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(@tammy)
Joined: 9 years ago
Posts: 5
Topic starter  

I know I saw a cap type for active stoma during a shower with pouch off?  Cannot seem to find any such appliance on the web now that I definitely have need for one!! Was scared to shower without my pouch until I did! Now it's the best thing ever!  Like so many others, it's  best for me in the morning.  Usually I can even have a cup of coffee and still be ok to get the change in.  Problem is, as most of you know, we don't always have the choice to pick specific times to change without mishaps! When I was brand new to this I know I saw an accessory with a plastic cap that goes around the waist with elastic to hold it on for that uh-oh moment when the stoma is just gonna do it's own thing! (goes on like a clowns nose)   I have had to spend 10-15 minutes in the shower for this uh-oh moment to stop and even if that was ok, now I feel I need to shower again and only after I clean the shower?  Have typed every combo of words I can think of into search sites and come up with pouch covers and aprons to keep everything covered and dry but nothing for just covering the stoma?  I know I saw them but now can't find them?  Help?



   
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VeganOstomy
(@veganostomy)
Admin
Joined: 12 years ago
Posts: 4697
 

Hey Tammy 

Welcome to the forum! 

The product you are looking for is called a stoma cup and C&S Pouch Covers sells them :

http://cspouchcovers.com/shop/products/stoma-cup/

I've never used one nor do I know how well it would work, especially not with an active stoma. 

I suspect that it could get messy with an active stoma, but if you do try it, let us know how it goes! 


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Hi Tammy, Like you love to shower with the pouch off, it seems to be that even when you think yer stoma is sleeping its seems to be that when he senses freedom he wakes up. now as he gets older it will not be as active and the above device will be a great help. Ain,t it always the way when you need something ye can,t find it.


ileostomy 31st August 1994 for Crohns


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 760
 

I've been wanting to go without barrier or bag and shower just been to unsure of what would happen . Chicken I guess .


Proctectomy , Ileostomy , Ulcerative Colitis


   
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FelicityG
(@felicityg)
Joined: 9 years ago
Posts: 257
 

Robert, I take one of my wash cloths I use for cleaning during a change with me when I shower. If Oscar gets all sputty and drippy I catch it with the wash cloth. 

It might be a bit more active because ostomies respond to tickle type stimulation! Showers can kind of tickle. The WOCN told me to tickle or lightly scratch my belly to encourage the stoma to go when I was in the hospital for that blockage.


Crohn's Colitis, Ilieostomy, Proctocolectomy November 2017


   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Just leave the chicken outside, Yep Felicity has a good tip their, its a really great way to have a deep clean round the stoma, just make sure all gel/soap washed away


ileostomy 31st August 1994 for Crohns


   
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Dona
 Dona
(@dona)
Joined: 9 years ago
Posts: 832
 

Yes! Just take ALL that stuff off and go into the shower. It feels wonderful. You probably time your changes to when the stoma is least active, so not much or anything might come out. If it does, so what? Just wash it away ( after all, that pluming connects to the toilet outflow in a couple of feet anyway). Its a great chance to clean and inspect that area. See how the skin is doing. Mine really loves a real shower.

Just keep a dry wash rag nearby to hold over your stoma  for when you get out ( just in case). Makes drying your body a challenge, but so worth it.

Good luck... go for it.


Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
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(@fartsak)
Joined: 8 years ago
Posts: 6
 

I've never showered without my pouch on... intentionally, I should say.  Seeing how it seems to be a positive experience, I may give it a try.  Do you guys find that doing so gets rid of all residue, especially from barrier rings?


My name is Jason, and I have a fart sack.


