so an update. I received my resolve adhesive remover today. I used 10 wipes on the area and then a good alcohol swipe after and then washed with soap and water with a good rinse before getting into the shower. I still felt adhesive running down onto my thighs, lower body and feet. Whatever is built up on my skin is really built up bad. One convatec nurse suggested mineral oil at one point and I’m thinking I may just pick some up as I have the time off of work to do it. I can let it sit on there for a bit to loosen things up. 

I can’t edit the above any longer but that was supposed to be Remove adhesive remover wipes not resolve. 

1. I know nobody has any answers for me but I thought I’d post. I got brave and asked the question on another forum. One person said it sounds like something may be causing my barrier to breakdown too fast. I’m kind of agreeing with that. It’s something that’s reacting with the adhesive somehow. Now, it is at least 60% better with this pouch but still there. I tried showering with the pouch on yesterday and then changed it after my shower. When I took it off it was all melted. It had only been on for 24 hours at that time.
   I made another stoma nurse appointment for Friday. I need a new prescription for the supply company to continue giving me supplies anyhow. We have to do that every six months with the insurance. 

   i went as far as quitting my job over the Christmas holiday as well. I started a new one 3 days ago. This is huge for me as my last job the house was horrible!! The smells, just everything. I had been trying yo find a way to get out of there for a while. So on holiday I just bit the bullet and decided to go for it. It’s nice to be working in a nice clean environment again. 

I think I may have picked up some food poisoning the last couple of days. I had lots of watery, very smelly output in which the odor drops I use were not working at all. I been feeling kind of weak as well. I know I need to hydrate. 

Anyhow my sticky dilemma still continues but at a lighter rate. will update later with any new info. 

Hi Chelly, Firstly congratulations on the new job 👍 Ye know that the suggestion that something is causing a faster break down is a good one. Something in your diet! Eric is always advocates keeping a food diary. Maybe try cutting out foods high in acidity. Another question do you have excess to Bravia supplies. The ring is pretty tough. If you don’t have access I have a spare box and would be happy to post for you to try out. No pressure just a suggestion 👍

@john68 hi, yes it could be although my diet is relatively the same as it has always been. The brava rings… you’re a very nice person offering to send them to me however, I’m allergic to the brava brand rings. I get itchy rash and same from eakin. The adapt and cera rings do not give me a rash but they are very sticky so I stopped using them for now thinking maybe they were contributing. It’s almost as if either the adhesive from the wafer is getting in the inside of my pouch or I’m even questioning could be that my output is sticky like glue. 
im sorry to keep going in with this subject. It’s so uncomfortable. I just wanted to keep this updated and in case someone has heard of it before or if in the future someone else had the same issue maybe they can get some answers if I ever find one lol! 
thank you for the congrats on my new job. Now that was a sticky environment over there as well. Glad to be out of it. The houses should be condemned. Very dirty.

So I found another person that had a sticky problem in another forum. Not from the Ostomy bag. They had mesh dissolving and body rejecting possibly. Wasn’t coming from their stoma bag but a swelling and the old incisions a year after their hernia surgery. Explained the same thing that I am though as I’m the sticky stuff running down the legs Getting into cloths and underwear from where it was coming out. So I sit and wonder… COULD I have the same problem? Something with mesh but coming out in my stoma? 
I had already spoke with my surgeons partner right before holiday and they set me for. Ct scan and appointment for the end of January. but I had set that because it felt like my intestines twisted two different occasions. Once bending over in the shower to wash feet and another time in my car switching from home shoes to work shoes. I was in excruciating pain. I only felt this once before I’m my life once when I turned over in bed and it turned out to be an infarction. That was way before any of my surgeries. 
I certainly hope it’s not anything like this, what this other person went through but it’s a possibility. I’m certainly going to mention the sticky. But they saw that persons on a scan also so I am already getting one and they would see that if they is what it might be. 
Please tell me I’m not going crazy because this sticky is driving me mad.

