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Momof2
@momof2
Topics: 7 / Replies: 30
Topic
Forum
Replies: 3
Views: 204
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RE: Psoriasis under flange

Hi guys! Sorry it took me so long to come back and update but I really didn't have a lot of info and the holidays hit and…and…and. So we travelled t...

1 year ago
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RE: Psoriasis under flange

@veganostomy The Nu Hope non adhesive sounds super promising. Sounds like a great option for applying topicals. I read it is reusable so might actual...

1 year ago
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RE: Psoriasis under flange

@chelly wow! You had the chief of all CRS do your operations! My daughter has Dr. Holubar and we love him. He had to go out for a while when she wa...

1 year ago
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RE: Psoriasis under flange

@john68 Thanks for the advice. She has tried a few times letting the skin breathe but you know 20 somethings….people to see, things to do! She neve...

1 year ago
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RE: Psoriasis under flange

@chelly I will see if I can get some of that stuff. We are so desperate with her psoriasis we try any and everything. It is definitely psoriasis. Sh...

1 year ago
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RE: Psoriasis under flange

Oh! One other thing. She says that all of a sudden, now when she sits on the toilet she has a pressure pain in her bottom. Has anyone else ever had...

1 year ago
Topic
Replies: 19
Views: 493
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RE: Diversion Colitis or Active Disease

Procedure is on hold. She has an abscess. We are going to pow wow tomorrow to decide next steps. She also will likely need a blood transfusion as he...

2 years ago
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RE: Diversion Colitis or Active Disease

Hey guys, So she did end up having to come in for surgery yesterday. They were able to get all the fluid, infection and a hematoma (which might be be...

2 years ago
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RE: Diversion Colitis or Active Disease

We went back in this morning just to be sure. The PA probed around and was able to find another sac of fluid hanging out up there. They were concern...

2 years ago
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RE: Proctectomy Drainage

O.K. gang. Here is another question. My daughter is 10 days post op. Last week when she was readmitted and they did a ct scan and found the blood c...

2 years ago
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RE: Diversion Colitis or Active Disease

Thanks @tigerlily. She is still not able to eat anything. She just managed 100calories of a cereal but vomitted right after. I suspect it was the d...

2 years ago
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Proctocolectomy

Hi guys, Well, my daughter saw her GI and surgeon and her entire colon, rectum and anus were shot so she converted her loop ileostomy to a TAP with...

2 years ago
Topic
Replies: 23
Views: 1045
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RE: Diversion Colitis?

Met with NP yesterday who was thinking diversion colitis. Apparently 70-100% of people with diversions get it but only a small percentage experience ...

2 years ago
Topic
Replies: 5
Views: 522
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RE: Leak Time

Hi guys, My daughter had some good weeks and some bad weeks with leaks. She kept trying to fix things on her own and it would seem like she di...

2 years ago
Forum
Topic
3 years ago
Forum
Replies: 8
Views: 619
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RE: Mom to potential ostomate

I am actually thinking about having her ask her GI for a script for rectal suppositories or foam to help with the urgency and bleeding. At least unti...

3 years ago
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