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Tony
Tony
@ileostony
Topics: 10 / Replies: 236
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RE: Hyperbaric oxygen treatment update

Liza, do you have a nurse liaison from Abbvie? I got a call once every three months or so from mine when I was still taking the medicine and could cal...

7 years ago
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RE: Hyperbaric oxygen treatment update

Hi Liza, How long have you been taking the Humira? If it's been more than 3 months, it should be working. I took it, and that's my experience. If it...

7 years ago
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RE: Ostomy Awareness Day

Liza, You're such an example for new ostomates who might be afraid to live their lives. It was hearing stories like this that made me realize I woul...

7 years ago
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RE: Pseudo Blockages, malabsorption and severe anemia...am I having fun yet?

Linda, Wow! A soft answer turns away wrath. It sounds like both you and the doctor practiced that. Sometimes it's in the words. Sometimes it's in th...

7 years ago
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RE: Hernias By Stoma Maybe ?

Hi Cyrisse, I'd like to add my voice to the chorus here and say that this is heartening news. Here's hoping for a smooth ride all the way through.

7 years ago
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RE: Hernias By Stoma Maybe ?

Hi Cyrisse, How are you doing? Did you see the surgeon? How did that go? We're all pulling for you.

7 years ago
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RE: Fall Days and Pies

Lemon Meringue, pumpkin, and apple too, in that order. Liza, love your signature line, so totally relatable.

7 years ago
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RE: Fall Days and Pies

If I had to pick just one, it would have to be key lime. Here’s to spending the night with pie on the brain.🥧

7 years ago
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RE: Pseudo Blockages, malabsorption and severe anemia...am I having fun yet?

Hi Linda, One such drug is Entyvio (Generic name vedolizumab). There is public funding available in Canada, in case you rely on a public provincial ...

7 years ago
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RE: Pseudo Blockages, malabsorption and severe anemia...am I having fun yet?

Linda, Crohn's can be quite difficult to diagnose. Your case is not uncommon in that regard. It can look like other bowel issues. Sometimes a doctor...

7 years ago
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RE: Paid Ostomy Study for Vidlet

Thank you Eric. Filled out the form and gave them your name and email address.

7 years ago
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RE: Applying for new jobs

Couldn't have put this better, Linda. Liza, I hope you have the chance to have a home business. A gradual buildup is a great way to go and pretty much...

7 years ago
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RE: Applying for new jobs

I hear ya, Liza. Gotta follow the money. Working from home has many blessings to it, so I encourage you to do like Jane Eyre did with her talents, sav...

7 years ago
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RE: Applying for new jobs

Liza, I would like to add the following: The question of disclosure exists out of fear, sometimes from bitter experience, that disclosure might be ...

7 years ago
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RE: Applying for new jobs

Liza, The question of disability disclosure is widely debated among those of us who have had to live with disabilities, and opinions vary on when or...

7 years ago
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RE: Pseudo Blockages, malabsorption and severe anemia...am I having fun yet?

Hi Linda, I think that no matter how you broach the subject of dissatisfaction with a medical practitioner, it's going to be unpleasant. If it were ...

7 years ago
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RE: Confused! Barbie Butt or J-pouch removal?

Hi PrarieGirl, and welcome. your anxiety is certainly understandable. I find it a bit surprising that your doctor wants to do All that at once, but ...

7 years ago
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RE: Forum Software Update Sept 11, 2019

Hi Eric, As you can see, my problem was solved with the most recent update. Thanks for giving me the heads-up on that fix.

7 years ago
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RE: How Often Does an Ostomy Bag Need to Be Emptied? (w/ video)

Hi Laurel, As far fetched as it might seem, I was just thinking this morning that I wish an ostomy nurse or even a doctor would get on this site and...

7 years ago
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RE: Advice Needed

Hi Cyrisse, I don't have much to offer here, but I do want to add one thing. Your stoma size will vary for a while. Sometimes it can take up to a ye...

7 years ago
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