@chelly ... I don't think your going crazy at all!   I think something is going on & you, like I was years ago, but, for my Son are feeling desperate to figure out exactly what is happening to you & why.  There is nothing wrong with that at all ! Hopefully bringing the topic forward will help you find a resolution to your stickiness issues. Ugh! I can't imagine what you go through! 

Congrats on finding a new job & being proactive about finding a resolution. That takes guts even if you don't have them all anymore, lol!  I think its great you reached out & found another person also dealing with the same issues,  no shame or apologies due in that. Your one step closer  to finding a resolution &  Hopefully the CT Scan will help as well.

I've thought about you a lot over the past month & I'm wondering if you've tried what I had to do at one point in my life. When my son was born, he was highly allergic to so many things. I was nursing him & the Pediatrician strongly felt it was still the best for him but with added  temporary changes.  

I was only to drink water for up to a week while continuing to nurse him. During that time his skin, head to toe eczema,  sinuses & breathing started really clearing up.  From there we introduced one food at a time thru me starting with rice while still drinking only water, no juices, or dairy products. I had to document EVERY single thing I ate,  drank & how much,  adding something new every  5 or 7 days depending on how he reacted.   I had to document any reactions HE had thru my breast milk & the severity of it . He was allowed cool  boiled water as well. By doing this we eliminated so many foods & fluids HE was highly allergic to.  When he reacted to something, I had to step back until his reaction cleared then add something else new again. It was a hard & long "experiment" of sorts but it worked. Food was very bland other then salt. No herbs or spices or sauces or gravies. 

You see,  EVERYTHING we eat & drink Shows thru our skin, urine & Output & even our breath.  Everything we put on our skin does as well.  If were allergic or sensitive to a hand cream our hands show us by the condition of our skin so we stop using the offending product.   Our body tells us in so many ways that something is not sitting right with it, we just have to listen.   If you haven't, would you consider trying this emelimination process? 

I'm wondering something else here. Have you tried using whatever products you use & on your stoma side of your  tummy to the other of your tummy without the stoma??   I can't help but wonder if something your eating or drinking & in turn going thru your output or skin is causing this sticky  break down.  

This is one reason why its been suggested a few times to keep a food journal.  It really does help in eliminating foods or products that could possibly be causing this.   I think its worth a try considering this is making you so very uncomfortable.  

Be careful though...  You may want to consider going thru your GP before starting anything like the elimination process just incase your meds or anything else your dealing with will be affected by the process. 

@dlkfiretruck thanks for the support and your suggestions. I had a gp video visit this evening and yet wants me to use cream AGAIN!!!! Every doctors solution I have seen, I think this is doctor number 5 for this issue, has been cream or lotion!! The cream and lotions only make it stickier because they are wet. Nobody is doing blood work or investigating the cause. I feel like the medical system we live in today has a problem. The problem of not listening to what we are saying. I’m being brushed off. I’m looking at their visit notes and they have twisted what I told them so that is why I believe they are not truely listening. I think they are so busy that when we talk their brains are spinning thinking of how many more patients they have waiting in the other 3 rooms that they scheduled for the same time slot that they are only picking up bits and pieces of what we tell them and then trying to peice  that together in what they think we said Lol, ok I got myself started up on this subject. Doctors these days are not the same caring doctors that we knew years ago. Every now and then I will run into one that’s great but it’s like a needle in a haystack to find them. 
I’ve been doing elimination trying to figure out what is causing it. I’m not thinking that it is 100% a medical issue but trying to eliminate that just like everything else. I would think they would at least check my stool and do bloodwork for any disease that could cause this. But it’s not being done. 
this reminds me of the horrible experience I went through before I got my stoma. They dissed me just like this. I had an existing unresolved active ileus diagnosed by their hopsitals ER and was sent to a psychologist. Imagine that? It was at a different hospital but still I feel I’m re- living that horrible experience. 

