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Rectum stump removal

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(@squeakyandliza)
Joined: 7 years ago
Posts: 1066
 

So good to see your toothless blue avatar on here!!  It is great that you and junior will be going home soon. Such good news!!  

Stay strong and don’t overdo things while you are healing. 😊

We are so glad to have you back here!!


-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


   
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LLNorth
(@llholiday)
Joined: 7 years ago
Posts: 608
 

@john68 Happy healing to you, John; i’m sure you are looking forward to getting home. Glad to know you are still misbehaving; it keeps people on their toes!


Colostomy 4/30/18.
I love the smell of coffee in the morning. It smells like .... victory.


   
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Tony H
(@tony-h)
Joined: 9 years ago
Posts: 508
 

@john68 that's great John you just made my day , hopefully you'll be out in the fields again soon , and don't be putting any of that red diesel in your car now 🤣

There was a video doing the rounds recently where the customs down here attempted to dip an electric car for red/green diesel, can't find it but that's government for ya

Be well and keep improving, 

I will be forever grateful for your support and advise .



   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 900
 

@john68 so good to hear and update john. Your a strong man. Your gonna heal.well and God's got you.🙏🙏



   
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VeganOstomy
(@veganostomy)
Admin
Joined: 12 years ago
Posts: 4703
 

@john68 John, it's so wonderful to hear from you! Junior sounds like a bit of a brat, but I'm sure they'll settle down once you're at home. 🤣


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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(@squeakyandliza)
Joined: 7 years ago
Posts: 1066
 

Hi John!!

Are you back home yet?  There is nothing better than sleeping in your own bed when you have been away for a while. And you have been away for a very long time. How are you feeling?  Just wanted you to know we are all thinking about you!!


-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


   
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Tigerlily
(@tigerlily)
Joined: 5 years ago
Posts: 567
 

Hi John,  I’m just getting caught up after travelling for a couple of weeks. I’m so glad to hear that you’re doing better. Junior may be misbehaving, but I know you’ll whip him into shape. Take good care, and thanks for letting us know how you’re doing.

 

 Laurie 


Just a semicolon


   
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 LK
(@dlkfiretruck)
Joined: 9 years ago
Posts: 1689
 

Hey there John... I'm glad to know you're still kicking life in the stoma! Keep up the good healing & do stay strong! 

We all care about you here! 


Linda


   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 900
 

How are you doing John? I have not been on for a while and was thinking of you. 



   
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(@valerie)
Joined: 8 years ago
Posts: 27
 

@dlkfiretruck I lived on the island of Kodiak, Alaska for three years and got to see the red salmon return every year to spawn. It was an amazing sight!


UC at age 18, 1981. Diagnosed at 20, proctocolectomy with permanent ileostomy at age 23, 1986.


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 12 years ago
Posts: 4703
 

Posted by: @valerie

I lived on the island of Kodiak, Alaska for three years

How were the day/night cycles? And were you able to see the Northern Lights often?


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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GoatHerder
(@goatherder)
Joined: 5 years ago
Posts: 162
 

@valerie Cool! I'm actually from there, used to live on Mission Road.


Retired engineer, now goatherd
Ostomate since 2015: Mid transverse after cancer
Our goats always live at GoatsLive.com


   
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(@valerie)
Joined: 8 years ago
Posts: 27
 

@goatherder That's crazy! We were there 2003-2006 with the Coast Guard. I was so sad to leave. Loved every minute!


UC at age 18, 1981. Diagnosed at 20, proctocolectomy with permanent ileostomy at age 23, 1986.


   
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(@valerie)
Joined: 8 years ago
Posts: 27
 

@veganostomy We did see the Northern Lights fairly often. We were south of mainland Alaska, so still had day/night cycles. In the summer the sun would set at midnight, rise around 4 a.m., in winter the sun would rise at 10 a.m. and set at 4 p.m. It rained alot. You just adapt. My kids played flashlight-mud soccer, lol. Having an ostomy there had its challenges- supply issues, hospitalization for blockage (thankful for small but good) hospital.


