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Pelvic floor question  

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LLNorth
(@llholiday)
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June 15, 2019 12:54 pm  

Has anyone developed pelvic floor issues after colostomy surgery? I had surgery last year and have noticed this discomfort recently, have been referred for a physical therapy assessment.

I love the smell of coffee in the morning. It smells like .... victory.


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LK
 LK
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June 15, 2019 2:23 pm  

LLNorth,  Have you seen your GP about this issue and reminded him of you "original" diagnoses? I would suggest you get this thoroughly checked out if you have not already. All the best.

Linda


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LLNorth
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June 15, 2019 3:35 pm  

Hi LK, The doctor who did the surgery is who made the referral to physical therapy. I had rectal cancer and had my rectum removed. She said this pelvic floor issue is not uncommon, that she really stretched the muscles when she did the surgery, and that physical therapy and exercises should be of help. Have you heard of this?

I love the smell of coffee in the morning. It smells like .... victory.


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LK
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June 15, 2019 6:48 pm  

LLNorth, I have heard of it with a hysterectomy, and bladder removal, but not with an ileostomy...yet. You're the first I have learned this from. Eric will likly know more. Having the Rectum removed is equally as deep a surgery  and it only makes sense it would cause this issue.  I was relieved for you when you said the doctor had referred you and about the removal surgery. Cancer is such a beast. My Dad has had colon cancer, then it advanced to lung, then liver and now bone cancer. Thats some DNA I come from eh! He keeps amazing us  I hope this resolves for you soon and that you come out of it equally as strong.  Stay well and forever healthy. 

Linda


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sjlovestosing
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June 16, 2019 2:42 pm  

Hi LLNorth,

After my total rectal, anus removal, I had issues with getting off the Foley catheter for over a month. Finally, after having no results with my surgeon's office staff, I decided to see a urologist who had me do self-catheterization. Though I was able to stop using a catheter all together in October of last year, I still don't always feel when I have to go. My urologist said that it would take up to a year and a half before my nerves would heal from the operation. Have you seen an urologist? 

Stella


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VeganOstomy
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June 17, 2019 12:29 pm  

I wouldn't be surprised to hear about pelvic floor trouble after a surgery like that - there are quite a few factors that contribute to "pelvic floor dysfunction"

From what I understand, there are several exercises that can be done to strengthen the muscles and stretch out anything that became tight from the surgery. 

 A urologist may be able to offer more advice on specific exercises. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Kerby
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June 19, 2019 9:10 pm  

I haven't been on here in awhile. I came across the issue of Pelvic issues. I had my Ostomy in Nov. 2017....since then, slowly I became more and more incontenent . I finally gave in and saw a Urologist last week. I actually watched as he went thru my Uretha. I have an enlarged hole from bladder to Uretha. I've had lower pelvic pain off and on. I am going to University of Wisconsin for a Bladder lift. Not guaranteed but will help. I need to buy stock in Incontenent supplies. It's been a pain in the Butt. Lol. I had Rectal Cancer and my Butt sewed up. Not sure how this all comes together. I told my Surgeon I think he took one stitch to many.  lol.... I will let you know how this works. Good luck to all... They did mention maybe Radiation didn't help my issue. 


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LLNorth
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June 19, 2019 11:48 pm  

Thank you, everybody. What I have is not incontinence (so far, anyway) but discomfort. Will know more next week. Keeping my fingers crossed.

I love the smell of coffee in the morning. It smells like .... victory.


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Kerby
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June 19, 2019 11:58 pm  

My Doctor offered Physical Therapy but mine was so bad.. We opted for surgery. My Pelvic pain and incontenance was over whelming me. I need help now !!  


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Kerby
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June 20, 2019 1:17 am  

I was just referring to my Pelvic pain and then led into I countenance. 


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dogtalkerer
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June 20, 2019 2:06 pm  

I googled "pelvic floor issues". didn't come up with much.  I've had APR, they took the last 10inches of the larger intestine.  1oyrs ago now.     from time to time I get odd pains in that region, then its gone for weeks.  sometimes the pain feels just like the tumor, but I know all that is gone down there.     thats happened since surgery so I don't worry about it.  they cut a lot of nerve ending down there.   early on I could tell some muscles were tight in that region.

can you explain more? having discomfort doesn't give me much to go on???


