Community Forums

Notifications
Clear all

For the Shower

85 Posts
11 Users
53 Reactions
27.1 K Views
Jattzl
(@jattzl)
Joined: 9 years ago
Posts: 124
 
Posted by: Dona

Yes! Just take ALL that stuff off and go into the shower. It feels wonderful. You probably time your changes to when the stoma is least active, so not much or anything might come out. If it does, so what? Just wash it away ( after all, that pluming connects to the toilet outflow in a couple of feet anyway). Its a great chance to clean and inspect that area. See how the skin is doing. Mine really loves a real shower.

Just keep a dry wash rag nearby to hold over your stoma  for when you get out ( just in case). Makes drying your body a challenge, but so worth it.

Good luck... go for it.

Marcie, as Dona posted, I needed to get used to the fact that if my stoma is active it's not a big deal!  I do spray the shower floor with disinfecting cleanser after my shower and then rinse it off.  It is SOOOO worth it.  And soon it won't bother you if there is some activity during the shower.


54 years Type 1 Diabetes, insulin pump, CGM, neurological complications, retinopathy, and autoimmune CIDP. Nerve damage led to ileostomy in 1/2015.


   
Robert reacted
ReplyQuote
Jattzl
(@jattzl)
Joined: 9 years ago
Posts: 124
 
Posted by: Marcie

Yes!  I love baths, but seeing my stupid pouch bobbing up and around is a bit discusting! And that is when the dumb filter starts to work and the pouch starts to fill up--( like hang in there baby) But I do love long baths.. But as the winter is close, the showers will be well in need..

Kind of a free feeling of once was huh?  At least the closest to it anyway.. M.

I understand, Marcie.  I felt the same about my showers.  I was so sad and frustrated.  All the contraptions of trying to shower with the bag and none of them worked for me.  I always ended up changing the bag.  I had the same feeling that it was "disgusting".  With time and practice I figured out this process and have my relaxing shower again.  It is a free feeling or like you said the closest thing to it for us.  I wish I had something to help you with baths but I'm still stumped on that one.  Sadly, I've given them up.


54 years Type 1 Diabetes, insulin pump, CGM, neurological complications, retinopathy, and autoimmune CIDP. Nerve damage led to ileostomy in 1/2015.


   
ReplyQuote
Marcie
(@shulmjs)
Joined: 9 years ago
Posts: 1510
 

Oh, I still take the baths- But when that pouch starts in I just pour in some bubbles and turn on the jets and I cant see that stupid pouch! So I get to enjoy the bath.. :-)


2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


   
Jattzl reacted
ReplyQuote
Marcie
(@shulmjs)
Joined: 9 years ago
Posts: 1510
 

Oh, I have to take a shower when I have a nice leak at night.. and the pouch is off! But the shower is short lived.. Just throw on my shower cap and clean up and give Nellie a new dress, change the bed and climb back in.. then it is off to infusion in the morning.  I never say the word S - - - -, Just do it, OR I tell Nellie that I have had just about enough of you!! Straighten up and fly right!! And it is all over and I am asleep......... I love to sleep........... So there is a reward at the end of that mid night madness. :-) speaking of???????? 


2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


   
Jattzl reacted
ReplyQuote
Barbara
(@msbjlee)
Joined: 9 years ago
Posts: 452
 

I too had to burst the  "disgusting" barrier. But Stella took me to task and taught me that is just part of being me and that those disgusting parts of always been there just in a slightly different form. That was probably the hardest barrier I had to break and now showers great, no bag and if it leaks it leaks and you just fix it and like you said have a good disinfecting " spoken by someone getting over c-diff and knows about how to spread it.) And then you move on.


Severe rheumatoid arthritis, spondoloarthropy, polymyalgia rhumatica, type 1 diabetic, IBS and finally, emergency diverticulitis surgery, colon removed Stella born Jan. 27, 2017. 6 bouts of c-diff, failed fecal transplant. Complete colonectomy and ileostomy July 30, 2018. ENOUGH!!


   
Jattzl reacted
ReplyQuote
(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Vid I do photos I don,t


ileostomy 31st August 1994 for Crohns


   
ReplyQuote
Jattzl
(@jattzl)
Joined: 9 years ago
Posts: 124
 

It's reassuring to hear other people who go through the experience.  I felt guilty at first for being disgusted.  I think we all have been through a lot in our lives and because of that have learned to deal and accept and move on.  Thank goodness we can enjoy our showers again!  


54 years Type 1 Diabetes, insulin pump, CGM, neurological complications, retinopathy, and autoimmune CIDP. Nerve damage led to ileostomy in 1/2015.


   
Robert and Dona reacted
ReplyQuote
Dona
 Dona
(@dona)
Joined: 9 years ago
Posts: 832
 

And, at least for me, my showers are much less messy now than when I had the runs non stop.

Or the combat showers!   


Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
Jattzl reacted
ReplyQuote
Jattzl
(@jattzl)
Joined: 9 years ago
Posts: 124
 
Posted by: Dona

And, at least for me, my showers are much less messy now than when I had the runs non stop.