   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

I don,t use the rings so can,t comment on that, but I feel it give a great base to start on the new wafer


ileostomy 31st August 1994 for Crohns


   
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Dona
 Dona
(@dona)
Joined: 9 years ago
Posts: 832
 

Hi FartSak,

I do use the rings and I able to get the residue off this way. The combo of warm water, non-residue soap ( I use Purpose) a wash cloth and some care. I gently use my nails to kind of scrape away some of the residue..be careful around your stoma as you can damage it and not even feel it. Poor little thing can't fight back. Just be careful and take your time. It LOVES being wet. Good for the skin too.  Maybe it like the fresh air too, for all I know.

When I shower with the bag in place ( when I am not doing a change) I just use two layers of bred bags over all that stuff and hold it in place with one hand. A hand help shower really helps here....you can place it low on the wall.

Good luck.

P.S. I have never addressed anyone like this before! Good one.


Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
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(@tammy)
Joined: 9 years ago
Posts: 5
Topic starter  

I have only had my stoma (wish I could come up with a name?  Taking suggestions) since July '17 but I learned early on that it loves a shower with nothing on!!!!  And yes, I do have a quiet time each morning that typically works but.... there have been times I am forced to change at times when the darn thing just won't stop! As far as it running down the drain.... sometimes it doesn't!  I know most consider me lucky as I usually have very thick output AND I used to have very thick hair!  My hair is thinning to the point I have to keep a screen like drain cover over the drain and this catches what my stoma is excreting!!! Not a pretty site and before I know it, the tub is filling up with water that is not now so clean?  Also, I have had this happen for 15 minutes and I pay a water bill!! One more AND... I am a clean fanatic.  So now, I have had this stuff all over me and I am standing in a tub filling with 'water' as stated above.  As soon as I think it's done, I clean everything again and it starts again!  Now, the shower has to be scrubbed also!  I need the cap!  Only for those times when it just isn't gonna stop!  At least when I can tell it's going to be so active I can get out of the shower!!! For those of you who have never tried the shower without your appliance, I say DO IT!  Oh my gosh, it's such a clean feeling.  For those with ring residue, I used to use them and yes, the shower is so helpful in getting that stuff off.  Still requires a gentle wash cloth but it does help having the warm water stream.  Thanks for the feedback to you all and will let you know Bag Master, what I find!!

Hope you are all having a good weekend!

 



   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 760
 

Felicity thank you for the tip sounds like a good one . My regular change days are Sunday and Thursday so I'm thinking I am gonna try it tomorrow I will try your advice .

Dona also thank you for your input yes I do time my changes and morning is best for me . You are right about the plumbing down the drain and gone ! I have had mine for almost 14 months guess its time . You said you cover yours with bred bags when you aren't changing I use a shower cap on my bag but sometimes it can let a little water in but easy to dry off . Have you ever tried a shower bag ?

Tammy my wife and I are also pretty clean people so I can just picture your situation with the drain blocking and the tub filling up . Ha I am sure its not funny at the time thou . I use Hollister 2 piece equipment and have looked for a cap to take the place of my bag while showering still leaving the barrier on but found nothing . They do have a cap it just sticks on  but it takes the place of everything and wouldn't hold much .

Thank you all for the tips I think tomorrow is gonna be the day !

 John I will try to leave the chicken outside thanks laddie . Lol


Proctectomy , Ileostomy , Ulcerative Colitis


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 760
 

Hey Fartsak welcome to the group . I never have gone without it either always used a shower cap so I'm going to you try it might as well what do we have to lose right ?


Proctectomy , Ileostomy , Ulcerative Colitis


   
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Dona
 Dona
(@dona)
Joined: 9 years ago
Posts: 832
 

Hi Robert, I should try a shower bag or something like that. It does pretty well with two layers of plastic bags. But does get a bit wet on the flange  if I don't concentrate !( hair dryer fixes that up).

Hi Tammy, We ended up just ripping out our large soaking tub and putting in a shower. So no standing in the 'stuff' if it happens to come out during a shower. We picked brown tile too! The Tile downstairs is white, and the glue that washes off sometimes sticks and looks yuckky. 

I just don't do bath soaking anymore ( if I am wet, I am swimming).

