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My treatment decision.

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Chelly
(@chelly)
Joined: 3 years ago
Posts: 900
Topic starter  

I finally decided on SBRT radiation for this lung cancer after talking to both the thoracic surgeon and the radiology specialist twice getting all of ny questions answered. I have several reasons why I chose this in my case but they say it's as successful as removing the lung lobe. 

I had to go do a simulation the other day where they made a mold of my body and marked several areas on my body. They put me through a scanner to watch how the nodule moves around as I breathe. This will help them plan the actual treatment.  The planning will last for 2 weeks and I'll get the treatment later this month. It will only require one treatment and was told that the usual side effect will most likely be some fatigue. 

Then will get scanned again in 3 months to make sure it's shrinking or gone away. I have my fingers crossed. 



   
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VeganOstomy
(@veganostomy)
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Joined: 12 years ago
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Posted by: @chelly

I had to go do a simulation the other day where they made a mold of my body and marked several areas on my body. They put me through a scanner to watch how the nodule moves around as I breathe. This will help them plan the actual treatment. 

Wow, I didn't even know that was something they do. Thank you for sharing.

I do wish you all the best, and it sounds like the prep work and planning that's going into this will make it a success!


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 763
 

Hi Chelly I'm with Eric didn't know they could do all that . Medicine and surgeries are amazing nowadays . Wishing you the best with your procedure . I'm sure they will get you fixed up 


Proctectomy , Ileostomy , Ulcerative Colitis


   
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Tigerlily
(@tigerlily)
Joined: 5 years ago
Posts: 567
 

Amazing, Chelly! I’m with Eric and Robert - I didn’t know this was possible. Aren’t you glad you live in a time when these treatments are an option? Keeping my fingers crossed for you, and for a quick recovery.

 

Laurie


Just a semicolon


   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 900
Topic starter  

Thanks all of you. Yes, it's amazing. When i get the treatment next week I will let you all know how it was done here in this thread. Modern medicine is advancing. 



   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 900
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Hello, I did my treatment yesterday. The markings on  my body faded so they had to redo a bit of simulation to get me lined up. Once that was done the radiation machine moved around me and I did feel something slightly warm but nothing really big. 

I felt a little off afterwards . Saw the doctor. He told me i did well and we would do a cat scan in 3 months to see if its gone or shrinking. 

Im not feeling to good today though and a whole lot of fatigue so I've been in bed as usual..

I hope this finds everyone else well. 🙏 



   
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Et1
 Et1
(@et1)
Joined: 4 years ago
Posts: 16
 

Hi,

I hope you're feeling better now.  I'll keep my fingers crossed for your follow-up appointment and hope your treatment has worked for you 🤞

Good luck

x



   
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Tigerlily
(@tigerlily)
Joined: 5 years ago
Posts: 567
 

@chelly that is amazing! I’m not surprised that you feel tired; just listen to your body. It will tell you what you need to do. Fingers crossed for the CT scan results, Chelly. You deserve a break.

 

Laurie


Just a semicolon


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 12 years ago
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@chelly Glad that's done, and you can rest and relax (R&R!). Focus on what's in your control here and now, and when those three months are up, I'm sure you'll be given a reason to celebrate. 👍


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 900
Topic starter  

@veganostomy yes trying to.keep positive. I feel confident it will go away.



   
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 LK
(@dlkfiretruck)
Joined: 9 years ago
Posts: 1684
 

@chelly  ...Hi Chelly... I'm keeping up on things by the sidelines these days ... 

How many treatments of this type, do you need ??  Have you had other side affects? 

I'm really hoping and praying things all go the best way possible for you. You hang in there, you're a pretty tough lady even if you feel tired out!! Keep us in the loop please. 


Linda


   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 900
Topic starter  

@dlkfiretruck hello, it was stage 1 adenocarcinoma so it only required one treatment of SBRT radiation which is targeted. 

I have been absolutly fatigued to the max. Im in bed all day and night mostly. I get up and push myself when things need done. 

Ive noticed my hair is really thinning  badley. I barely have a bun anymore. This was not supposed to happen but im reading the radiation can scatter. 

Ive had horrible problems the past 2 days with my chemical sensitivity as well. Im hoping all this will come to pass. 

Believe it or not I was still smoking after but only like 1-2 smokes per day, until one day last week I had something in my mouth and pulled it out. It looked like a peice of milk chocolate  in the shape of a worm. I thought to myself ....im not going to smoke any longer. I threw away a half pack of smokes and about 10 lighters. I have not looked back. The first two days when I would think about one I'd go look up a Bible verse instead. 

I really have not thought about smoking for the past 4 days or so. Im really too sick feeling to smoke anyhow so that's a positive. 

