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I cannot find an Ostomy nurse

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(@ssheldo)
Joined: 4 years ago
Posts: 2
Topic starter  

The nurse at the hospital who showed me how to use my colostomy when I got it does not know of anyone I can contact for help or with questions.  (seems strange, doesn't it?)  Even the surgeon who put it in doesn't know of anyone.  I have had constant embarrassing problems over the past 7 months and have tried everything.  The appliance won't stick!

I am becoming very depressed and have considered a reversal but the surgeon says he'll try but it might not work.  I have several other health problems and am in fragile health.

Any suggestions will be greatly appreciated.



   
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VeganOstomy
(@veganostomy)
Admin
Joined: 12 years ago
Posts: 4701
 

I'm sorry that you're going through that. 

My first suggestion would be to contact your local ostomy association to see if they have a list of stoma nurses in your area. 

Have you considered a telenurse? They can often do video calls if none are available in your area. 


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Alida
(@alida)
Joined: 5 years ago
Posts: 29
 

I had my surgery in a smaller hospital that didn't have its own ostomy department, so I called a big hospital and asked for help; they set me up with one of their nurses, even though I wasn't one of their patients originally.  I sure hope you find someone, because my nurse was fantastic and a real help to me.


With Squiggy since 3/31/21


   
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 LK
(@dlkfiretruck)
Joined: 9 years ago
Posts: 1684
 

ssheldo ... Welcome to VO !  For several reasons I'm going to ask you to tell us what products your using & what your process is for changing your pouch, this includes if you shower with a pouch on or not & what products you use also & soaps / shampoo you use.

Being a newbie I didn't know anything about what products were avilable to me at the time & I'm so thankful that I accidently found Erics VO when I did,  my only regret was that it was several years later.  Better late then never! lol! 

I hope your up to sharing this info. This is a place where we do tell what has worked for us & then you get to weed thru what works best for you from suggestions given.  Everybody's skin is different  & it may not be a quick fix.

  Here is where I learned I could live life outside the home as well as doing the things I've always enjoyed verses feeling locked in the house due to fear & anxiety caused by leaks & an "outrageously noisey stoma" caused by my unsolved issues. I didn't have an ostomy nurse either & figured a lot out on my own through trial  & error.

Well do our best to help you thru this difficult time.

Linda


Linda


   
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Tigerlily
(@tigerlily)
Joined: 5 years ago
Posts: 563
 

Try using a hair dryer on the flange just before you put it on your skin. Many of us have found that it sticks better that way. Take the protective film off the flange, and warm it up with a hair dryer. Just don’t heat it up too much - you don’t want to cause a burn when you apply it to your skin. Also, sometimes a barrier skin wipe is helpful in getting off any residue left from the previous flange, as well as soap. Let us know if this helps.

 

Laurie


Just a semicolon


   
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LLNorth
(@llholiday)
Joined: 7 years ago
Posts: 608
 

The ostomy nurse taught me to put my hand over the adhesive for a minute after I put it on, to warm it up so that it sticks better. While I am doing that I press a little around the outer edge of where the barrier ring is (but not on top of the barrier ring itself) to give that area a little encouragement, also.


Colostomy 4/30/18.
I love the smell of coffee in the morning. It smells like .... victory.


   
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 lg
(@grw)
Joined: 7 years ago
Posts: 39
 

I put a heating pad on top and hold firmly for 5 min or so after applying new appliance.



   
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(@yvan-charbonneau)
Joined: 4 years ago
Posts: 39
 
Posted by: @ssheldo

The nurse at the hospital who showed me how to use my colostomy when I got it does not know of anyone I can contact for help or with questions.  (seems strange, doesn't it?)  Even the surgeon who put it in doesn't know of anyone.  I have had constant embarrassing problems over the past 7 months and have tried everything.  The appliance won't stick!

I am becoming very depressed and have considered a reversal but the surgeon says he'll try but it might not work.  I have several other health problems and am in fragile health.

Any suggestions will be greatly appreciated.

What province do you live in ?



   
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 RMW
(@rmw)
Joined: 3 years ago
Posts: 2
 

This site link may help... wocn.org   ...  It is a link to the wound and ostomy care nurse organization.  There is a link that leads to a search page to assist in locating wound care and ostomy nurses near your location.

https://www.wocn.org/learning-center/patient-resources/find-a-nurse/     

 

 



   
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