told not to have any live vaccines so I have not tried any other types .I hope you get well soon Eric and are soon back to your self .


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Kelly
 Kelly
(@Kelly)
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September 16, 2018 2:36 pm  

Dear Eric
I am new to your forum, I have rectal cancer and I will be starting my radiation next week followed by surgery. I will have a temporary ileostomy for 3-6 months depending on if I have Chemo. I am telling you this because I have found your discussions and videos informative and very helpful, sorta reassuring. Your tips and product reviews are helping me normalize what is happening, and give me some measure of control. I really appreciate your efforts.
I wish you well, hope your future is brighter and that your troubles are eased a little knowing you have been able to help a stranger in need.


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Ted
 Ted
(@Ted)
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September 16, 2018 2:37 pm  

Eric, I’m here for you buddy. Your an amazing source of inspiration for so many. So please take the time to take care of YOU and yours first! There is only so much one can do and handle in a day/week/month/year so be good to yourself!

Ted in Seattle


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King Rushnell
 King Rushnell
(@King Rushnell)
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September 16, 2018 2:49 pm  

Hi Eric, I'm sorry for all of your recent upsets in your life. You are an amazing ostomate advocate and I have learned a lot from your videos. I am about 1 1/2 years from surgery for my ulcerative colitis and I now have a permanent ileostomy. Thanks to you, I have found a system that seems to be working for me. I am sending prayers that your life will get back to normal soon. Take care of yourself. Kindest regards, King from Clarkesville, GA USA


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Deborah Camp
 Deborah Camp
(@Deborah Camp)
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September 16, 2018 3:02 pm  

I am very sorry you and your family member are having to go through this. You, as a witness and a person who cares deeply, and your family member, who is obviously struggling. My youngest sister unfortunately passed away from an opioid overdose three years ago. I know the pain you are going through and hope that your family member will seek help--as my sister did not--and will be able to emerge from this illness. I also hope you will be able to regain your own health as well. Along with having a temporary ileostomy, I also live with chronic back pain from an accident 18 years ago. So much to go through....but I'm hoping only the best for you.


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kiya
 kiya
(@kiya)
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Posts: 42
September 16, 2018 3:09 pm  

Eric,

Thank you very much for allowing us to share your personal stories.  You are amazing and I admire you with all of my everything!

You are the founder, but also a member, of veganostomy and here, we all offer help and receive help.  You shouldn't be an exception.  Of course, you don't have to tell us anything that you don't want to or don't think is appropriate but I hope you will allow us to help you wherever and whenever possible.  Some of us may have had a very similar experience as you and we may be able to offer you some helpful information.  At least, we can give you lots of love, understanding and support.

I will be praying for you ...

kiya

 


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Laelena
 Laelena
(@Laelena)
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September 16, 2018 3:33 pm  

Wonderful Eric, so sorry to hear about your health issues. Please, and believe am talking on behaft of all of us, take care of yourself and your family. That is your first priority. You will give us the same advice. You have been do caring and giving that we want you to use all your energies in getting better. You havel been such an inspiration personally to me the last three years. Going from a pretty healthy 78 year old, to a permanent iliestomy and total cholectomy after contracting the C diff virus, and finding such a wonderful support. I learned to accept my condition, mostly because of you, and your wonderful Web Site. My prayers and best for you and your family.. Best of everthing, Liaelena from California,


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Gimparoo
 Gimparoo
(@Gimparoo)
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Posts: 2
September 16, 2018 5:00 pm  

Hang in there Eric, we are all behind you in every way!
You started this site as a refuge for all Ostomate to come for help.. allow us to help you where it’s possible. We feel and understand your pain. Just know we just want to help!
Keep the faith, keep your spirits as high as you can... my thoughts, our thoughts are with you Eric.
Gimparoo


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Susan North
 Susan North
(@Susan North)
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Joined: 12 months ago
Posts: 4
September 16, 2018 7:00 pm  

So very sorry to hear about your health situation. ( Just wondering if you could take the vaccines separately instead of all together?)
You started VeganOstomy and I found your videos comforting and so informative. I looked forward to them and the information.
I do understand as just having an Ileostomy can make me feel drained and I keep forgetting and of course most people do not understand.

Anyway, this is about you and I feel so sorry you have a family member with substance abuse. That is so hard. They have to see it is hurting them and that is hard. Of course you do not have to share very personal info. That is totally fine.
I hope you pull through this as we are all pulling for you to feel better.
I do find Social Media stressful, too, at times.
Please take care of yourself so you can come back.

Maybe if someone in the Blog reads this they can figure out the item that is a blue beaker thst comes with liners and a covered wire holder that fits on the toilet so a person can sit down. I cannot remember the name of it or the company. I need it since I fell!
I am putting my email here and Eric, if you need to edit this out, I understand but I am not on the Blog much.
I can be reached @
snorth2@me.com

Again, Eric, please take care of yourself and I hope the Doctors can help you heal. Hopefully you will heal soon. We are all supporting you. No one does videos and explains this like you, just my opinion.
All my best.
Heal quickly. (Find a person that can do Reiki)
Susan North


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Derek Young
 Derek Young
(@Derek Young)
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Joined: 6 months ago
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September 16, 2018 7:51 pm  

I wish you all the best eric.you seem the kind of person to come through this,but I am rooting for you.


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nassivet betty
 nassivet betty
(@nassivet betty)
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Joined: 10 months ago
Posts: 3
September 17, 2018 5:23 am  

Bonjour,
Je vous envoie plein de courage et je vous en prie, prenez soin de vous !


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