Thanks for asking about it and sorry I did not have much good news but im hoping in the near future that I will have wonderful news. 

 

 

 



   
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 LK
(@dlkfiretruck)
Joined: 9 years ago
Posts: 1684
 

@chelly ... Thank you Chelly for answering my question.  Stage one!! It seems rare these days to hear of anything cancer related to be stage one, I feel like I should congratulate you, but its cancer so.... Just protect your lungs and your life in the future. We want you around for a long time yet! 

I think you made the right decision in tossing your smokes.  My Dad was a heavy smoker.  He also raced Motocross. He was a top rider & one day as we headed home from a race, he said he needed to buy more "fags",  but for some reason he drove right past the corner store.  I remember him saying "I'll get more tomorrow!"  He continued "forgetting" to pick them up everyday for months & we often heard him say, "I'll get more tomorrow" but, Dad never did buy another pack again. 

Maybe this thing you spit out was a blood clot from your radiation.  Have you called the office to ask as maybe it was something to be expected.  I don't think I'd be tempting a return to cancer if I was you.  You made the right decision in tossing them Chelly. I'm very proud of you,  it takes courage to be bold & choose a path of positive difference for your health, Congratulations! 

This fatigue thing you're going thru, is it a treatment side affect?  There's a lot of bugs going around right now in our area so stay away from people or wear a mask to protect yourself further in public. 

We've all had a nausea, puke thing going on & then about 5 days later 3 of us got hit with montezumas revenge!  Lots of hard gut bloating and then the runs! Even the dog has had it & I'm strangly very thankful for puppy pee pads right now!!! 

You sound like your keeping a secret & I'd love to hear what your possible wonderful news is when you're ready to share it. I hope you have a great non-smoking day today. Stay strong Chelly! 


Linda


   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 900
Topic starter  

@dlkfiretruck your welcome and the reason this was caught early is these are lungs nodules they have been watching for many years doing CT scans  yearly.  One grew big enough to biopsy. I still have s bunch more nodules im my lungs but I just have to pray about them. 

Yes they told me I would get fatigue. Im still fatigued! I have to take in consideration I just had Surgery in December as well. 

There's no secret im just hoping to give good news that the cancer is gone. 

 

 



   
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VeganOstomy
(@veganostomy)
Admin
Joined: 12 years ago
Posts: 4703
 

@chelly It's never too late to quit smoking, and I'm glad you've been making progress! Only good things can come from quitting (smoking) 🤗


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 763
 

Hi Chelly glad to hear they caught your cancer early . And their getting it under control . Cancer sucks ! Lost a brother to lung cancer . Relax and get rest . I quit smoking April 15th 2007 one of the best things I ever did . You hang in there sounds like you have the right attitude  . 

🙏


Proctectomy , Ileostomy , Ulcerative Colitis


   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 900
Topic starter  

Thank you both Eric and Robert for the encouragement to continue not smoking.  It's really funny because its not bothering me really. Im very surprised it's going easy.



   
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 LK
(@dlkfiretruck)
Joined: 9 years ago
Posts: 1684
 

@chelly  ... How are you today??  I woke up with you on my brain & had to drop a note your way. Stay strong and I think you'll accomplish this goal of quitting.

Fatigue is so different from "I'm  tired" the type of tired where you nap & wake up feeling well & strong again, that doesn't happen with medically induced fatigue. I'm always fatigued by anemia too.  I just had an iron infusion & I still can't get off the bed without feeling so drained like I've already accomplished my day. I'm not accomplishing many days lately! 

We all just went thru that freaky norovirus in this house. Thank you small school children.  It wiped out 3/4 of K to grade 4 classes here. Stay away from those rubbing there tummy or saying I feel like I might puke! Trust me when I say you "may see your toenails or even turn inside out with dry heaves after the toenails"... it is a  bad one, and yes, we got our flu shots.. This started Feb.23 & we are now back to normal, as normal is anyways.  Hand sanitizer apparently won't kill it, plenty of hot soapy water required. Bed rest. Please don't share it. 

I need to get myself going,  as I need to get my Grand from school today. But Chelly, You ARE are so STRONG!! Don't be discouraged by needing extra rest. Your bodies going thru a lot right now & it needs your cooperation to get there. 

 


Linda


   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 900
Topic starter  

@dlkfiretruck 

Hello Linda,

Thank you for thinking of me and checking in. I'm so sorry to hear your not feeling well . I have not been feeling to well either. I'm still not smoking. It has not really bothered me too much. Im still here waiting on the benefits. I have not felt better yet from quitting. It won't make me go back though. 

I think I feel worse after the radiation. I know I needed it for the cancer but its really set me back health wise. 

What you are going through sounds horrible as well. I hope you feel better soon. We just gave to rest and try to heal and push through these rough spots. 

 



   
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