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LK
 LK
(@dlkfiretruck)
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01/03/2019 10:02 pm  

John...Thank you for that info. I have to ask,  and I wish my eyes were good enough at this time to read for myself,  but what is this granuloma made of? Are they all different?  I have neither an ill fitting pouch or infection, and oddly enough, my little bumps have gotten larger this past week. I have been watching them for several months as they have been changing. They have been there for 8 years I figure, and do not cause any issues at this time. The colour of them is just as the rest of my skin in that area.  I am, for obvious reasons curious about these little devils. 

Linda


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john68
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02/03/2019 3:57 am  

Hi Linda, won’t even guess what they are made up of. What you describe does not sound like a granuloma, why not mention these bumps to the doctor or nurse. 

ileostomy 31st August 1994 for Crohns


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VeganOstomy
(@veganostomy)
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04/03/2019 12:56 pm  
Posted by: john68

Hi Linda, won’t even guess what they are made up of. What you describe does not sound like a granuloma, why not mention these bumps to the doctor or nurse. 

I echo this sentiment. Linda, have a dermatologist or stoma nurse have a look just to be sure. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Dona
 Dona
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05/03/2019 2:19 pm  

Hi Linda,

Also, it might be worth taking some photographs of the little bumps, especially since you have noted some changes. If you have an I phone or something this would be simple. Just take one a week or however many it would take to document whats going on.

Then when you get to a doctor you can show them. It is worth getting it checked out.

I got good help once from a dermatologist, but start with anyone even a nurse or your primary care person. They would refer you to someone else if they don't know.

Let us know. Thanks.

Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


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LK
 LK
(@dlkfiretruck)
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Posts: 481
06/03/2019 4:26 am  

Thank you everyone.  To anyone new here, including  your medical support team is a vital part of being successful, living well, with your ostomy. It means that if your simple question needs the alarm to sound it can be done so much sooner.  Ostomy nurses are something I have had very little contact with, distance and nursing a dieing husband did not allow for issues to be solved with the help of a nurse, but they were solved. Ostomy nurses do play a vital part in your recovery and success. Ostomy nurses see more stomas and skin issues then your local GP long after the original surgery for one. It is good to see your family doctor on a regular basis also. But how often does your GP see a stoma. My GP of ten years has never seen mine. So, based on what I know and my experiences I would have suggested the same thing to anyone. I will certainly get these little things checked out as soon as I can stuff my toes back in my shoe.  Aside from having the big malformed toe nail removed, I managed to break my middle toe on the same foot. I will keep you up to date as soon as I know anything about my little bumps, had this topic not come up I may well have ignored them longer. I do know better then this, so, better safe then sorry. :Z! 

Linda


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