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LLNorth
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June 20, 2019 4:38 pm  

Dog - Yes, the discomfort (not really pain) does feel sometimes like the tumor, which is gone. Because of a lab result I will be getting some other tests next week and am uneasy about that. Thank you, everyone. If all this is is leftover phantom discomfort/pain from the surgery I will be so thankful.

I love the smell of coffee in the morning. It smells like .... victory.


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dogtalkerer
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June 21, 2019 10:24 am  

Ok, now that sounds familiar.  also do you sometimes feel constipated?  thats an odd feeling knowing there is nothing down there that can  get constipated.  I read about this before on UOAA forum.  So my assumption is after 10yrs, just an oddity from the resection.  sometimes it feels like there is a golf ball lodged in my butt.   these feelings come and go, normallly lasting only minutes long and not returning for weeks.  I did have an odd occurrence awhile back where it last several days? that could have been stress induced, was having relationship troubles........

but good to get it checked out.  I had no insurance afterwards so the cost would have been prohibitive.


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Kerby
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June 21, 2019 10:44 am  

I was told by my Doctor that they are called Phantom feelings. Like something is there but isn't?. I'm lucky so far. I haven't had any blockages  Things seem to move regular. I use Merilax now and then.  Good luck. 


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LLNorth
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June 23, 2019 5:05 pm  

The physical therapist gave me some exercises to do, and the appointment helped quite a bit towards getting some of those muscles to relax. Will have a scan on Tuesday; this is a little scary but I am keeping busy. 

I love the smell of coffee in the morning. It smells like .... victory.


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LK
 LK
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June 23, 2019 8:57 pm  

Keeping busy is a good plan to help minimize the stress involved when waiting for tests that cause worry and even better when waiting for the results. It has to be scary having gone thru that, but the possibility of another round, would make me keep very busy too. I will keep you in my prayers. I truly hope all is well for you.  I am glad the exercises are working for you. 

Linda


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Awc19
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July 8, 2019 12:14 pm  

I just saw this and I hope you have the answers you were looking for. I too have rectal cancer and the surgeon removed my rectum and reconnected my colon. I am doing my final rounds of chemo now and will have my Ostomy reversed sometime in the fall. The surgeon gave me pelvic floor exercises that I do religiously every day. I had radiation and chemo before surgery which caused my female parts to scar so I do have to use a dialator regularly to keep those parts stretched so I do not have pain. I have not had any ill effects since I was given the exercises to do right from the beginning. I hope the exercises will help you. 

Alice

Alice


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LLNorth
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July 8, 2019 9:16 pm  

Hi Alice, I am doing well. I had a nerve-wracking couple of weeks with a tumor marker reading that had increased, went for a PETSCAN and CATscan, which found a spot next to my tailbone, and then an MRI. What they found was a thinning of bones (I think this is probably from radiation) and fracture in my sacrum but not an indication of recurring cancer, which is such great news! Also had an evaluation of pelvic floor muscles, which seem to be functioning ok, so the pain is probably due to the fracture. How funny that a fracture in my sacrum can make me so happy! Thanks for asking. Ps - my  surgery was first (14 months ago), then they found the cancer was more than they had thought, so had the colostomy/removal of rectum, then to chemo, then  radiation, then more  chemo, finished all that this spring. And now I am just being monitored.  My ostomy is permanent. Best wishes to you with your upcoming surgery. LL

I love the smell of coffee in the morning. It smells like .... victory.


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LK
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July 8, 2019 10:59 pm  

LLNorth, I have been keeping an eye out for you.  You are so brave! It had to be so hard to go thru all that testing again,  knowing well what the end result could have been! I admire your courage greatly, and I am so happy for you! Thankyou for sharing the end results with us. (yup...PIn'd) 

Linda


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sjlovestosing
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July 9, 2019 7:33 am  

Hi LL North,

I am glad to hear that you are not having a recurrence of cancer.  Are you able to eat and drink dairy products or use a calcium citrate/magnesium/vitamin D supplement to help strengthen your bones?

Stella


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