No I have not tried putting the bag on different part of my body as of yet. I’m actually scared to because of possible double sticky. It’s so uncomfortable and it burns. If I get my nerve up I will. I’m just not ready for the consequences. Yes it may give some clues but oh I’m just so not ready. 
I did speak with another Ostomy nurse from one of the companies and she felt maybe something in my stool is breaking down the adhesive. She says it’s a ph thing and could be my stool breaking it down. My regular stoma department  the nurse wondered if it could be the M9 odor eliminator breaking it down. 
another told me stay away from creams, lotions or anything oily and that those things could break it down to melt. But yet I keep getting told to apply cream to my hands and feet and any other sticky body parts by the doctors. When I tell them it’s going to cause my bag to fall off they get mad because I’m not comfortable with their solution and think I’m over reacting about my bag falling off. The nurse also Said do not heat up the barrier with hair dryers or hot packs when changing into a new one. Just to warm them up with hands before applying. 

Yes the new job had to happen anyhow. The old place was a disaster. It was so filthy there and smelled like a hoarders house with such a strong urine and feces smell even though he’s not a hoarder and does not have incontinence.  The filth was all created by other staff and no boss on sight. So that elimination was an easy decision it was just timing it right so that it would not interfere with finances. But toward the end I did not care if I went broke and just flew the coop. The other staff was also spraying raid bug spray all over his carpet. Yes, the entire carpet. Every inch! I kept telling them that it was dust and not bugs. They had to buy a new vacuumed and that’s all it was. But they continued to spray the stuff because In their mind they believed it’s bugs.. they even sprayed the filter of his air conditioner with it. Believe me if it were bugs I would be the first one to get bit and notice something. But I even questioned those chemicals maybe doing something either to my skin or breaking down the adhesive. I mean it was in the air. In the 4 months that i worked at that particular  house he had 3 fish die as  well. 
amongst  many other things they were doing that could have been a possibility. 
anyhow I’m out of the job now but just need money to replace some things and to get my car cleaned to totally rule out if it was his place. My whole car stinks. Cloths have to be washed several times to get it out. With me being in there for so many hours each work day. It’s like once it gets into your cloths and car it is absolute hell to get the smell out. 

Then  there is an asthma injection I’m on once a month. I have read it can cause skin reactions but seeing nothing about sticky reactions. I’m questioning that too.,

then I’m reading something about pancreas problems can cause sticky stool. Don’t know if my stool is sticky that is causing it but I do have a mass in my pancreas that they watch with a scan once a year. 
it’s defiantly after touching the end of the pouch when emptying that I feel it and in the shower or changing the pouch. So just trying to figure out is it actually coming from inside the pouch or is it something that’s being introduced to the pouch or a medical reason? 

the company from my old pouch that I never had issues with found  a convex pouch that has the same adhesive that I used to use so they are sending me some to try. I think In that will lie the answer. If I have no issues then it was the other pouches. If it’s still going in then there is a serious issue.

im kind of afraid to go on an all water diet for that long as I do dehydrate easily. I’ve had to be put on potassium and magnesium before and even get it through IV. I do get what you’re saying though and it could be very well something like that. I know I do need to hydrate more and eat right. I’ve been drinking only coffee and diet cokes. I bought some Powerade zero today because I feel so guilty. 
Anyhow,  sorry for the long post I guess I just have a lot in my brain.

please feel free to post further suggestions or ideas you might have in this subject. The puzzle continues.  

@chelly  ... Hi Chelly!! I'm So sorry for my response being so delayed. I've been to a lot of medical apts. as of late & with  the anemia its all I can do to muster up energy just to take Missy out to pee!!  Lol! 

I hear you loud & clear!! Your horribly fed up with the medical system & esp. run of the mill resolutions.  I too was once referred to a phychiatrist because a certain specialist was not "hearing" what I was telling him. I went to that Apt. more out of curiosity then anything  & to this day I'm so glad I did as he was the one who referred me to a GI Surgeon in Vancouver B.C. who does think outside the box!  That specialist was the one who diagnosed my gut problems. He also did my complete Cholectomy Ileorectal Anastomsis with a J - Pouch  surgery.  At any rate, I think that a phychiatrist certainly has its place in life. 

