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sjlovestosing
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July 23, 2020 2:50 pm  

@veganostomy

Hi Eric,

I have a question. Last Sunday, I had my first bout with diarrhea since my operation 2 years ago. I drank like crazy that day. On Monday, I had no movement, which I expected, (and kept up the fluids) but then on Tues. at 3 a.m. in the morning I finally had a normal looking, but small amount of feces- I am guessing about 1/4 of the bag. Anyway, I didn't have a movement again until Wednesday afternoon, and that came out in little soft pellets. Today, I still am not doing much. This morning, I started to stop eating for the day. Again, I am drinking plenty of fluids - mostly warm herbal teas and water. My stool seems to be coming and is soft, but not in large amounts. I feel no discomfort, have been active all day, and have been massaging the area. Do you think I may have a partial blockage? I called my ostomy nurse, but have not heard from her yet.

Thanks for your response.

Stella


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john68
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July 23, 2020 3:15 pm  

Hi Stella, you’re symptoms certainly sounds like a blockage, and you have done everything correctly and maybe over it. Also try a warm bath and a good walk can help. Maybe even consider taking off the appliance and letting the stoma move more. Hope you back to normal soon 👍

ileostomy 31st August 1994 for Crohns


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sjlovestosing
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July 23, 2020 7:17 pm  

@john68

Thank you, John for responding. Things are just beginning to move again. I don't know if having diarrhea knocked my intestines for a loop and has caused them to take longer to get back on track or what. It's been an experience. I did do yoga and walked up and down my 600 foot, steep driveway a couple of times. (I also prayed a lot!) :lol: 

God bless!

Stella


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SqueakyandLiza
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July 24, 2020 1:47 am  

@sjlovestosing

Stella, I’m glad things are working themself out and you didn’t need to go to the hospital. I haven’t had a blockage but heard they can be pretty painful. 

Also a sort of random question- with the ostomy, how do you know if you have diarrhea?  I’ve had doctors ask me that and always say no because I wasn’t sure. 😂

-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


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sjlovestosing
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July 24, 2020 10:44 am  

@squeakyandliza

Hi Liza,

I guess it's easier for someone with a colostomy to be able to tell the difference, because our output hasn't changed much in looks. It may be a little looser, but not much. Also, my bag filled very quickly each time I had an attack. Things are still a little slow in getting back to normal, but the output looks about the same - just less of it. I think I have to get all the beneficial flora back in the old gut, so I've been having yogurt smoothies with other nutrients mixed in for good measure. Thanks for your post!

God bless,

Stella


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Mimi
 Mimi
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July 25, 2020 1:26 pm  

Hello fellow ostomates

I am seeking guidance.

I ended up in A&E at the beginning of the week. I had woken up with no output and a swollen stoma. I did not have any pain. I drank loads, massaged by tum, had a warm bath and called the stoma nurse. She said I had done all the right things, and to watch and wait at home for a few more hours.

Mid-morning I decided to go to A&E. I was there for most of the rest of the day, I took off my bag, and my poor stoma was very swollen and only pushing out small rat-poos every 15-30 minutes or so. I had a CT scan and was examined by about 5 different doctors. I was then transferred to hospital where I spent an uncomfortable and worrying night.

In the morning I was seen by a surgeon who carried out an intervention and inserted some enemas . . . it was all very sore and painful. But the stoma started working and I had a good gush of output mid-morning, then nothing again until about 5.00pm. By this time I had not eaten anything for three days. The surgeon said that the blockage was caused by scar tissue narrowing the entrance to the stoma, and that there was nothing I had done to cause the blockage. Which makes me wonder, what can I do to prevent another blockage?

The following day when I was discharged, I was told to eat sloppy food - like ice-cream and soup. I don't have much of an appetite, still feeling sore and tender from the intervention, and am eating very small amounts of soup and porridge, and consequently there are very small amounts of output. I have asked for more guidance on what I can do, but I thought I would ask here, in case anyone has had a similar experience.

I am having a tough time anyway with the cancer and trying to cope with that. Having a functioning stoma and being able to eat a healthy vegan diet was one positive for me, and I am now feeling really upset with the blockage being caused by scar tissue narrowing the entrance to the stoma. Can the scar tissue soften?

Any thoughts? Or has anyone had a similar experience?

With best wishes and thanks.