Or the combat showers!   

Me too, Dona!! Must less messy now!  And less of the DREADED combat showers thank goodness!


54 years Type 1 Diabetes, insulin pump, CGM, neurological complications, retinopathy, and autoimmune CIDP. Nerve damage led to ileostomy in 1/2015.


   
ReplyQuote
FelicityG
(@felicityg)
Joined: 9 years ago
Posts: 257
 

Those little cap ostomy covers I believe are typically used for what they call a continent ostomy. Looked into that because I was hoping I could get one. Crohns is not a good diagnosis for those due to the way it attacks the bowels. 

Hollister makes 2 piece ones that use the regular flanges. Considered them, might still get some for times when I don't want Oscar's Balloon bobbling around 🎈🛀


Crohn's Colitis, Ilieostomy, Proctocolectomy November 2017


   
ReplyQuote
Robert
(@njewell1)
Joined: 9 years ago
Posts: 765
 

John now that is funny so you are a Robert Jr.  You are the first Robert Jr. I have ever even heard of . Ok I think I get sparks but digger drivers I'm guessing (tractor operators) but joiners ye have me there Lad ? Sounds like you better be careful around family one wrong move and your in the Pokey !!!! I have several friends and a nephew who are Peelers too Lol . My daughter is even in Law Enforcement she is a probation officer . It truly is a small world !


Proctectomy , Ileostomy , Ulcerative Colitis


   
john68 reacted
ReplyQuote
Robert
(@njewell1)
Joined: 9 years ago
Posts: 765
 

Marcie I take a shower twice a day with barrier and bag and have never had water get underneath my barrier . But now that I have tried a shower with it all off that is how I'll be doing it on change days .


Proctectomy , Ileostomy , Ulcerative Colitis


   
ReplyQuote
Robert
(@njewell1)
Joined: 9 years ago
Posts: 765
 

Oh ya and Marcie I do use a shower cap to help keep the bag dry


Proctectomy , Ileostomy , Ulcerative Colitis


   
ReplyQuote
(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Evenin Robert, now yer getting the better of me "pokey" it take it means jail. Digger you will know better as Excavator I think, and joiner is a Carpenter (wood work) The world is truly a small place now! I remember my Dads uncle who lived in Philadelphia when he called home it was a call from the operator first to put him through. how times have changed. Back to the Roberts every one called my Dad Bobby. And the uncle in Philly was Bob!!


ileostomy 31st August 1994 for Crohns


   
Robert reacted
ReplyQuote
Robert
(@njewell1)
Joined: 9 years ago
Posts: 765
 

Evenin John . No flies on you Haha yes pokey is jail thought maybe I could get one over on ye . Ok excavator makes sense and joiner also makes sense for carpenter . Keep them coming there mate . Yes phones have changed a lot I also remember party lines and 5 digit numbers and phone booths and rotary phones kids now a days do know what those are . Funny your dad was Bobby ( peeler in England ha) everybody actually calls me Bob or Bobby nobody calls me Robert ...


Proctectomy , Ileostomy , Ulcerative Colitis


   
john68 reacted
ReplyQuote
Barbara
(@msbjlee)
Joined: 9 years ago
Posts: 452
 

As to the "Bob" thing... my father-in-law was a Robert and his oldest son is robert too. Dad was Bob and brother was Rob.


Severe rheumatoid arthritis, spondoloarthropy, polymyalgia rhumatica, type 1 diabetic, IBS and finally, emergency diverticulitis surgery, colon removed Stella born Jan. 27, 2017. 6 bouts of c-diff, failed fecal transplant. Complete colonectomy and ileostomy July 30, 2018. ENOUGH!!


   
john68 and Robert reacted
ReplyQuote
Marcie
(@shulmjs)
Joined: 9 years ago
Posts: 1510
 

Last name bobbit ? haha


2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


   
ReplyQuote
Marcie
(@shulmjs)
Joined: 9 years ago
Posts: 1510
 

Robert, I remember the party lines, Mom would wack me one when she found me hearing all the gosip.. the she would ask me what I heard.. and the round dials?????? black phones-then the princess phones so cute That was a discount to have a party line-- if u wanted to make a call-u had to ask them to hang up-- When I was a teenager, I thought that I would never get a date because of this.. Then if one did come to the door, my father 6'7" would great them-- If they had "the look" they were sent home.  

hey this should be on the lounge.. How do I get there again? help..


2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


   
Robert reacted
ReplyQuote
Marcie
(@shulmjs)
Joined: 9 years ago
Posts: 1510
 

Robert, a ladies shower cap? for our hair? or what they are talking about?/ your a tricky guy....


2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


   
Robert reacted
ReplyQuote
Robert
(@njewell1)
Joined: 9 years ago
Posts: 765
 

Like Marcie said we should be on the lounge . But Barbara that is funny .


Proctectomy , Ileostomy , Ulcerative Colitis


   
ReplyQuote
Page 3 / 5