Community Forums

Notifications
Clear all

Leak Time


Momof2
(@momof2)
Registered
Joined: 5 months ago
Posts: 19
Topic starter  

Hi everyone!  Things were going so so well.  I guess it was only a matter of time.  This week my daughter is having trouble with leaks.  Right in the same spot…by her belly button.  Her stoma is super close to her belly button so she has to wear her square plate as a diamond with the tip pointing toward her belly button.  

 

Anyway, she did have some damaged skin that she was told to use stoma powder on and it was healing nicely but all of a sudden it is back to being red and broken.  Maybe because of the leaks?  

She recently started cutting her hole smaller…could she have rushed the process a little?   Tonight, she was woken at midnight with a leak and I told her to try to go back to the size before these leaks happened.  

The other thing I noticed was when she took her bag off, the output seemed thick and clustered around the opening rather than down in the bag.  Could thick output that doesn't fall down into the bag possibly cause leaks?  I am just thinking, if it is sitting there it could be working its way to loosening the seal.  But the other leak happened in the middle of the day.  

Things were going so incredibly well, I really don't want this to discourage her.  

She took a picture of her stoma and will send it to the ostomy nurses via her patient portal.  Hopefully they can help her trouble shoot this remotely.  Otherwise she will have to try to find an ostomy nurse locally.  Just ugh! 


Quote
john68
(@john68)
Registered
Joined: 5 years ago
Posts: 1843
 

Hi there, A leak does shake confidence. But you know the weak point where it’s happening. It could have been that too much stoma powder left that weak point.  Try crusting that place. Powder followed by dapping with barrier wipe. Let that dry and repeat. Output gathered round the ring can sit cause of the ring on a 2 peice. With a good fitting barrier and no skin showing it shouldn’t cause too much trouble. Keep heart it’s a learning curve 👍

ileostomy 31st August 1994 for Crohns


Stella and Tigerlily liked
ReplyQuote
Tigerlily
(@tigerlily)
Registered
Joined: 2 years ago
Posts: 215
 

John’s right - it’s a learning curve! One thing I wanted to comment on - you’re right about thicker output pushing its way under the flange and causing a leak. It sounds like your daughter has some pancaking happening. I’ve had that happen lots of times. I have a colostomy, so my output is thick. Output consistency is usually affected by what is eaten, or not eaten. I wonder what’s changed for your daughter? I would keep an eye on fluids. In hot weather, fluid intake should increase to replenish what is lost through sweat. The pancaking could also be causing some skin irritation too. It’s all connected.

 

Laurie

Just a semicolon


Stella and john68 liked
ReplyQuote
VeganOstomy
(@veganostomy)
Admin
Joined: 8 years ago
Posts: 3655
 
Posted by: @momof2

Anyway, she did have some damaged skin that she was told to use stoma powder on and it was healing nicely but all of a sudden it is back to being red and broken.  Maybe because of the leaks?  

I would think so. Because our output (especially in people with an ileostomy) tends to have some digestive fluids in it (i.e. bile), any amount left on the skin can eat away at the skin. 

She recently started cutting her hole smaller…could she have rushed the process a little?   Tonight, she was woken at midnight with a leak and I told her to try to go back to the size before these leaks happened.  

If it only happened once, and that was something she did differently, it's possibly related.

The other thing I noticed was when she took her bag off, the output seemed thick and clustered around the opening rather than down in the bag.  Could thick output that doesn't fall down into the bag possibly cause leaks?  

It does for me, but pressure from gas is usually the main cause of my leaks. 

Here are strategies to loosen her output and give it a better opportunity to drop down to the bottom of her bag. Some clothing/support garments also trap output near the top. Sometimes, manual intervention, in the form of sliding the stool down by hand, is necessary. 

She's having a minor bump in the road, and these things happen. This is always a learning process, so I hope she doesn't get too discouraged by it. 

 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


Stella and john68 liked
ReplyQuote
Stella
(@stella)
Registered
Joined: 1 year ago
Posts: 79
 

Momof2, please tell your daughter not to be discouraged. She's doing good. We're here to pass our experience and what we know. Base of this, she will find out the reason of the leak and she will figure out her solution.

I myself use the Hollister ring 8805 before the skin barrier. The ring is put to the edge of the stoma (where the stoma join with the skin).  Then the hole of the skin barrier has a little space from the stoma (that it should be).

The ring is good for skin. 

There was a time my leak caused my skin turned into red and itchy. After I changed the appliances and put this ring on top of the red skin, the next change I could see the skin has been healed pretty much. Then one more change I could see the skin all healed.

This ring is good for protecting the skin all around the stoma and the adhesive is quite good for me.

I also like, the ring came with films on top and on bottom. When I put it on, I just took off the film on the bottom, attach to my skin, then I press gently the ring with the top film is there, so that it would not stick on my finger while I'm pressing. Doing this to ensure it attach on my skin good.

 

Please don't be discouraged,  she is doing good. (Love the baby. Although all parents may not like to change diapers for babies at night, but they all willing to do it with love. After changing, they may even give their babies a kiss)


ReplyQuote