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VickiH
(@vickih)
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August 6, 2019 6:53 pm  

Sorry another question,  it is not so much pain as pressure.  Below my stoma near my groin.  Is this just kind of normal recovery? 3 months in.  Also my surgeon used a peice of my rectum to close one of the surgery areas.  This is the second time it has broke open and diagnosed with ecoli infection. Painful and swollen.  He has already lanced once. My BB surgery is this month as I have come to terms that I should not have a jpouch.  My dr is also concerned that this infection is a flare from my rectum.  Can this peice he placed also continue to flare with crohns?  Should it be removed?  I have preop Friday, what should I ask?


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LK
 LK
(@dlkfiretruck)
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August 6, 2019 7:16 pm  

Hi Vicki! That's a good question. Have you given your gastroenterologist a call  to ask him/her if this is the crohns doing its thing? Also, if you can read Erics entry about his story and how he decided to set up this site, I think he addresses that information in there. Crohns is a rotten disease and can move about at will without permission, nasty stuff all around. Sometimes it can take a couple of days for everyone to catch up here but it does happen. You will get answers. In the mean time because you are questioning something that needs a diagnoses I would suggest you call your doctor or even your stoma nurse to let them know you are questioning this. It never hurts to make a call and ask. Knowledge is power,  especially when used right.

Linda


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LK
 LK
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August 6, 2019 7:41 pm  

Sorry Vicki, I forgot to address your swelling. It took mine just over a year to settle down. It's a cranky thing. Can come and go. Have you had your normal output? Has it slowed down and are you drinking lots of fluids? 

Linda


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IleosTony
(@ileostony)
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August 6, 2019 7:53 pm  

Hi vicki and welcome to this great community.

 

Linda is right. The issue you raise is too medically sensitive for you to get an answer specific to your physiology that you can safely rely on. Anything like that should ultimately come from your doctor. Linda is also right that Crohn's in general can continue in affected portions of your digestive tract that remain and can still bother you in other ways even without gastrointestinal manifestations, such as rheumatoid-type symptoms. Your situation might be something along those lines, but you can only be certain by consulting with your own doctor, especially with regard to a course of action.

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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VickiH
(@vickih)
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Posts: 17
August 6, 2019 8:35 pm  

Thanks all I have my preop Friday soneill be asking many questions.  I just don’t understand why he used the rectum to close a wound.  I have had some issues with my medical providers including putting me 120 mg of pred which could have killed me prior to my surgery.  I am just a bit skeptical of hmo care

i also just want to be sure I don’t have a hernia.  I need to get back to work so if there is an issue I hope they can do all at once.


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IleosTony
(@ileostony)
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August 6, 2019 9:41 pm  

Vicki, we are here to support and encourage you. If you feel comfortable letting us know how these issues are turning out for you, you are most welcome. The key to strength is often an understanding ear, and in this community you can freely avail yourself of many.                                                               

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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LK
 LK
(@dlkfiretruck)
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August 6, 2019 11:40 pm  

@vickih

Perhaps you need a second opinion, you have that right, and I would make a list of questions, record the answers and ask another doctor the same ones. When my hubby had cancer, I re worded voices only on our oncologist aors  always asking permission   bit we he could at the time only do so on my camera. We later played it for our kids to hear for themselves what the doctor said. We also took their questions along to ask too.

Linda


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VeganOstomy
(@veganostomy)
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Posts: 2376
August 7, 2019 10:32 am  

Good luck at your preop, Vicki. I had a lot of little pains after surgery - and there are probably 1001 reasons why you'd have pain, ranging from perfectly normal to disease flare. But I would absolutely want you to ask your surgeon/stoma nurse/GP/or gastroenterologist about these concerns.  

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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