 

Do all the good you can. By all the means you can. In all the ways you can. In all the places you can. At all the times you can. To all the people you can. As long as ever you can. - John Wesley


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SqueakyandLiza
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July 25, 2020 2:33 pm  

Mimi,

That sounds like a horrible experience. I am so sorry that you had to go through it. It must be frustrating that you had done everything you were supposed to and still had this happen. 

I don’t have firsthand knowledge about blockages, but my opinion would be to keep things as simple as possible to start-maybe smoothies and as you feel more comfortable work you way up to other foods, and focus on chewing things up as much as you can. And see your regular doctor to follow up with what the hospital told you. 

Good Luck Mimi. 

-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


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john68
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July 25, 2020 2:34 pm  

Hi Mimi, You poor pup. I can’t comment on the scar tissue but for myself if I have been sick and of my food or have had to fast it takes my system a few days to get normal again. Just a thought but medication can disrupt output. For a time maybe try over cooking food like veg or blending vegetables into soup so you still getting vitamins. I hope the discomfort passes soon 👍

ileostomy 31st August 1994 for Crohns


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LLNorth
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July 26, 2020 1:27 am  

Mimi, I am so sorry to learn of your ordeal. I wish I had a sure-fire solution for you - I have had to pretty much forego uncooked vegetables, myself, and don’t eat peelings (potato skins, peach skins, grape skins, etc.). Even peppers - red, yellow, or orange - I leave the skin on but cut them very, very small and cook them. This has been adjustment. Please don’t think I am saying “just do this and your problem will be taken care of” - it is only my experience. I have not had a blockage like yours or narrowing caused by scar tissue. I hope that you are feeling better. LL

Colostomy 4/30/18
I love the smell of coffee in the morning. It smells like .... victory.


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SqueakyandLiza
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July 26, 2020 5:32 am  

I second what LL said about eating peels. Anything that is too much of a hassle to peel, I just don’t eat any more (grapes, blueberries, cherries). But a lot of thing are worth the trouble (apples, peaches, tomatoes, cucumber, etc). 

I’m sure it will take a little time to maybe revise how you can eat certain things, if your doctor cannot help with the scar tissue. 

-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


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ChrisandBagpus
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July 26, 2020 7:04 am  

Mimi

To help keep output soft the only thing I know that helps are apple sauce and bananas also others have mentioned marshmallows, I know that the marshmallow plant is soothing as is marigold. So I would drink marigold ( calendula) tea, try linseed finely ground not whole seeds with plenty of liquid and also if you can get proper marshmallow leaf as a tea. these will help to sooth and soften. Question is it scar tissue or is it spasms especially as you had okay output for a while?

I can't see any reason how any these can make it worse and may calm things down.

LLM

Chris

Colostomy Jan 2020


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VeganOstomy
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July 28, 2020 1:37 pm  

@sjlovestosing and @mimi, I'm so sorry for jumping in this late. 

Stella, that sounds like a blockage to me. I hope that things are now better.

Posted by: @mimi

The surgeon said that the blockage was caused by scar tissue narrowing the entrance to the stoma, and that there was nothing I had done to cause the blockage. Which makes me wonder, what can I do to prevent another blockage?

This is definitely a real problem, and not something you could have prevented. I don't have experience with that kind of restriction, but I'm almost certain that I've heard of people who get the narrowing passage dilated to help with this. This might be something to ask your stoma nurse. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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sjlovestosing
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July 28, 2020 3:13 pm  

Hi Mimi,

I am so sorry that you went through all of this.

Eating soups that have been cooked a while and soft or pureed foods may help ease you back. I started with broth, then crackers, then soup. I ate lightly for several days and tried not to eat raw veggies until things started to move. It took me about a week before I was back on track. 

Regarding bananas, rice and applesauce, though they are soft, they tend to bind as well. These were the foods that my children's pediatric nurse told me to give them when they had a bout of diarrhea. I hope this helps. Get well soon.

My prayers are with you,

Stella


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dogtalkerer
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July 29, 2020 12:19 pm  

stella and LL, from your bio's, sounds like you both have colostomys. from everything I've read, blockages seem to be very rare in colostomys.  after 12yrs, I have never had a problem nor have I changed my eating patterns.  I have found grapefruit seeds in the bag.  a rare kernel of corn.   I eat lots of raw veggies and stuff.  I did once find a rather long piece of grass in the bag, along with the stringy stuff from corn on the cobb.

from your description, I'd say your system is/was working as normal.   if you get flushed out and go to eating light, you are not going to have much output.  what goes up, comes down, and,  what goes in, comes out.   little in, little out.   there is a guy over at UOAA that routinely does a colon flush so he can go several days with no output.   I've had what you described happen to me, Taco Bell I think. 

