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Dona
Dona
@dona
Topics: 5 / Replies: 827
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RE: Newsletter platform will be changing - "testers" wanted :)

I am also willing to help where I can. TO EVERYONE: Lets also not forget that there is another way to help Eric and VO. MAKE A DONATION TO THIS ...

8 years ago
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RE: Ileostomy-loop of intestine has protuded through stoma opening and is right on top of the stoma mouth. Causing difficulties.

P.S. Take notes and if you can pictures. Also, prepare a list of questions for your doctor ahead of time. And write down her/his answers. I have foun...

8 years ago
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RE: Ileostomy-loop of intestine has protuded through stoma opening and is right on top of the stoma mouth. Causing difficulties.

Hi again Katy, I am happy to hear that the info was helpful. It does seem like that condition could cause other problems depending on if bacteria or w...

8 years ago
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RE: Ileostomy-loop of intestine has protuded through stoma opening and is right on top of the stoma mouth. Causing difficulties.

Hi Kathleen, It sounds like your husband may have a parastomal hernia. You should search for this topic if you do another google search. This is a co...

8 years ago
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RE: How tight or not should the wafer opening be?

Hi Sam, I do like bluesgal. I leave about a 1/8" gap and use the stoma powder . Stoma needs some wiggle room, but you have to protect as much of the p...

8 years ago
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RE: New to forums

Great to 'meet' you Valerie and welcome to the forum. Its wonderful to have another voice of experience here. I think John68 ( just above my comment)...

8 years ago
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RE: My Ostomy Travel Kit - March 2015 Edition! (w/ video)

Hello Bryan, As Linda said, Ziplock bags are great. I use the sandwich size to make change 'kits'. One of everything I need for a change ( bag,wafer...

8 years ago
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RE: Stoma Size Changing

John, Yes my stoma just is sometimes flush with my body. Doesn't seem to be the result of anything I can figure out. It started about 6 months or so (...

8 years ago
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RE: Where Did I Go? (Sept 2018 Update)

P.S. I just got the Shingex vaccine too, no problems. And I do keep up with all my other vaccines too. So thats not much help I guess. UC is also an a...

8 years ago
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RE: Where Did I Go? (Sept 2018 Update)

Eric, You have my ( and I know) all of our support. You have done so much for this community that it is impossible to ever thank you enough. Take all ...

8 years ago
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RE: Stoma Size Changing

Hi, That happens to me too, although I have only had the stoma for 3 years. It would be quite surprising after that long! As long as it works, right?

8 years ago
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RE: M.R.I scan

Love the name! good luck.

8 years ago
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RE: Relatively new ileostomate

I have had very good luck finding both cloths I like and shoes ( I hate shoes) from Zappos. The free shipping ( both ways) is a wonderful feature..and...

8 years ago
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RE: Relatively new ileostomate

Helo Barbara, First, I hope you are feeling better and that there have been no further signs of C-Diff. What a nightmare! About clothes. Although my s...

8 years ago
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RE: M.R.I scan

Great to learn you have no signs of Crohn's. I hope the new pills help!

8 years ago
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RE: Forum Software update Sept 6, 2018

Thanks Eric...this should REALLY help.

8 years ago
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8 years ago
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RE: Small victories

This is SO true! For me it was getting back in the ocean for the first time after my surgery. WOW. ( Also getting a full night's sleep was right up th...

8 years ago
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RE: In case of a natural disaster???

Kind of in tandem with this discussion is this: Does anyone know of a reliable ( and easy) place to donate supplies when we get ahead in our supplie...

8 years ago
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RE: Hello, new ileostomy, lots of questions

Hi again Zach, I just reread all your posts and I just wanted to ask ( not that I need to know... but you do) what was the underlying case of the b...

8 years ago
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