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Dressing with an Ostomy: A Clothing Guide for Women  

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Songbringer
(@songbringer)
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May 4, 2018 7:56 pm  

I decided to try something today just to go to the store. I simply grabbed the bottom of the bag near the spout and loosely folded it against me so my clothes would hide the spout, and it was hard to tell I have it on by looks. However I am not sure how this would hold up while sitting. I just thought of something as strange as it may sound, but maybe the really small binder clips just to clamp the bag to itself.

Crohn's Disease Diagnosis/1st emergency resection during a massively widespread blackout-August 14th/2003. Ileostomy since August 2016. Cheated death twice in 2016 during a 3 month hospital stay.


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VeganOstomy
(@veganostomy)
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May 5, 2018 1:32 am  
Posted by: Songbringer

I just thought of something as strange as it may sound, but maybe the really small binder clips just to clamp the bag to itself.

Believe it or not, I've seen this being done. "whatever works", right? 😁

 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Lynette
(@mad_cow26)
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May 6, 2018 12:39 am  

Hi I have a colostomy and a urostomy bag and I wear tights all the time with tunicsor floppy ts. I fold my urostomy bag so it doesnt hang down and I know when it is gettingto full and just go empty it. People have said to me that they wouldnt even know I hadbags unless I told them cause they cant see them.  It is just changing the way I think Ilook when I look down and see them.Lynette


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Marcie
(@shulmjs)
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Posts: 1462
May 6, 2018 1:17 pm  

Bubbles, do the leggings seem to press to much on your pouch of performing an out put? oe of pancaking?  haven't heard  from you-- hope all is well..  :-)

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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Sheila L Heathcote
 Sheila L Heathcote
(@Sheila L Heathcote)
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October 6, 2018 5:52 am  

Hi. I have tried to contact you by email twice but no one ever replied. I live in Spain. DO YOU SHIP TO SPAIN? Customs here seems to be a real pain especially when friends send me things from the US. I either don't recieve the boxes (disappeared) or customs makes me go through five step identification with National ID cards, invoices, etc.
ARE YOUR CLOTHING PRODUCTS AND STOMA CUPS/GUARDS USED BY UROSTOMY PATIENTS?
I can not find any place in Spain that sells the cute undies, bands or swimsuits that you show.
If you do ship to Spain can you tell me the shipping costs?
I hope you can help!!


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VeganOstomy
(@veganostomy)
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October 6, 2018 10:05 am  

Hi Sheila,

I haven't received any emails from you, but I also don't sell or make clothing. You are free to contact manufacturers and suppliers directly, but I don't work for them or ship products. 

Best of luck!

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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john68
(@john68)
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Posts: 1160
October 6, 2018 10:16 am  

Hi Shelia, Have you tried any UK companies.

Comfizz premium support wear

https://www.ostomysecrets.co.uk/ostomysecrets-uk/women/c-29/c-429

Not sure but could be easier than ordering from the U.S.

ileostomy 31st August 1994 for Crohns


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Cindy
 Cindy
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November 5, 2018 6:14 am  

Janis, I feel for you. Let me know what you figure out. Colostomy patient (2015) plus slow-growing double hernias. Ugly, ugly protrusions, like I'm pregnant at 61. Last thing I told my surgeon? "Don't ruin my sex life." Well....it's gone.
Specialist in Boston says even if get surgery to repair, hernias WILL grow back. Should have sued my surgeon. Incredible, inexperienced ass that also cut into my spleen (Cape Cod). 3 days ICU, then 3 weeks of drainage hose from infection spleen, in addition to the pouches. I'm still an emotional mess, after 3-1/2 years. Should have sued, but attorneys? "Nothing we can do unless you are reconnected." Really?


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Erin
 Erin
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November 17, 2018 9:56 pm  

Why would you have to be reconnected to be able to sue? (If I'm understanding you correctly.)
I'm an emotional mess, too. Emergency surgery (lost my colon), then 2 failed reversals. Ileostomy for life now at age 55.


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Mary
 Mary
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February 2, 2019 5:23 pm  

I have a problem with clothing. Pressing on stoma then it flattens and oozes out sides. A lot. Then it needs to be changed. Would maternity pants work?. I am now putting bag on the out side of underwear, not cool though, for leakage. Any ideas.


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VeganOstomy
(@veganostomy)
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Posts: 2034
February 2, 2019 10:23 pm  

Hi Mary, pressure on the stoma can me problematic. If wearing looser clothes (or clothing that stretches around the stoma) isn't an option, I would suggest looking into stoma guards, which can help to keep pressure off of your stoma. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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LLNorth
(@llholiday)
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Posts: 12
February 2, 2019 10:51 pm  

Hi Mary, Some maternity pants work well for me, also leggings a size larger (and with a waistline higher than my stoma). If the leggings feel too big at the waist and like they might fall down I cut a little hole in the front inside of the waistband and then thread a long shoelace through the waistband and tie it at the front, inside the leggings, keeping it above the stoma.

I love the smell of coffee in the morning.


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Kerby
(@lkerby33)
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Posts: 77
February 3, 2019 3:16 am  

I have Hernia surgery coming up from  Nov. 2017 Ostomy ( rectal cancer).  At Thanksgiving my Hernia was bigger than a pregnant Friend. Dr. Said no guarantees. I have to try , it's huge. I go in Feb. 21st


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john68
(@john68)
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Posts: 1160
February 3, 2019 2:19 pm  

From my own experience wear it loose or a little higher. I have a menswear store who know me and my requirements, so they can show me pants with a higher rise. Also getting to know someone who does alterations a great job. For the guys suspenders can be useful. On that subject I have come across “invisible suspenders “ they are worn under your clothes and no one knows. I have not tried but am tempted to try out 😀

 

 

ileostomy 31st August 1994 for Crohns


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