Hi guys! Sorry it took me so long to come back and update but I really didn't have a lot of info and the holidays hit and…and…and. So we travelled t... @veganostomy The Nu Hope non adhesive sounds super promising. Sounds like a great option for applying topicals. I read it is reusable so might actual... @chelly wow! You had the chief of all CRS do your operations! My daughter has Dr. Holubar and we love him. He had to go out for a while when she wa... @john68 Thanks for the advice. She has tried a few times letting the skin breathe but you know 20 somethings….people to see, things to do! She neve... @chelly I will see if I can get some of that stuff. We are so desperate with her psoriasis we try any and everything. It is definitely psoriasis. Sh... Oh! One other thing. She says that all of a sudden, now when she sits on the toilet she has a pressure pain in her bottom. Has anyone else ever had... Procedure is on hold. She has an abscess. We are going to pow wow tomorrow to decide next steps. She also will likely need a blood transfusion as he... Hey guys, So she did end up having to come in for surgery yesterday. They were able to get all the fluid, infection and a hematoma (which might be be... We went back in this morning just to be sure. The PA probed around and was able to find another sac of fluid hanging out up there. They were concern... O.K. gang. Here is another question. My daughter is 10 days post op. Last week when she was readmitted and they did a ct scan and found the blood c... Thanks @tigerlily. She is still not able to eat anything. She just managed 100calories of a cereal but vomitted right after. I suspect it was the d... Hi guys,
Well, my daughter saw her GI and surgeon and her entire colon, rectum and anus were shot so she converted her loop ileostomy to a TAP with... Met with NP yesterday who was thinking diversion colitis. Apparently 70-100% of people with diversions get it but only a small percentage experience ... Hi guys,
My daughter had some good weeks and some bad weeks with leaks. She kept trying to fix things on her own and it would seem like she di... I am actually thinking about having her ask her GI for a script for rectal suppositories or foam to help with the urgency and bleeding. At least unti...
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Momof2
RE: Psoriasis under flange
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RE: Psoriasis under flange
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RE: Psoriasis under flange
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RE: Psoriasis under flange
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RE: Psoriasis under flange
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RE: Psoriasis under flange
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RE: Diversion Colitis or Active Disease
2 years ago
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RE: Diversion Colitis or Active Disease
2 years ago
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RE: Diversion Colitis or Active Disease
2 years ago
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RE: Proctectomy Drainage
2 years ago
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RE: Diversion Colitis or Active Disease
2 years ago
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Proctocolectomy
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RE: Diversion Colitis?
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RE: Leak Time
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RE: Mom to potential ostomate
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