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Healing the Skin around the Stoma - OSTOMY TIPS (w/ Video)  

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john68
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July 20, 2019 11:56 am  

I have been trying out the tip posted by Suzanne About using the Milk of Magnesium. I have a sore spot of skin where I had a granuloma removed. It was healing but slowly. I followed what Suzanne said and after 2 treatments the difference is remarkable. Many many thanks for sharing this tip. 😀👍

ileostomy 31st August 1994 for Crohns


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sjlovestosing
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July 20, 2019 4:51 pm  

Wow John, it sounds like Suzanne had the fix you needed. I am glad things worked out for you!

What a blessing that she found this site.

Stella


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john68
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July 21, 2019 1:08 pm  

To explain a little more, A granuloma is on the side of the stoma. They are very weepy and eroded my wafer each time. I had the little pests removed a few months back with great success. The erosion never lead to a leak but it comprised the seal. That coupled with a little scar left from the removal was proving slow to heal. It’s easy to apply and adding a little stoma powder provides an excellent crust. Once again impressed and proves how valuable sharing experience and ideas is. So cheers Suzanne and Eric for providing the forum 👍

ileostomy 31st August 1994 for Crohns


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Dona
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July 21, 2019 1:30 pm  

Hi Suzanne,

Welcome to the forum and thanks for the tip about healing and protecting the skin with the milk of Magnesia. Great tip! I wrote it down so I can refer to it when needed.

I hope you continue to add your voice to ours and post more tips since you have so much experience to share. 

Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


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SqueakyandLiza
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July 21, 2019 5:05 pm  

@john68

I think I have had something similar. A couple times when I saw the ostomy nurse, she used silver nitrate (I think) to burn something on or around my stoma. It was a stick with the silver nitrate at the top and she used some lidocaine to numb it and then just touched it with the tip of the stick. I am probably due to go back and have her check it again. 

-Liza
“May your day be bright and your bag be light.”


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Michael Dennis
 Michael Dennis
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July 28, 2019 10:09 pm  

Great video, thank you. I’ve had my ostomy for five weeks now. I’ve been struggling with leaks almost daily it seems. After watching your video I realize I’ve been doing a few things wrong, which I’ll now correct. My skin is in pretty bad shape, I think following your tips though will help it heal. Thanks again!


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VeganOstomy
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July 29, 2019 12:56 pm  
Posted by: @Michael Dennis

Great video, thank you. I’ve had my ostomy for five weeks now. I’ve been struggling with leaks almost daily it seems. After watching your video I realize I’ve been doing a few things wrong, which I’ll now correct. My skin is in pretty bad shape, I think following your tips though will help it heal. Thanks again!

Good luck, Michael! Even at five weeks, I was still figuring things out, so don't despair. There's always a solution for each problem, so I hope your solution (with the new changes you'll be making) comes quickly!

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Alison
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August 2, 2019 6:47 pm  

Hello all,
I have found Eric's videos and info very helpful. My surgery was 8 weeks ago and I am very happy with my recovery (and freedom from the toilet!). The lower half of the colon was removed, and while I did have solidified output at the beginning, the past 4 weeks have been like mud - not quite diarrhea. However, there is a problem with the juncture of skin and stoma. That is to say, as the stitches dissolved, the skin wasn't yet closed around the stoma. Now a real gap is evident, and the skin's edge is raised, like a bumper, and irregular. There is also a broad area of skin at one side that has remained a red wine colour - it is sore to the touch. Of course, I have seen the surgeon several times since the surgery, and as it became more painful at about week 4, instead of less, he prescribed 10 days of two antibiotics at week 6. At the visit after that he again examined things, poked etc. While it is less painful than before the drugs, the gap appears wider. He is concerned, yet suggested a wait and see approach, and return in two weeks. I asked if he could restitch but he said this is not possible.

Today's pouch change revealed seepage under the wafer, again. The "bumper" isn't helping I suppose. Yes I have tried convex wafer (suggested by visiting stoma nurse, made it hurt a lot), rings (suggested by hospital stoma nurse, seemed to make stoma retract, more seepage), and paste (seemed to dissolve, and fail). This last time I tried cutting the wafer tighter to the stoma, and used no extra product. This was more comfortable, but was just an illusion of success! I have let the skin "air" a couple of times, sitting in the sun awhile. Yet the problem continues. Today I turned again to the Google search, and of course there really only is your site! I watched the "crusting" video (thank you and will try that now.) But I was very struck by how different my stoma looks - and now I am getting rather worried.

So here are my questions (at last). Has anyone had this issue of the skin remaining apart from the stoma? What was done to help it heal properly? I do trust my surgeon, but it seems time to reach out for other input.

Cheers,

Alison


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VeganOstomy
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August 2, 2019 9:24 pm  

Hi Alison, this is something that happens  unfortunately, but it should be addressed by your surgeon.

Do you have a stoma nurse who can assess your stoma and recommend how to better apply a pouch over it? I would be cautious of using a convex wafer because the additional pressure it adds may cause that separation to worsen. 

The sore redness you describe could be the skin that’s burned from your output, at least that’s what I’ve encountered in the past. More frequent appliance changes helped me during that time and I always measured my stoma to get a perfect fit. 

Best of luck!