Now, when I suggested the water & the food/rice diet... please keep in mind that it was for a child with a head to toe rash & severe asthma & sinus & lung congestion & febrile siezures from infections all from mostly food allergies as we discovered in the end.   I was mostly the one on the diet. I was nursing him.  As the allergens he was allergic to cleared my system first, he cleared up. It took months to get all the answers  & tons of Journaling.   I would hope you may have your answers so much sooner! Lol!   I also think it would give you more ammunition for telling a doctor what you have tried to resolve this as well.

 I don't think you'd need as long of water diet as I did in the start for my son,  maybe 2 or 3 days with your ileostomy & drinking enough to stay hydrated would be very important!!!!  I  "Rest" my guts for a few days from foods after eating the more "regular " foods but my guts do way better on my rabbit food meal plan! Lol!  When I do this, I stay on liquids only adding in soups & working back into foods I can eat.

As far as trying a pouch on the other side of your tummy,  maybe try just a piece of one. I thought I had said that... my apologies if I wasn't clear enough. That would just be horrid if you reacted to a whole one on the other side as well! I can only imagine the level of fear that would emit!  Ugh! I think testing a piece would give a clue if this is from your output or maybe even skin swet. 

I want to check if I covered all your concerns but my phone isn't letting me for some reason.  I think It has a concussion from a bad glass cracking fall! Lol ... So I'll get back to you if I haven't. 

Chelly, let me encourage you...  I think your doing amazing in trying to find out whats wrong & obviously something is wrong thats causing these issues for you. 

Just thinking..  Have you ever just made an apt. with one question in mind & come right out & ASKED a doctor if he could test your stool or blood to see what could possibly be causing these issues??  Don't say sticky, he may loose sight of it being a possible internal issue! Lol!  Start with the stool, a more obvious possible issue.  Have you seen an Allergist? They are ones who tend to think outside the box as well.  All they can say is no.   In my mind if they can't help you then it may be time to reassess if your medical needs are taken seriously & is it time to move on. That said I'm very aware of the mess our medical system is in & how very over worked  & probably stressed our doctors are too.  Its scarey to even have a glimner of thought to find another GP...ugh,  if you even can. But remember, your important!! Something is happening that you need answers too & asking a doctor to help you find out what is wrong...  is actually in their job description.  

I often go to my GP & I do ask him right out  to run certain tests & he has never let me down yet.    You know,  It was my Mom (with dementia) who on a good day over the phone after not seeing her since covid & 6 hours travel apart,  that day... she said my name & asked if my Doctor ever sent me to a blood doctor! I had not thought of that one but when I approached him with being referred to a Hematologist about the Amemia,  he said yes again. The it was the next apt. I got my mammogram results so I know it wasn't a sympathy referal!! Lololol!!! 

Hang in there Chelly!                    

@dlkfiretruck hi, thank you. Yes I may have to find a new GP. She never denied me bloodwork before and has taken it for no reason before. I just give up on doctors. I just wanted to rule out a medical condition so that I can narrow it down. Honestly I would not be wasting my time on this if it were not so bothersome.  Their answers are creams and lotions so that whatever it is can’t stick to me. Go figure?

Update: still experiencing sticky. Some days worse than others. It appears my car is being sabatiged. Yes, sounds crazy but one night I went out to my car to go to work and there was this thick white material all over my windshield. Not in any of the other cars around me either. I turned in the wiper fluid and wipers and it was a thick smearing white mess. It took all of my fluid to get it to where I could at least see and go to work. Anyhow fast forward because the car is so sticky and smelly from my old job I thought I called a detailed to come get the car. I explained what I was experiencing in the car. A few hours later he calls me and says someone is doing this to you and I feel bad for you. He says they found that it appears that someone was dumping an unknown substance down into the air intake under my windshield and it kind of smelled like koolaide or a sugary drink but not quite sure what it is. He said he saw the residue in the windshield that I told him I experienced. Just not as thick. He flushed out the resivoir of the wiper fluid and that system. He said the car smelled of a very strong chemical, body odor and mold. Like my clients house I thought. He then went to explain that when he was driving it he felt the seat seemed wet so he had his guy extract it. He said just out of the 2 front seats they removed about 2 gallons of liquid. Unknown what it is.  Here I had been driving all this time with plastic garbage bags in the seats because it was so sticky and smelled it did feel damp but I had no clue. He said it’s like someone took a hose and sprayed them. I asked about the back seats and he said no nothing really. 
this really has me stressed and devastated  because I hurt no one and help people. I have no enemies that i know of. It could possibly be someone from the old job that may have been mad that I took two of their days at a certain house but I’m no longer there so I’m thinking why would they drive all the way to my home to keep doing this? It’s possible they could have cloned the key fob as one guy deals in cars illegally. So all this has me thinking… I’ve had stoma nurses and some of the companies tell me I could be using something that’s causing my adhesive to melt. My thoughts are what is that strong chemical in my car? Could bring in contact with that be causing this? 
anyhowv I purchased a dash cam for the car issue hoping to catch the ba$t?rds!! I’m making a police report as well since this man found all of this. It just really has me devastated as I never did anything to anyone to deserve this. 

