A pouch of this size and its use is something I know that I was not  familiar with, it goes to show the added needs any one with a high out has! I know I can have a flow of out put say after a meal and ye think is that going to stop but it does. I would say a support belt would be needed to give the wafer a chance

Wow Eric just finished watching your video on the bags that is huge ! I think I had seen one that you mentioned that actually has to lay along side of you when you use it . I saw it quite awhile back on the front butt u tuber and I thought at first she was just kidding because the bag was so big ! I couldn't imagine having that much output .

Eric, I also just watched your video of high out put bags.  WOW! They had me on some a year ago in the hospital.. My output get thick at time..  Mostly during the early day.. YEs, I confused them again @ the hospital..  Happy that the mio came out with this.. IF anyone going on long trips?  I think would be wonderful..   I found them larger than my leg and rather in comfortable sleeping.. So, they got even bigger?? 

This is good for measuring also--so the Dr. told me.. But that was their problem.. The Mio maybe more comfortable I feel..  you must have been a cute baby Eric..

Posted by: Robert

Wow Eric just finished watching your video on the bags that is huge ! I think I had seen one that you mentioned that actually has to lay along side of you when you use it . I saw it quite awhile back on the front butt u tuber and I thought at first she was just kidding because the bag was so big ! I couldn't imagine having that much output .

That's the night drain bag, which can actually be attached to one of the ones I had in the video.  Some people output many liters a day, so these high-capacity appliances are the only way they can get any sleep or time to do things. 

I just in samples of Hollister and B. Braun's high-output product offerings, so I'll be covering those in another video - I still need to get convatec to send some samples out :)

Eric, I empty a good 15 times a day.. Better than before.. but still? :-0!!  I am going to get samples of these tho--At night? I do 3 times.. That is liquid mostly--Yes, they attached this to a drain tube and into another bag.. in the hospital - Just another tube for  me to fumble with--I am indeed a wall flower !!!!!!!!!! ----always plugged into a wall.. :-( 

Seems when I am going into a bad dehydration, I notice MUCH liquid out put..  Then I am a gonner........... And I know that I have to get to infusion.. 

Looks like a comfortable Mio bag tho- better than the ones n the hospital last year for sure!! Thanks for this information Eric!! 

If you try this, Marcie, please let us know what your experience is like. 

I am on their list for a try out-- USA, not to be ordered as of yet..   Coloplast is now calling me an a regular basis.. I believe others have this complaint also-- But it is  their job.. Maybe because I do get into their NEW products and try them early than most and they like my feed back.. Nice people tho-- 

I have HUGE LIQUID output.  Can't wait for my samples.  Hoping for one good night's sleep since my surgery in July.  At times, I empty my pouch every 1/2 to 1 hour.  4 Lomotil tabs help to quiet things down.

Kathy Mac

Welcome, Kathy! 

Please let us know how those samples work out for you :)

Hi Kathy, welcome........... I also have a high output. In the first year or so, I was emptying a good or more 30 times a day.. I am an ileosyomy.. Things should settle down for you..  Glad that the lomotil is working for you at such a short amount of time of your surgery.. :-)  These and the rest of meds never helped me at all--  My upper G.I. Dr. gave me loperamide 2 mg. Your Dr. will let u know later on if these capsules r right for u.  I take 3 in them morning with food -cherroes 1/2 banana is a must.. and o.j. I have a rather good day. lunch- I take 2 more.. and then 3 or 4 late day-- BUT I HAD TO WORK THIS UP FOR ME OVER THE PAST TWO YEARS.. You may be different.. As we all are.. These r in the same family as what your taking.. but in capsules. $500.00/month without insurance.. :-( 

As for taking capsules-- a stiff food is necessary.. Mashed potatoes, 1/2  banana, oatmeal. OR just try eating these foods to help keep your out put less liquid. TRY FOODS ON A LESS SIDE, until you get to know your body...... Fluids are necessary between each bites..  also snack on cherroe's raw at night-but not to much as fear of blockage.. And some saltines crackers. Try to stay away from lots of fluids at night before bed.. like 2 + hours..

You will get the hang of it.......... I am sure that you will be just fine. M. 

Good luck Kathy-Your still in the early stages, and (my) above meds will not be necessary-- It has been 3 1/2 years for me.. Doctors and I are still working on me...  Just try to relax and get to know your stoma--what did u name it?  Mine is Nellie--whooooooooooa Nellie. :-) 

Hi!!!  Since I have had Crohn's diagnosed 45+ years ago and surgery to take out terminal ileum, I have lived with liquid stool since them.  I personally decided to get a colostomy.  I do eat all the foods you suggest and have Rxs for loperamide and diphenoxylate/atropine.  I use the first when I get up and the second at bedtime.  This combo works great.  Finding the right appliance has been my greatest challenge.  I finally found Coloplast products - NO LEAKS and it actually cleared up my angry skin (with Hollister products).  The hospital I had surgery only uses Hollister - no mention of any other product manufacturers.  I found them myself by watching Eric's videos and others posted on YouTube.  I sent for samples and was so thankful I found both the 1-piece and 2-piece systems that worked for me.  Now, I feel I can go out without worrying about leaks and other problems.  Even my family and friends have noticed a change in me.  I am smiling and happy again.  

Thanks for your advice.  I love getting others' responses and answer to some questions.  

Kathy Mac

Yeah Kathy Mac!

When you take responsibility for yourself,  the whole world becomes smiley.  :lol: 

John Robert, z, Linda, anyone!! Without a colon of near gone..

How many times do u empty?  liquid or not or sometimes????????? & how many years are you into this? thanks in advance.. M.

I used to use magnum bags at first. When I calmed down, and got used to the newish situation,  i went to regular 650ml. bags.

At present, i empty out twice after every meal and during the day every hour or so. Comes to 10 -12 times daily. Obviously,  i arranged my life around the presence of lavatories .

I cannot eat after 8 to ensure that transit time of 3 to 3.5 hours is completely passed and my bag won't fill up to bursting before i wake up at 4:50 to start the next day. 

Timing is crucial to preserve sanity.

Oh yeh,manure does happen .

Posted by: Marcie

John Robert, z, Linda, anyone!! Without a colon of near gone..

How many times do u empty?  liquid or not or sometimes????????? & how many years are you into this? thanks in advance.. M.

Great question, Marcie. 

I've started a new thread where we can share our experiences about it: https://www.veganostomy.ca/community/general-ostomy/how-often-do-you-empty-your-ostomy-appliance/

Kathy Mac welcome to the group ! Glad to hear you are smiling and happy again good for you !

Marcie I use the Hollister 18113 lock n roll  bag . I empty on average 10 times in a 24 hour period . I now have had my Norman for 16 months . Better than when I was stuck at home before I received Norman and I was going 15 plus times just during the day .

, you do get you proper fluids and nitritions o.k. ?

Depending on what I eat, I can empty anywhere from 10-20+ times a day.  I don't eat anything after 6 p.m. to ensure (most of the time) colon emptying.  I have 100% liquid stool.  Oh well, been living with that 40+ years, colostomy in July 2017.  

Life goes on. :)  

Kathy

Yep - sounds like we have about the same situation....and yes, manure happens - thanks for the giggle.   :-P 

Kathy