Perianal disease: A timeline PART 4 (updated Jan, 2022)

Perianal Disease timeline part 4 cover

This is the last entry in a four-part series on my perianal disease timeline, including the healing after my proctectomy.

This post will be updated as I continue to progress with my healing.

Part 3 can be found HERE.

FINAL UPDATE Jan, 2022 (8 years post op):

Over the last several years, my wound has remained relatively trouble free.

I’m not able to sit on a bike, as it’s quite uncomfortable, but day-to-day life is pretty normal.

UPDATE Nov 7, 2015 (2 years post op): 

Over the summer, my wound has slowly healed, although at some point, I would feel burning and itching down there (heat and humidity, perhaps?).  

As of Nov, 2015, my wound is pretty much healed, and I don’t use any gauze to collect drainage. On occasion, I do still have bleeding, as if the wound tears, but it’s manageable, and this will likely be as good as it gets.

UPDATE March 11, 2015: 

A lot has happened over the past several months, and it hasn’t been positive!

I had that MRI on Dec 7th, 2014, which you can read about HERE, but the only good news was that there’s no fistula or anything like that going on.

Unfortunately, a new wound opened up in December, and it’s been sticking around ever since! I’m waiting for a referral to see another surgeon, and hope that something can be done to close this up once and for all.  I’ll update again if any significant changes happen.

UPDATE Nov 20, 2014: 

I went in to see another doctor, since the surgeon who performed my proctectomy is no longer practicing.  

I went because I’ve been having pains around my rectal area, near the site where my abscesses and fistulas had really created a mess.

She suggested that I get an MRI done to see what’s going and said there could be many reasons why I’m having pain, but since my wound still isn’t healed, it may be related to the problems I’m having.  

I’ll be waiting several weeks to months in order to get in for the test, so until then… I wait.

UPDATE Sept 22, 2014:

There hasn’t been any significant changes in regard to healing. The wound still hasn’t closed up, and I still keep a gauze pad on it to keep the draining from staining my underwear.

I don’t expect any more healing at this point, and I don’t have immediate plans to get more done to the wound.

I’ll likely wait until mid-winter/spring to make a decision.

UPDATE MAY 28, 2014:

I saw my surgeon again today.

My hope that the anal wound would be closed up before this appointment has fallen short, and I have to either give it more time, or accept that it’ll never fully close up, which means I’ll always have a gauze wedged between my butt cheeks.

It was explained that because I had severe perianal disease due to Crohn’s that this is normal, however, if I choose to do something more about it, I do have another option.

If I wanted to, I could go back to have the wound scraped with the hopes that it’ll cause new tissue to form and hopefully heal up.

Of course, it could do nothing, and I’m back to where I am now, so I’ll be giving it more time before a decision is made.

In the meantime, she discovered that I still have a very small tunnel going into the wound and some silver nitrate was applied to it.

She also told me that she won’t be practicing surgery come July and has accepted a new position in another hospital. It makes me sad that I’ll likely never see her again. She changed my life forever, and I’m so grateful to have had her as my surgeon. I do wish her the best of luck.

As promised, here is the healing timeline I’ve put together. I hope that it offers some educational value and shows just how successful this surgery can be in fixing the damage caused by severe perianal disease.


WARNING: GRAPHIC CONTENT  Perianal healing timeline 2012_2015 (UPDATED Nov 7, 2015)

(Please note that the color quality may be low when viewed through the browser. Download the full PDF for better quality).

Question: Are you considering this surgery? Have you had it done already? What were your experiences?

11 thoughts on “Perianal disease: A timeline PART 4 (updated Jan, 2022)”

  1. Hi- Any further updates? Did the wound ever fully heal and stop bleeding? I’m deciding between this and jpouch surgery, but leaning heavily towards permanent ostomy. I’ve had an ileostomy for about 6 months now following an emergency colectomy for UC. Still dealing with bad inflammation in my rectal stump despite suppository treatment. Also, your website and videos have been so helpful for these first six months. Thank you so much for sharing your experience!

    • Thanks for asking Jennilyn. It actually took several more years to go from 99% to 100% healed, which didn’t affect my quality of life at all.

      Keep in mind that the early complications I had with my wound vac did throw my healing up in the air, and many (most?) heal much sooner than that.

      Good luck with everything! It’s great that you have a choice with which way you can go with surgery. I hope it works out for you no matter what you decide.


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