A question for the Ileo's, have you ever had a blockage with no pain? this seemed to be the important point that was missed?

Vegan, you should try to set up this site with a little icon which indicates if people have an ileo, or colo.  from my experience, they are very different in operation and troubles.


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LLNorth
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July 29, 2020 5:10 pm  

@dogtalkerer That is a good idea, identifying the type of ostomy one has - I have just put this information (Colostomy 4/30/2018) on my “signature” line on my profile, so it will show below everything I post.

 

ps - I tend to “baby” my stoma, I know!

Colostomy 4/30/18
I love the smell of coffee in the morning. It smells like .... victory.


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VeganOstomy
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July 30, 2020 12:31 pm  
Posted by: @dogtalkerer

 there is a guy over at UOAA that routinely does a colon flush so he can go several days with no output...

Colonic irrigation is a wonderful option for many colostomates. It had its advantages and disadvantages, but it is definitely worth looking into.

A question for the Ileo's, have you ever had a blockage with no pain? this seemed to be the important point that was missed?

Blockages always seem to produce discomfort, not necessarily pain (which I've also had). As things get blocked up, they still need to move, so there will be pressure and discomfort as the output backs up.

Vegan, you should try to set up this site with a little icon which indicates if people have an ileo, or colo.  from my experience, they are very different in operation and troubles.

I'm probably able to add a field in the user profile where you can select what type of stoma you have, but it wouldn't be obvious if you were just looking at a forum. I'll post the question about whether this would be useful feature to have. 

What I do suggest is that people write whatever relevant info they like in their profile signature, which will show up at the bottom of every post/reply they make.

Same as what @llholiday suggested :) 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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dogtalkerer
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August 5, 2020 11:15 am  

Sorry vegan, I shoulld have explained in more detail.  the guy was doing more of a colonoscopy prep.   he used milk of magnesia.    as far as function, a better solution to irrigation. but I wonder if its really healthy for a once a week routine? 

I looked into irrigation, not as wonderful as first thought.   it takes time and requires more or less a 2 piece bag and other gear-a long drain bag.   as I recall about 1/2hr to 45minutes a day or every other day.  for me, thats too much time wasted.  apparently its not an easy process for I have read about peoples problems in trying to irrrigate. the stoma caps really are not much smaller than a bag. I first assumed they were only maybe 2inches wide. a little bottle cap thing.

i also wonder if constant irrigation is good for the body? hard to think that the lower section of the large intestine only serves as a holding tank.  with 10inches of mine gone, I seem to drink a lot more water.   

 

 

 


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VeganOstomy
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August 5, 2020 11:54 am  

@dogtalkerer I have limited knowledge of colonic irrigation for people who have a colostomy (since I don't have one myself), but I've heard from stoma nurses who say that once patients get over the initial learning curve, it can help to make things far more predictable and easier to manage.

Some benefits include the ability to wear a "stoma cap" instead of a large bag between irrigation sessions. It can also, depending on the natural stool transit time of the person, help to delay output by days - a huge benefit for some. 

Yes, it does take some time and extra equipment, but this could be worth it for many. Of course, if someone has a "slow" colostomy that needs to be emptied every few days, then it may not offer many benefits. 

I'm not aware of any harm for a colostomate to do this, although I would love to see studies on how it could impact our gut flora. Your observation about needing to drink more water doesn't surprise me. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Cathy
 Cathy
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November 30, 2020 8:58 pm  

I have an ileostomy and was told this past April I have a partial blockage and my intestines have ballooned to the size of a golf ball. Yet I’m not a candidate for surgery?? I’ve had 17 intestinal surgeries due to Lupus Mesenteric Vasculitis. I am in pain and throwing up. I can’t eat anything or else it gets stuck. I need to go to the ER and skip what the “Specialist” said. Living in a rural area in SC doctors are limited. Yet the specialist I saw is from MUSC number 1 hospital in SC. But doesn’t mean he is a #1 doctor. I’m aggravated to say the least


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VeganOstomy
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December 1, 2020 4:23 pm  

@Cathy That must be incredibly frustrating and I'm sorry that you've had to experience that. Was there any reason given for you not being a candidate for surgery? 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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