Community Forums

"Mastering Life wit...
 
Notifications
Clear all

"Mastering Life with an Ostomy" Part 3 of 3 (w/video)

6 Posts
4 Users
8 Likes
1,437 Views
VeganOstomy
(@veganostomy)
Admin
Joined: 9 years ago
Posts: 3783
Topic starter  
wpf-cross-image

Here is part three of my presentation, "Mastering Life with an Ostomy".

This one has a lot of tips for healthcare providers and caregivers of ostomates.

More details can be found by clicking on the link below.

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
Dona and john68 reacted
Quote
john68
(@john68)
Joined: 5 years ago
Posts: 1880
 

Hi Eric, This has been a great series, the points raised in this are so true. Why do we get so embarrassed about the subject of sex. Living a normal life with an ostomy means doing every thing other folk do. Again talking and being open avoids a lot of problems. Also like the topic about Medical staff and what to say or not to say around a patient. 3 months after my surgery I had a check up, I was gaining weight feeling great and getting back into living again. I walked into my appointment sat in front of a Doctor who asked how I was getting on. I said I had never felt better in years! He replied "you look like death warmed up" my jaw hit the ground and he really took the wind out of my sails. Long story short I said to the nurse afterwards who said "That Doctor is never happy with any ones progress" As always many thanks for the work behind these trips. :-D 

ileostomy 31st August 1994 for Crohns


   
VeganOstomy and Dona reacted
ReplyQuote
Dona
 Dona
(@dona)
Joined: 6 years ago
Posts: 832
 

Thats the best one yet.

I especially liked the 'reversibility' part. Thats ALL I ever heard. No mention of different outcomes or how much reversibility might depend on the length of colon one might have left after surgery. ( or other factors).

   The 'non tragedy' of the whole thing was very helpful. and something people need to understand about how many of us feel.

No its not the end of the world, just the beginning of a different one with less sickness in it. I also fully embraced my new ostomy. I don't go # 2 anymore...maybe # 3 though.

This whole talk will be of great help to ostomates, their loved ones and hopefully our medical allies. Thanks.

Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
VeganOstomy and john68 reacted
ReplyQuote
VeganOstomy
(@veganostomy)
Admin
Joined: 9 years ago
Posts: 3783
Topic starter  

Thanks, guys :) 

I'm glad I was able to record this presentation! 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
john68 reacted
ReplyQuote
Nancy Avey
 Nancy Avey
(@Nancy Avey)
Joined: 5 years ago
Posts: 6
 

EXCELLENT video as usual. Unfortunately my surgeon did tell me that a reversible could be done after awhile, but when speaking to the surgeon again months after my loop Ileostomy was done, i was told that under the circumstances a reversible would not be done. I agree wholeheartedly with your view that you are told this is possible to keep you from being depressed about the situation. After two and a half years of living with my Ostomy and coming to terms accepting life with it, I do not want to have it reversed. Better the devil you know than not.
If it wasn’t for you and your site and the forums, I couldn’t have managed my Ostomy or accepted it the way I have. You are truly a heroic role model. Thank you for all you do.


   
VeganOstomy reacted
ReplyQuote
VeganOstomy
(@veganostomy)
Admin
Joined: 9 years ago
Posts: 3783
Topic starter  
Posted by: Nancy Avey

Unfortunately my surgeon did tell me that a reversible could be done after awhile, but when speaking to the surgeon again months after my loop Ileostomy was done, i was told that under the circumstances a reversible would not be done.

That's a hard thing to go through. I hope that more surgeons are aware of how these promises impact patients. At the same time, I hope that patients become more aware of any risks and future outcomes, because I truly think that many of us have unrealistic expectations and are only made happy when we hear what we want to hear. 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
ReplyQuote