UC at age 18, 1981. Diagnosed at 20, proctocolectomy with permanent ileostomy at age 23, 1986.


   
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GoatHerder
(@goatherder)
Joined: 5 years ago
Posts: 162
 

@valerie It was a much different place back in the 60's. Our home was right on the shipping channel. Out the back door to the house and 10 steps to water. They have since built a road all the way to the fishing docks. I managed to visit the island in 1995, just a single day before the house I grew up in was demolished! I was thrilled to have been able to see it one more time.

Edit: I actually still do my banking with First National Bank Alaska right there in Kodiak, with the mounted Kodiak bear in the lobby! 😀 


Retired engineer, now goatherd
Ostomate since 2015: Mid transverse after cancer
Our goats always live at GoatsLive.com


   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
Topic starter  

Hey Folks, It’s been a wee while since I’ve been on. I have had good days and bad days and a lot of news to take on board. About 2 weeks ago I had an MRI, the results that I had a discussion about with a senior Consultant, She said that due to my considerable weight loss which has been 5 stone in total and the results of the scan she was not recommending Chemo. I had guessed this myself as I am having trouble walking at the moment. The Tumour has spread and has effected my Spine and Kidneys. Long story short I am Terminally ill . I asked what my time frame is and looking at 3/6 Months. I ain’t shocked as we can work out that our bodies are struggling. I am taking one day at a time and am sorting out different arrangements etc. I feel for my darling wife Lorraine and have told her life must go on and she will move forward and make a new life. Also want anyone reading these posts NOT to ignore the rectum stump!! 

Now I am going to do my best through the rest of this adventure and would like to express my gratitude for this site, Eric and all you lovely folks who I regard as friends ❤️ You’re amazing 😉.

 

 I will still keep you all informed of how I get on.

 

Your friend and comrade

John 68



ileostomy 31st August 1994 for Crohns


   
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Tigerlily
(@tigerlily)
Joined: 5 years ago
Posts: 567
 

@john68 John, first, I want to thank you for your courage in coming on this site to update us. It must have been so difficult for you to write this. Like everyone else who reads your post, I am gutted by your news. You are the most thoughtful, helpful, kind and caring person, and a backbone of this site. You don’t deserve this, and neither does Lorraine. Whatever we can do to help you both, in any way, please just ask. If you want us to send you stuff to make you laugh, we can do it. If you want to rant, we’ll listen. We can’t be with you in person, John, but I hope you can feel our presence just the same. You are special. ❤️

Laurie


Just a semicolon


   
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Tony H
(@tony-h)
Joined: 9 years ago
Posts: 508
 

Hey John and Lorraine , words cant express the gratitude I feel for yourself and Lorraine , you gave me the support and encouragement to get rid of my stump when I had buried my head in the sand and was ignoring the consequences of what could happen m

you will forever be in my family's thoughts and prayers , your friend down south 

Tony and Sheila in Cobh .



   
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LLNorth
(@llholiday)
Joined: 7 years ago
Posts: 608
 

John, God bless you and Lorraine. I am thankful for all the help and humor you have shared with us all; it means a great deal. Take good care of yourselves; we send our love and best thoughts. I hope that you will stay in touch as works best for you and understand that whatever you do will be the best. Linda LL


Colostomy 4/30/18.
I love the smell of coffee in the morning. It smells like .... victory.


   
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(@squeakyandliza)
Joined: 7 years ago
Posts: 1066
 

@john68 

😭😭😭💔💔💔

John, if there is anything you or Lorraine need, we are here for you. I can only imagine how devastating this news is for you both. 

May we all strive to live our lives the way you have, being a supportive and caring presence for all ostomates, past, present, and future. 

Let us know what we can do. Like Laurie said, if you want funny stories or heartfelt messages of how much you mean to all of us, we are here for you. 


-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


   
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