Community Forums

Very sensitive skin...
 
Notifications
Clear all

Very sensitive skin around stoma

48 Posts
15 Users
35 Reactions
4,498 Views
(@loveanimals)
Joined: 6 years ago
Posts: 42
Topic starter  

@squeakyandliza I love the quote at the bottom of your message!! I found some suggestions for skin irritation on a Reddit sub post I think it was.  Domeboro it’s used for rash relief it over the counter I’m going to give it a try. You mix a packet with warm water then Ostemate’s use a washcloth that’s soaked in the solution around stoma.  I’m going to use very cautiously as my skin is sensitive to all things.  



   
LK and Tigerlily reacted
ReplyQuote
(@loveanimals)
Joined: 6 years ago
Posts: 42
Topic starter  

@jeff My favorite suggestion of your is eating 3 marshmallows to allow you to air your ostomy out I love marshmallows so certainly going to try that one!  I haven’t been really good about documenting what types of wipes I use but will now and will try sensi-care barrier.   I frequently air out my peristomal area. Thanks for all the suggestions Jeff



   
Tigerlily reacted
ReplyQuote
(@loveanimals)
Joined: 6 years ago
Posts: 42
Topic starter  

@jeff My favorite suggestion of your is eating 3 marshmallows to allow you to air your ostomy out I love marshmallows so certainly going to try that one!  I haven’t been really good about documenting what types of wipes I use but will now and will try sensi-care barrier.   I frequently air out my peristomal area. Thanks for all the suggestions Jeff



   
Tigerlily and LK reacted
ReplyQuote
(@squeakyandliza)
Joined: 6 years ago
Posts: 1062
 

I have had my ostomy nurse also suggest the marshmallows. They work pretty well, but won’t counteract something powerful, like cran-grape juice. 😂


-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


   
Tigerlily, Loveanimals and LK reacted
ReplyQuote
glenn.giroir
(@glenn-giroir)
Joined: 6 years ago
Posts: 300
 

Do the marshmallows work if they are paired with chocolate and sandwiched between graham crackers?  I'm asking for a friend.  


Ulcerative Colitis (1995)
Permanent Ileostomy (2019)
Doing what it takes to enjoy life to its fullest.


   
SqueakyandLiza, Tigerlily, Loveanimals and 1 people reacted
ReplyQuote
(@loveanimals)
Joined: 6 years ago
Posts: 42
Topic starter  

@glenn-giroir Haha I don’t know for sure if  marshmallow effectiveness is changed if eaten as a s’more but thanks for the idea!!



   
Tigerlily and LK reacted
ReplyQuote
(@squeakyandliza)
Joined: 6 years ago
Posts: 1062
 

@glenn-giroir

Tell your friend (😉) absolutely!! That is Squeaky’s and my favorite way to get our marshmallows. 😋


-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


   
Tigerlily and LK reacted
ReplyQuote
 LK
(@dlkfiretruck)
Joined: 8 years ago
Posts: 1662
 

To All......R O L O L !!!!! 


Linda


   
ReplyQuote
 LK
(@dlkfiretruck)
Joined: 8 years ago
Posts: 1662
 

@jeffjeff...why don't they just make  vanilla chocolate chip swirl marshmallows rolled in Graham cracker crumbs? Life would be so much simpler! Lol! 


Linda


   
ReplyQuote
Pisceslissa
(@pisceslissa)
Joined: 5 years ago
Posts: 4
 

I feel for anyone having skin issues. I am dealing with this myself - unable to show improvement for approx 3 years now. It is very painful with a burning sensation constantly. I wanted to just throw this out there for anyone using Marathon. It does help but is very expensive. Marathon is actually cyanoacrylate (same as superglue). The only difference is that Marathon has a coloring agent to it. I assume to make it easier to see as you apply it to a precise area. Superglue is much cheaper than the Marathon liquid. 



