Community Forums

@veganostomy yes I'm going to contact one to see what options I have. No job is worth the amount of suffering, damages to my things ,my car and heath ...

@veganostomy that's exactly what happened to me is eyes and nose burning. Very strong industrial cleaners and I'd have to waitvto eat until I got home...

Hi Paul, Just now seeing this. If you still.have them there is a place called kindred box who distributes them to people in need who have no insuran...

Thanks, yes I need to think about disability. I just seem to be getting worse health wise. I keep making stupid career decisions unknowingly until I g...

@veganostomy the wafer extenders I'm allergic to at least the ones I've tried. I'm complicated with my adhesive allergies. But your probably right. Af...

@veganostomy yes that is true. I'd love to find something that really works but I got to thinking as it is not disposable it's going to get stinky and...

@dlkfiretruck you are so right. I had a temp ileostomy at first. Then went for the total proctocolectomy with end ileostomy 2vyrs later but I had para...

Hi Linda and John, Thank you for the support. Come to think of it Linda, I never had smell issues when I was able to cut my own because I could adju...

All I know is im a clean human being. I'm really depressed due to the bullying and embarrassment I received at my last apartment last spring. Then th...

@momof2 pop in to update when you can. I hope she's getting all healed up and better now.

@dlkfiretruck hello, no worries we all have things going on in our lives. I do appreciate you getting back. I'm sorry to hear about the glaucoma and c...

@veganostomy thanks for that. I'm.really struggling with this. I absolutely dread the days I have to wash them. I wish I lived in a single home. Then...

Good news to hear about you and your son. May healing and good health continue for the both of you.

@veganostomy do you buy a plastic container to soak or do you soak in your washing machine?

@llholiday actually it was my old pouch a few years ago. I'm in a precut now but i miss cutting my own as the stoma changes with any weight loss or ga...

Same here. They check our bags of you go to the ER here and did not faze me either although they kept my scissors behind thier desk until I was done. ...

@dlkfiretruck I wanted to come back to say that I am so thankful that I found someone who has the same problem and is able to offer some feedback in t...

@kirsten I see. So you and your surgeon are trying available things that may work out for you. I'm not to educated on diverticulitis except that my mo...