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Another Proctectomy Thread

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Chelly
(@chelly)
Joined: 3 years ago
Posts: 621
 

@tony-h great news! I bought cushions but none were comfy so I mostly kind of sat a little sideways for a while.


   
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Tony H
(@tony-h)
Joined: 8 years ago
Posts: 410
Topic starter  

Well home at last after a busy day , will check out some of the cushion recommendations, 

I had a Roho cushion in the hospital but they foiled my plans to "borrow it" so I insisted that they order one for me ,they paid and I'll have it in a week, 

I'll try out John and Laurie's recommendations and see how I get on 

So to the procedure , it was all done Laparoscopy, two incisions in my lower abdomen and removed the stump and rear end through my rear end and sewed it up from the incide with disposable sutures ,

Back to see the surgeon for follow up in two weeks , so full of painkillers and had half a pizza to build myself up again and all good in the world .


   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 621
 

@tony-h so good to hear it all went well and your home. Im.glad you got that taken out. I can't understand why on earth they leave them.behind with an end ileostomy.


   
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Tigerlily
(@tigerlily)
Joined: 5 years ago
Posts: 469
 

@chelly yeah, I sat sideways for awhile too. That’s what I meant by the “Cleopatra drape”. The things we have to do to adapt sometimes!

 

Laurie

Just a semicolon


   
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Tigerlily
(@tigerlily)
Joined: 5 years ago
Posts: 469
 

@tony-h glad you’re home now. How interesting that the procedure is done laparoscopically. That will be so much better for you - not as hard on your body. John is right about doughnut cushions. My surgeon told me to avoid them; she said they don’t give the support you need. And they don’t feel very comfortable either. Now that you’re home, don’t try to push yourself to recover in a hurry. Your body needs rest in order to heal. Afternoon naps are a good thing.😴

 

Laurie

Just a semicolon


   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 621
 

Yep


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 11 years ago
Posts: 4471
 

Posted by: @tony-h

anyone with any good cushion recommendations would be appreciated, the one I'm using g in the hospital is about €400 

I was told not to use any “doughnut” pillows to sit on, as it puts too much pressure on your butthole.

For my car, I ended up getting a gel seat cover that looks like a grid of small squares. The idea is to offer support without having it feel like you're sitting on a rock.

This $400 cushion... what exactly justifies the cost? 😮 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Tony H
(@tony-h)
Joined: 8 years ago
Posts: 410
Topic starter  

@veganostomy I can't  imagine but my health service has kindly ordered one for me 🤑


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 11 years ago
Posts: 4471
 

Posted by: @tony-h

I can't  imagine but my health service has kindly ordered one for me 🤑

We'll need a review once you've had a chance to use it 🤣 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Tony H
(@tony-h)
Joined: 8 years ago
Posts: 410
Topic starter  

got the cushion today ( a loaner from the hospital ) and to be honest it helps a lot , got another one coming on monday , a gel one and much cheaper so ill test them both , feeling a lot better , very little drainage from my rear end , almost dry and pain is easing off , 

will be interesting to hear what the surgeon has to say on tuesday , anyway just over two weeks post op and doing well .


   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 621
 

So glad to hear he cushion is making you feel.better. you sound like your healing up pretty well. 


   
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(@john68)
In Memorandum
Joined: 8 years ago
Posts: 2059
 

Hey Tony great to hear of yer progress. Funnily enough watching Tv 📺 last night seen an advert from JML for a gel cushion called Soft sitter and thought of you. Selling for £14.99. Keep up the good work 👍

ileostomy 31st August 1994 for Crohns


   
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Tony H
(@tony-h)
Joined: 8 years ago
Posts: 410
Topic starter  

had an appointment with the surgeon and all went well , very happy with my wound care , almost completely dry , 

and the best news is that the biopsy results came back with no nasties , just some inflammation , pain is slowly getting better and will cut back on the pain killers over the next couple of weeks , so all looking good, 

hey John hope you are holding up , good wishes and thoughts and thanks from Cobh 


   
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Tigerlily
(@tigerlily)
Joined: 5 years ago
Posts: 469
 

@tony-h great news, Tony. Glad to hear that your incision is healing and that you’re feeling better every day. I will be curious too, to hear about your cushion. Looking forward to the review. Take good care.

 

Laurie

Just a semicolon


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 11 years ago
Posts: 4471
 

Great news! Don't leave us hanging @tony-h, what's this million dollar hospital loaner pillow all about? 😂

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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 LK
(@dlkfiretruck)
Joined: 8 years ago
Posts: 1602
 

@tony-h  ... oh Tony, that is really GREAT  news!!  I'm waiting on an appointment with a GI Specialist now. So...lol, yes, please give a review on the differences between cushions. 

I'm very happy you have had good results back!! Stay Healthy! 

Linda


   
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Tony H
(@tony-h)
Joined: 8 years ago
Posts: 410
Topic starter  

well im still using the expensive cushion , and it really comfortable, 

https://photos.app.goo.gl/yQr8LhxtZjnemNVK9  

some photos and a little vid ,

would I buy it , no not for that money but it really takes all the pressure off the sore area ,

the hospital provided another cushion  but its like sitting on a brick , in the meantime they will have to wait until my tush is better before the hospital gets their fancy cushion back

1717767854-zip.jpg

   
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Chelly
(@chelly)
Joined: 3 years ago
Posts: 621
 

Oooo, Tony, that cushion looks so comfy. Maybe they will let you keep it? 


   
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Tigerlily
(@tigerlily)
Joined: 5 years ago
Posts: 469
 

@tony-h that looks very much like the Roho cushion, which didn’t work for me at all. Glad that it works for you though. And glad that you’re getting better each day.

 

Laurie

Just a semicolon


   
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Tony H
(@tony-h)
Joined: 8 years ago
Posts: 410
Topic starter  

@tigerlily that's the Roho cushion and it works really well for me , I'm not giving it back for at least another month ,

To be honest I'm doing really with the pain meds now  down from 250mg of palaxia (similar to oxy ) to 50 mg a day now ,

Will stop that in a week as I don't want to get too fond of it .


   
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