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Going in to have my ileostomy reversed soon!  

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Lil Stomie
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September 27, 2020 2:45 pm  

Hello all,

I haven't posted here in a while! My doctor had told me before my surgery (in early August) to remove my tumor that she was pretty sure she would be able to reverse my colostomy, and I that wouldn't need a temporary ileostomy...well, it didn't happen that way.

But now I am looking forward to having the ileostomy reversed on October 6th! I have forgotten what it feels like to not be wearing a plastic pouch 24/7 lol. I wanted to say thank you to everyone on this site, especially Eric of course, for all the advice and encouragement. Veganostomy is a wonderful resource :-) 

And just because this is something I know only fellow ostomates can relate to, this afternoon I noticed my output was slightly thick, and also a rather bright red. I immediately wondered if I had internal bleeding. Then I thought, I know the skin around my stoma is a little irritated, but would it put out that much blood?! I also racked my brain for what I had eaten today...toast, egg and coffee for breakfast, noodles, carrots and a veggie burger for lunch. Nothing red!

I was wondering if I'd have to call my WOC nurse or doctor when I suddenly remembered the snack I had a couple hours ago: a red popsicle! :roll: :lol: 

Best,

'Lil Stomie

Shel Que


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john68
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September 27, 2020 3:07 pm  

That’s great news, always a pleasure to hear of recovery from an illness 👍

ileostomy 31st August 1994 for Crohns


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SqueakyandLiza
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September 27, 2020 5:33 pm  

That is great news Lil Stomie!!  I am having surgery the same day, but unfortunately not a reversal. 

Did you get a chance to have your girls weekend?  If so, how did it go?

Funny about your popsicle. I had a similar experience about a month ago after eating some red licorice. 😂

Stay in touch and let us know how your reversal is working out. 😀

-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


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VeganOstomy
(@veganostomy)
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September 28, 2020 12:19 pm  

That's wonderful news @lil-stomie !! I wish you all the best! 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Janezeee
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September 28, 2020 12:31 pm  

Was searching for the best lettuce with an ileostomy and ended up here,,also just realized I’m not alone,,got mine a month ago and I’m still in denial ,, I know it saved my life and I’m supposed to embrace it but I’m still struggling with that,,any thoughts or words of wisdom as to how best deal? 


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john68
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September 28, 2020 12:44 pm  

Hi Janezeee, Welcome to the forum. It’s perfectly normal to feel that way!! It’s a big life changing experience. But and yes you will probably have been told this! But it’s gonna seem pretty normal after a while. Don’t let the negativity about an ostomy get to you, don’t think you need to use every product. Take one day at a time ask questions no matter what. And read the info here back to front 👍

ileostomy 31st August 1994 for Crohns


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Lil Stomie
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September 28, 2020 6:19 pm  

@veganostomy

Thanks so much! I truly am grateful for your website and videos. They really have helped me and made me feel less alone on this unexpected journey.

My brother is a caretaker for our uncle who has MS and a colostomy. I was talking him about mine one day and mentioned veganostomy and he said, "Oh, I have watched those videos!" He has found them useful too.

All the best to you!

Sincerely,

'Lil Stomie

Shel Que


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Lil Stomie
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September 28, 2020 6:20 pm  

@john68

Thank you very much. I feel very lucky and grateful!

Shel Que


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Lil Stomie
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September 28, 2020 6:32 pm  

@squeakyandliza

Hi!

I hope your surgery goes well! I will be thinking of you on the dayn

Unfortunately we were not able to do the girls weekend as the event we had tickets for was cancelled due to covid. So we are planning on 2021 now!

And yeah, I'm glad I remembered that I'd had that popsicle and didn't go to the hospital like I was imagining I would have too lol!

I will post here and let you all know how the surgery went. Fingers crossed! They say it's a quick recovery...

Best,

'Lil Stomie

Shel Que


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Janezeee
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September 28, 2020 9:25 pm  
@john68 thank you John,,taking it day by day from here on

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Janezeee
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September 28, 2020 9:36 pm  

@squeakyandliza best of luck with the operation 


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Cyrisse
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September 29, 2020 8:33 am  

Go for it . It can b worrisome I know. Read

all u can about this procedure and I can’t believe everything u read on line but keep the faith.


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SqueakyandLiza
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September 29, 2020 8:48 am  

@janezeee

I know exactly how you feel. The denial goes away with time. You said it saved your life. Me too. Was your ostomy planned?  Mine was not. I had never even heard of an ostomy before getting mine. I think that made me more emotional and in denial about everything. I have had a lot of ups and downs over the last couple years, but I have definitely landed in a good spot of acceptance about it now. I attribute that to time and this website. 

Hang in there Janezee.  Things will get easier and better all the time. 😊

-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


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VeganOstomy
(@veganostomy)
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September 30, 2020 10:45 am  
Posted by: @janezeee

got mine a month ago and I’m still in denial ,, I know it saved my life and I’m supposed to embrace it but I’m still struggling with that,,any thoughts or words of wisdom as to how best deal? 

Welcome. Let yourself grieve, be upset, or whatever else you need to do, and then move forward from there. Nobody asked to be in this position, and it can be difficult sometimes, but your experience will be determined by how you think. It's a process, so don't put too much pressure on how you feel today - things will get better. :) 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Janezeee
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September 30, 2020 12:40 pm  

@squeakyandliza wasn’t planned at all and actually ironic as my journey began with an abdominoplasty as now that the kids are older I thought it was time to beautify my stomach but my procedure wend very bad and I ended up with a hole in my intestine and 3 days post my 2nd surgery the stitches opened internally and apparently they had to do a 3rd emergency surgery and this is when I almost lost my life ,,I was in ccu for 3 weeks and woke up 4 days later to find this bag ,, it felt alive and alien like ,,it was breathing and making all sorts of sounds,,and the first time they changed the bag and I got to see what’s under I was so sad I cried ,,I know I probably sound shallow,,I’m 45 and this is by far the most bizarre experience I’ve ever had,,reading many of the stories here gave me some confidence and today for the first time in 6 weeks I ventured outside my house and went for a walk so thank you all 🙏🏼 xx


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Janezeee
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September 30, 2020 12:50 pm  

@veganostomy thank you for the wise advice,,just knowing that I’m not alone on my journey since few days back made a world of difference in my confidence and in my attitude towards my bag,,hopefully I’ll dwell less and deal better as the days go by thx x


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SqueakyandLiza
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September 30, 2020 1:12 pm  

@janezeee

I think it is very hard when you weren’t planning on the surgery. Many people who get an ostomy see it as a relief to their suffering, and plan on it in advance. Waking up with an unplanned ostomy is a very emotional experience. I’d be lying if I said I hadn’t cried about it several times early on. But it has been quite a while now. So, I agree with Eric, let yourself grieve. It is a huge change. But it does get easier. Hang in there. 😀

-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


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Dona
 Dona
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September 30, 2020 5:29 pm  

Hi Janezee,

It is a big change physically and mentally. And you had to also recover from the surgery , the surprise and just being in the hospital.

It does get better, but you will get there in your own time.

Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


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gord
 gord
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September 30, 2020 10:13 pm  

@janezeee


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gord
 gord
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September 30, 2020 10:18 pm  

I am coming up soon to 50 years with an ileostomy, which was done to save my life. My story will be published in the winter edition of the Ostomy Canada magazine but if anyone would like to read it beforehand, please email me at ghambly91@gmail.com. 


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