Ostomy Chat with Amber Wallace (Part 1): The New Patient Experience

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I had the pleasure of doing a video interview/chat with a fellow ostomate, Amber Wallace, and I’m so happy to be sharing this new series with you!

In Part 1, we share our experiences of being a new ostomy patient.

For most people, waking up with an ostomy can be scary and stressful. We also share tips on how to better manage those early weeks and months following surgery.

Watch Part 1 below:

You can check out Amber’s YouTube Channel @ YouTube.com/AmberWallace

She also has a Facebook page @ https://www.facebook.com/AmberSueWallace and you can also get in touch with her by email at AmberSueWallace@gmail.com!

Stay tuned for parts two and three!!

If you haven’t already done so, subscribe to my YouTube Channel to be notified of any future videos, or join my newsletter!

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Member
Kathymac

Most of what I discovered about having the “New patient experience” was through all the You Tube videos and reading the comments, and my own trials, failures and successes. Having found out that my hospital, surgeon and visiting nurses were all contracted to Hollister, I never even knew about other (AND BETTER) companies and products to use – and that they would send different multiple different samples to try until I found one that works for me. When I confronted my visiting nurse, she poo pooed all other products and told me she couldn’t talk about them. Hmmmm. Now that… Read more »

Marcie
Member

Kathy, 2 cents adds up !! We are all paying our dues here.. Never mind a collection of thoughts and mostly understanding’s.  Mysef=lf, it will be 4 years, doing better.  But as I read on, and I experance anything that show up on here, I am ready.  Great blog huh?  Welcome new friend!!!!!!!!!!!!!   

Member
danbh

Being that my rectal cancer was just in the beginning stage, I had no time to really think what do I want to do, especially when I was told I would not need any chemo or radiation, if we went for it quick. With in a few weeks I had my Colostomy, and I set myself up to learn as much as I can about it, and learn to deal with it. My Colostomy is for life time, my rectum was removed, and I am doing great. Amber and Eric did a great job with this video, I have been… Read more »

Kerby
Member

Yes, thank you Eric!!  

Member

Any one who has an ostomy unexpected will have a harder road to travel rather than the patient who has been ill for years. we get used to the idea as it will solve the problem and the pouch is a relieve. My wobble was about 6 months before surgery when the ostomy was talked about! in the end it was a scramble to get it done but I was happy/content a relief from pain and sickness. Healing starts in the mind if we can get our heads around what has happened it will be the first step!! I am pleased… Read more »

Dona
Member

Amber and Eric,Thanks for posting this video chat. It was interesting and I just have a couple of points to make.When we first get our new ostomies I think a lot of us are inundated with ‘stuff’ as you remarked on. Some companies offer very good starter packages ( hollister sent me a good one), some very bad ( one box I got had only an elastic ostomy belt…, another just a small bottle of powder, I had no clue what to do with either of them). One thing we all have to realize especially when we are starting out… Read more »

Kerby
Member

Very well said.  

Marcie
Member

As we are all one here as family, we do find our way..  For me it was finding my way over and over.. but I am now secure with my stoma.. (don’t like it still) but after many try’s and help from Eric etc. I am moving on !!  Just look backwards and see your success !! 

Member

I have to say I have really enjoyed this interview, I can understand to frustration that some people have with a stoma and for me to see people of all ages shapes sizes its encouraging. Also Amber and Eric have also said that they to have had problems and set backs. Please any one feeling upset or down keep battling on it will be worth it.

Member

I wasn’t surprised after surgery about my ostomy but my whole journey of you have cancer, we can’t save your rectum, surgery is booked for two weeks from now, visit with my ostomy nurse, surgery, infection, bag problems, chemo….has been exhausting.  It seems my learning curve right now is trying to find a better bagging system than the Hollister.  The stupid bag gets all fuzzy as I move stool to the bottom. I hate how the Hollister bag gets super wet when I shower with it on…and I have to shower with it on.  My stoma seems to know when… Read more »

Kerby
Member

I’m a 71 year younger Female. My body?  Not worried.  I’m glad I’m alive. I to had a fast diagnosis of rectal cancer. Chem/ Rad. In Hospital, back home. It was a Tornado.. I’m from Oklahoma. A the reading and few days in Hospital dies not prepare us for hands on. I’m like, how can I do this?  Keep this up?  I ran thru every emotion. I live in the United States. I’m lucky to have insurance but was on Medicaid at one time. Medicaid paid for all my expenses, everything. Look up your nearest office and get an appt.… Read more »

Guest
Susan

This was interesting but it would be very informative if you spoke to an Ostomate like me, no YouTube channel just, 64, gained 35 pounds eating foods for thickening output for an Ileostomy and not thin and short waisted and fat rolls and not a perfect body or a perfect Stoma. I feel out of sorts as no one my age who does not look cute and adorable is on a YouTune video channel. I feel lost and like there is no one I can really relate to as most people in their videos are young enough to be a… Read more »