@chelly Wow! What the hell?? I'm glad you got the police involved. That would have been my suggestion had I not read it. For someone to go through all that effort to do something like that to you is pretty crazy, and I hope they find out who's doing it.  Perhaps the police can find out what that unknown liquid is.

For the dash cam to work while the car is off, you likely need to have it wired to your car's battery. If not, then it will only record when the car it turned on.

Feel free to keep us updated here, or if you want to keep it private as things develop, email me. Be safe.

Yes it is crazy and doesn’t even sound real but sadly it is. I am a nice person who helps people and have never done anything to k anyone to deserve this. It has me really rattled that someone is this sick. The owner of the detail shop came to drop the car off today and brought the poor guy that cleaned it with him. The owner said that when he first came to get my car and he drive it to his shop it had numerous different horrible smells in it. Chemical, urine, mold poop etc.. he said when he got to the shop he told the guys he had to leave and go home to shower. Just from driving 15 miles in my car. Now imagine I’ve been driving this thing like this for at least 4 months cuz I had no money to get it cleaned. I thought the smells were from the clients house. The worker who did the work said there was so much fluid he pulled out of my front seats and carpet with the extractor. He said it was thourghly disgusting and black chunks were coming out. Says he never saw anything like this. I’m the wiper resivior in the bottom was a red liquid and sugary like substance that same stuff was in my headlight, my air intake and somewhat in my engine. He said he had to sand it off of my headlight. They flushed the wiper resivoir out 4 times. 
most of the damage in the front seats area and front floor area. They also said the cabin filter was black and sticky. They both said they got sticky stuff all over them from dealing with the car. They went above and beyond and it looks and smells even better than new. The owner said from what I saw someone is really trying to severely hurt you. Some evil spirited person.

he also said that in his 39 years of business he could actually say that my car has been one of the worst he’s ever seen. 
now mind you. This car is a brand new car bought off the lot. I’m the only owner and got it last may. I’m one of the cleanest people you’d ever meet. How could this be? 
it even baffles me that the cabin filter was black and sticky. Cabin filters don’t go that fast. Most people don’t even realize they need changed or know that they have them in their cars. 
I talked  to police today. I’m going to stop there to make the report either today or after work in the morning. I’m going to make a report for sure. 

I can’t even can imagine who this could be but there are only 2 thoughts in my head. Old job or husband. 

Update: so, upon further looking into this. I could not imagine someone wanting to hurt me. I looked up red koolaide like sticky material in car. I come across that antifreeze is red and sticky and if your heater core is leaking it will blow into your cabin. Now about the wiper fluid having it in there and found on the engine. When I got my oil changed they always top off fluids. Could the guy have accidentally filled  with antifreeze instead of wiper fluid? They said they found it in the wiper tank and in the engine and also some on the drivers headlight that was hardened and had to be sanded off. 
anyhow my dealer is taking it in to make sure I have no water leaks leaking into the car and to check this sticky car situation out. I did buy the extra insurance so if it’s something in that nature they will fix it. 
still don’t know what my sticky mess is caused by but my hernia doc says he sees all the skin issues. On my hands, ankles etc. he was like oh my gosh! You’re allergic to something!! Sending me out to derm and allergist again ugggh!!! 
could it be the car?
could it be my Ostomy supplies?could it be something else? 
still don’t know. The saga continues on but my poor skin is suffering. 