   
ReplyQuote
(@chrisandbagpus)
Joined: 6 years ago
Posts: 254
 

I find that marigold cream helps to sooth the skin the best. Recently I just tried some distilled witch hazel liquid just dabbed on to quell the burning soreness (careful of broken skin). I found calamine lotion not quite as effective and proprietary product have too many other ingredient that are either stinging, itchy or reddening to my sensitive skin. I still after a few days find the skin dry and peeling but I put that down to the lack of air getting to the skin 


Colostomy Jan 2020


   
Pisceslissa reacted
ReplyQuote
(@john68)
In Memorandum
Joined: 8 years ago
Posts: 2059
 

Hi Melissa, Could it be a reaction to  the product you are using. Also have you seen a stoma nurse about it. Even in these strange times a lot can still be done. Also the ostomy suppliers have help lines and stoma nurses to help 


ileostomy 31st August 1994 for Crohns


   
ReplyQuote
(@squeakyandliza)
Joined: 6 years ago
Posts: 1062
 

@pisceslissa

I have been having skin problems the whole time I’ve had my ostomy (coming up on 3 years). I do frequently use Marathon, and it is expensive. Though I’m not sure I’m ready to start substituting Super Glue to save money. 😂😂


-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


   
Pisceslissa reacted
ReplyQuote
Pisceslissa
(@pisceslissa)
Joined: 5 years ago
Posts: 4
 

Oh yes - I’ve seen my Ostomy nurse many times over the last few years. Lucky for me we have a good bond (she took care of me daily for the 2 months I was inpatient post-surgery). I can even text her pics of my issues and she gives me great advice. 

My issue stems from the fact that my stoma is fairly even with my skin. No protrusion at all. And all the way around my stoma is an open raw area. I use convex appliances but nothing seems to help. At one point I was even using silver nitrate sticks to ‘cauterize’ the macerated areas. And let me tell you - that was PAINFUL!  

Does anyone on these forums upload pics of their skin issues for advice? Or is that a no no?



   
ReplyQuote
(@john68)
In Memorandum
Joined: 8 years ago
Posts: 2059
 

I really hope that superglue was a joke 🤞 yes pictures are very useful. A deeper convex could be an answer. Silver nitrate and too many products may also add to the problem. A recessed stoma can be a challenge but workable 


ileostomy 31st August 1994 for Crohns


   
ReplyQuote
Pisceslissa
(@pisceslissa)
Joined: 5 years ago
Posts: 4
 

Oh my!  No - the Superglue tip was not a joke. Just google cyanoacrylate. It truly is the same thing. 



   
ReplyQuote
(@john68)
In Memorandum
Joined: 8 years ago
Posts: 2059
 

Oh please give that a swerve! Getting your appliance right is key. I appreciate it’s painful and frustrating and the temptation to try anything is easy done. We have members here with flush stoma s working well. Dona is one very good example 


ileostomy 31st August 1994 for Crohns


   
ReplyQuote
(@squeakyandliza)
Joined: 6 years ago
Posts: 1062
 

@pisceslissa

Melissa, my stoma nurse uses the silver nitrate sticks to remove granulomas from my stoma and the edges around it. She uses some liquid lidocaine to numb the area before she does it. If you are going to continue using that, maybe see if you can get some of the liquid lidocaine so it doesn’t hurt so much. Or even better to have the stoma nurse use it on you instead of using the silver nitrate yourself??  Be safe!!


-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


   
ReplyQuote
(@chrisandbagpus)
Joined: 6 years ago
Posts: 254
 

@pisceslissa

An extra thought. I know that professional bike riders use lanolin cream on their butts as they suffer from sweat and abrasion on the rear end due to the shorts constantly rubbing sweaty skin (Nappy Rash - Honesty) they use the lanolin to reduce the friction and to act as a water proof barrier for the skin. Might it help?


Colostomy Jan 2020


   
ReplyQuote
VeganOstomy
(@veganostomy)
Admin
Joined: 12 years ago
Posts: 4582
 
Posted by: @pisceslissa

Oh my!  No - the Superglue tip was not a joke. Just google cyanoacrylate. It truly is the same thing. 

Having used Marathon myself (and yes, it is SUPER expensive), I had to look this up!

Marathon contains: n-Butyl cyanoacrylate, 2-Octyl cyanoacrylate 

Super glue contains: ETHYL-2-CYANOACRYLATE 

While they look like the same thing, I'm not sure what makes them different and whether this difference poses any health risks, so I don't recommend it just to be on the safe side. 

I wonder if @winnie might be able to chime if they might know how these two products might differ. 

 


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
ReplyQuote
Page 2 / 3