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Cymed ostomy product changes  

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Momof3boys
(@momof3boys)
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Posts: 23
September 9, 2018 4:23 pm  

Hey Jazz99
Yes Nick Gitzai is the owner. I assumed his name was Nicholas but it is Nick. Nina, I believe Is tired of fielding our emails and not having anyone up in higher management hear her. No matter who we send the email to if it regards a complaint it will be bumped to her without upper management seeing it at all. Snail Mail is the only way to ensure it makes it to the desk of the owner Nick.
I also Received a few boxes that while the material wasn’t different, either the filter or the leak along the seam had been improved. The adhesive that attaches the 2 piece bags to the wafer is still so weak that I will have an odor leak regardless because of the adhesive pulling away from the barrier. I have been very afraid to reorder from Edgepark for the exact reason you stated of getting the older terrible bags.

When I presented the idea to Nina about meeting with the owner she didn’t encourage or discourage she just said, “you have his information call and see if you can meet with him”
From our previous conversations I was hoping she would seem a little more encouraging about the prospect of me meeting with them. I havent Reached out just yet but plan to by weeks end.

I feel for you sis, this whole thing just makes life harder.


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Mermaidspla2
(@mermaidspla2)
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Posts: 9
September 9, 2018 4:49 pm  

Urostomy -  Cymed  we all know is not the quality it was.  After trying other products I did read in this forum about the Coloplast Sensura Mio one-piece.  My husband says it feels slightly longer however the drain is much softer and easier to empty.  I know most of the people in here are ostomy users so I can't help many of you.  The Sensura Mio is now going on 3 days of wear and has been very comfortable, has not leaked or loosened yet.  By following the correct cleaning preparation (which was the same he had been using with the Cymed as directed by a nurse years ago) we did not have to use the additional safety outside ring that we were supplied for free.  He does not care for the little paper slip that is used to grab hold of to remove the bag but he says it is not a real bother just seems unnecessary.  We can breathe a little easier as it was nip and tuck on running out of his old Cymed bags to finding something else. The coloplast person I spoke to was so happy to share tips, suggestions etc that I was blown away by her.  She even offered to send some things we did not need to use.  Bless her heart.  I could tell she really cared about helping me, help hubby, who was kind of trying to ignor what was going to happenvery soon. Finally he accepted he had to try something and he is feeling much better now that he has chosen a product that fits his needs comfortably.


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jazz99
(@jazz99)
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Posts: 6
September 9, 2018 5:24 pm  

@Momof3boys, i'm going to call UUOA (www.ostomy.org/advocacy/) tomorrow and ask what they know about distribution of European ostomy products in the states, to see if there are systemic barriers that might be addressed... Will also see if the Cymed debacle is on their radar, although that may not be a broad enough issue for their agenda... Don't we all have better things to do than this? :-| 

 


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Momof3boys
(@momof3boys)
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Posts: 23
September 9, 2018 5:27 pm  

Yes @Jazz99 yes we have SO MANY better things to do!!! 

Thank you for your support, please keep me posted

 


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dogtalkerer
(@dogtalkerer)
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Posts: 52
September 11, 2018 2:38 pm  

really guys, what ostomy products are made here to begin with? coloplast is not, doesn't look like covatec is either

back in spring I posted on UOAA about  cymed's problems,  no one replied, few to none use cymed on that site.   some replies were, cymed difficult to put on.

i'd like to see cymed go under and coloplast purchase the rights to use the microskin flange.

this snail mail option is 1980's ish. they will know soon enough when re-orders for their products drop substantially.  I've tried to lead horses to water before.......... 


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dogtalkerer
(@dogtalkerer)
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Posts: 52
September 18, 2018 11:35 am  

here's a list of ostomy manufacturers I found in a  bloombergs investment article.

The major manufacturers covered in this report
Coloplast
ConvaTec
Hollister
B. Braun
Medline Industries
Securi-T USA
Dansac
Welland Medical
Flexicare Medical
Marlen Manufacturing & Development
Peak Medical
Cymed

I recall talking to marlen years ago, they seemed like I small company that didn't produce what I was use to using, velcro closures. i looked at a couple more, they appear to be pretty small based on their web sites and what they offered.

If salts is not a very big company, they may not be able to make enough product to have suppliers in US. 


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