Hi Chelly, On the antifreeze, most modern vehicles use coolant, yes some garages may still top up with antifreeze but they shouldn’t as the coolant is there to keep the engine temperature down and antifreeze will hinder that. It may be an idea to get them to check the air conditioner. They can need gassed and when not working properly are pretty unhealthy in a vehicle. Plus if any thing other than water and wiper fluid was in the water bottle it would streak on the windscreen.

@john68 hi, yes it was leaving a residue on the windows and pretty thick. Smearing and streaking. One night it was so thick I took a pic. The detail guy actually flushed it out 4 times and to this day it is still leaving a bit of residue. The dealer went over it with a fine tooth comb. He explained someone could have very well accidentally put antifreeze in the resivoir instead of wiper fluid and said if that is the case, and if you don’t have recirculate on and your pulling outside air in and you use the wiper fluid that  it can most certainly get into the cabin. Antifreeze is red like koolaide in which the detailer saw in there. Antifreeze is sweet smelling like koolaide or maple syrup like the detailer smelled and guess what? It’s sticky! It fits but still no body is sure. I have help with the service manager though. We are trying to figure this out.

I’ve finally gotten help from the hospital I go to. Last week got pink eye. This week my ears clogged. Thought it was wax but doc says no it’s white. Either fungus or skin but he sucked  out a ton load of it. Sent some off to the lab. I ran to dermatology begging to be seen today instead of waiting till April. I got lucky they took me in. They saw my hands, my feet, ankles and thighs. Took a biopsy. Yes I’m finally getting somewhere after months of this affliction. 

Chelly!!!! Yay!! The squeaky wheel gets the grease!!!   I am SO glad you are getting somewhere with better help on this  & relieved for you that Dermatology took you in sooner! Good move on your part. I strongly admire you for hanging in there & continuing to push for investigations. 

It almost sounds like a slow poisoning.  I think I'd be looking into a replacement vehicle & time off work to Heal your poor body!! It has had to be working overtime to handle all the issues you are going through... what a nightmare.  I have to ask...  How are your lungs? It does make me wonder if all this has affected any of your internal organs & I really think it would be understandable if you asked to have an MRI or CT Scan to check on them considering all your skin is going through. All they can say is No but I think they'd be irresponsible if they did. 

I'll keep checking in for results on the testing if you wish to share them here. I can only imagine the relief you must be feeling at this point & I'll keep praying for answers & healing to ALL of this for you. 

This has to be the beginning of the end to it all. Please accept a great big hug from me & do keep being strong. Do not give up hope!! 

@chelly oh my gosh !! I don't know how I missed this post!! I agree, its good to get the Police involved!! Ugh!!

Yes this has been a struggle and at the start of it I was called crazy etc.. due to at the start I only had sticky sensation on my skin. As time went on my skin is now breaking down on my hands, feet , ankles and thighs. Red, swollen and cracking open very deep cuts. Then came the eyes feeling like glue in them and now the ears same sensation. They feel it may be eczema, allergic reaction etc. they can’t explain the sticky though. 
last night I put one of my old convatec durahesive convex pouches just to see what happens. 
when I look up fungal ear infections it comes up contaminated water can cause that. There has been an issue with the sump pump in this building backing up. Although the lab test is not back yet to determine if it’s fungal. 

@LK yes it’s been a struggle and I’ve been wanting to quit work so bad but my bills won’t allow that and I keep soldiering on and it’s not easy. There are so many variables to what could be causing this. It’s mind boggling actually. It has me stressed and I’ve made so many changes trying to see what it is. I feel better that I have help now on checking the car and now on the doctors finally seeing that I’m not nuts and they can see my skin and what it’s doing to it. I have them now checking the medical parts of the puzzle. 
I will surely keep you all posted as to the lab results and outcomes. No problem.