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Tina
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September 17, 2019 2:39 pm  

Hi, I’m new to the forum but have had my ostomy since 2016 and have tried a few appliances because I have a sensitivity to the adhesive and finally found one that has worked for me. However, lately the base plate hasn’t been adhering well and then starts to lift around the edges and that gets very itchy for me and I try soooo hard not to scratch but I do a lot of it when I’m asleep and now my skin has been so red and raw and I’m having to change my bag too frequently, please what can I do for that? Is there a tape that heals the skin at the same time? I’ve also tried the crusting but find that things don’t stick well after that either. I wish they made a base plate made of all skin barrier ring. :)


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VeganOstomy
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September 17, 2019 2:59 pm  

@Tina

Hi Tina, red and raw skin are not good signs. You may have an allergy or fungal infection, or it could be mechanical in nature (like if the wafer pulls on your skin).

I would strongly suggest having a stoma nurse assess your skin so you can get on the right healing plan. 

Good luck!

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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john68
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September 17, 2019 3:04 pm  

Crusting and other remedies are good for a small or mild troubles but Eric is right seeking help from a stoma nurse is best 

ileostomy 31st August 1994 for Crohns


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Mary
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September 19, 2019 8:46 pm  

I have an ileostomy,
I changed my appliance yesterday, Wednesday, this evening my stoma hurts?
Should I change the appliance again?


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john68
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September 20, 2019 3:58 am  

Hi Mary, when we have pain it’s not the stoma but the skin around the stoma. Is this pain new or part of on going skin problems. It could also be that the wafer is to tight or pulling on the skin. Changing to often can cause problems but if it’s causing distress I would change. Have a good look at the wafer and skin when doing.

ileostomy 31st August 1994 for Crohns


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LK
 LK
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September 20, 2019 6:18 am  

Hi Mary, and Welcome. I know what you mean about the stoma hurting which is why it puzzles me that we are told it does not hurt. When I first had mine, I had made the hole too small and l could feel it was too small for the size of my  stoma.  Gas was trying to escape. I layed down and watched  the stoma bulge with gas, escape,  and then the stoma went back to its size and that particular pain went away. The hole in my wafer was not much smaller then usual, but it was small enough to make the difference. I replaced the pouch with a slightly bigger hole I had cut in the wafer and since, it has only ever felt some what I called pain in my stoma, if I had cut the  hole & it had a little outward notch in  the wafer that my stoma touched, it would hurt there. Sometimes if the hole l cut even a bit too small and the stoma touches the wafer and the edge of the hole is not softened yet, I will be aware of it. This is one good reason to not have an exact hole as to the edge of the skin. When you cut the hole, cut it on the outside of the line otherwise you inadvertently make the hole too small.  Turn  the pouch when cutting the hole , not the scissors. This avoids the bit of pointed edges I talk about. The skin does toughen up in time and can  take the bit of a lot better as we go on  in life. I hope this help.

Linda...doesn't anyone sleep around here, and Liza...go back to bed.😴

Linda


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john68
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September 20, 2019 7:34 am  

This is my take on why we think the stoma it’s self is sore, the little guy or girl 😃 does his wriggling as we pass out put when this happens that causes a certain amount of movement skin and wafer wise hence if there is broken skin or not enough room pain occurs. I do know the proper name for the stoma moving!! Peri......Ok now it’s obvious I can’t spell it!!!!😂😂

ileostomy 31st August 1994 for Crohns


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LK
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September 20, 2019 8:03 am  

@john68 I believe the word you're looking for John is peristalsis. I remember a bit from my nursing days.😂! I truly felt the pain was situated only to the stoma. It was also a new pouch on when that happened. I also question that if it does not hurt, being made of the same material of the stoma why do we get pain and credit it to the bowel hurting?🤔. The erosions, tho we can't exactly feel or place them seem to be a symptom of disease and when active I certainly have a lot more pain.🤯.  There is so much more I want to understand 🤓about the guts. I know when I touch my stoma she does not hurt yet l  place the pain right with my bowel.🤔. I think we need a scientist here 🏅🤓.I have to ask if everyone gets pain with the flares of disease? I know I have a different type gut being shorter then short and with bowel wall thickening, but does everyone experience the pain?🤔

Linda


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SqueakyandLiza
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September 20, 2019 9:46 am  

@dlkfiretruck

Linda—you are so funny with all your new emojis. You are like a kid in a candy store. 😂🍭 And, so you know, I always have my phone lying on the bed when I sleep, so when I am online in the middle of the night, I usually am lying in bed, often after getting up to empty my bag.  😀

-Liza
“May your day be bright and your bag be light.”


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Bill Bell
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September 20, 2019 2:52 pm  
Posted by: @dlkfiretruck

... but does everyone experience the pain?🤔

I never had any pain when I had Ulcerative Colitis and have never had one since my ileo operation 3 years ago.  Maybe I don't have the nerve endings that others have.  Just lucky I guess.  I never have problems with the whole bag thing. :-P 

Bill
Ulcerative Colitis... Ileostomy June 2016


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john68
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September 20, 2019 3:49 pm  

I know before surgery I had a lot of stomach pain and of course the sickness and cold sweats. And who can forget the sore bum!! Was getting to the stage where I was considering keeping the toilet paper in the fridge 😃❄️❄️.

ileostomy 31st August 1994 for Crohns


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