Good morning to everyone. Beautiful fall morning in SOCal.

 

 


Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 760
 

Good Morning to you too Dona . Yes it is a beautiful day in So. Cal. this is our time of the year heat is over !!! Yay !!! The bag I use only covers my bag not the barrier so it does get wet but I dab it with a towel and its dry real quick .


Proctectomy , Ileostomy , Ulcerative Colitis


   
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Barbara
(@msbjlee)
Joined: 8 years ago
Posts: 452
 

Hi Fartsak, welcome to a great group.  I have gotten so many helpful tips and tricks that i have lost count. Enjoy yourself here. Showering ... as for me I love having things off and down to bare skin.  As has already been stated drying it off is paramount.  Sometimes I shower with my pouch on, I use Coloplast SansSura Mio appliances. The plastic pouch  does not absorb water so all it take to dry it off is blotting with a good fluffy towel.  Oh and Fartsak, I am pretty new to this too. Stella was born January 27, 2017 so on the downhill side of pushing a year.


Severe rheumatoid arthritis, spondoloarthropy, polymyalgia rhumatica, type 1 diabetic, IBS and finally, emergency diverticulitis surgery, colon removed Stella born Jan. 27, 2017. 6 bouts of c-diff, failed fecal transplant. Complete colonectomy and ileostomy July 30, 2018. ENOUGH!!


   
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FelicityG
(@felicityg)
Joined: 9 years ago
Posts: 257
 

Robert, maybe something like this? https://www.edgepark.com/ostomy/pouching-systems/stoma-caps-and-patches/stoma-caps/hollister-centerpointlock-stoma-cap-4-1-2andquot%3b-with-1-3-4andquot%3b-flange/p/503402 There are different sizes, this is just the one I saw first.

Looks like they come in a box of 25, run somewhere in the 70$ US range if you have to get them out of pocket.


Crohn's Colitis, Ilieostomy, Proctocolectomy November 2017


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 760
 

Felicity thank you for the info I just looked at it I will check into it more . Well I took all the advice that you all have given me on showering . Today was change day for me and I did it ! Took it all off and showered it was a great feeling to have everything off and felt so comfortable . Didn't even have any leaks or nothing I will be doing that more often now . Great tips from all of you thanks ! Fartsak you gotta try it can't believe it took me 14 months to do it .

Oh and hey John I left the chicken outside . Ahhahaha . BTW now I know what gravy rings are how do you say coffee ? Kinda goes with the gravy rings . Lol


Proctectomy , Ileostomy , Ulcerative Colitis


   
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Jattzl
(@jattzl)
Joined: 9 years ago
Posts: 124
 
Posted by: tammy

I know I saw a cap type for active stoma during a shower with pouch off?  Cannot seem to find any such appliance on the web now that I definitely have need for one!! 

Hi Tammy!  Finding a way to shower without the pouch was a process but now I am so happy to have solved it for me as I LOVE my showers with no attachments!  I shower as usual (if any "activity" happens I just ignore it and disinfect the shower after).  Then after I turn off the water I hold a paper towel over stoma and dry around it then attach cap below which I cut to the fit stoma.  It doesn't hold much but all I need is to not have any mess while drying off and before applying new pouch.  It is PERFECT.  I was so happy to stumble upon it.  My ins does not pay for it but worth every penny!  I get them from Edgepark.  (link below).  Good luck!!

https://www.edgepark.com/ostomy/pouching-systems/stoma-caps-and-patches/stoma-caps/coloplast-assura-one-piece-stoma-cap-3-4-to-2-1-4-cut-to-fit-filter/p/622501  

Coloplast Assura® One-Piece Stoma Cap, 3/4" to 2-1/4" Cut-to-Fit, Filter


54 years Type 1 Diabetes, insulin pump, CGM, neurological complications, retinopathy, and autoimmune CIDP. Nerve damage led to ileostomy in 1/2015.


   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Good lad Robert, I was the same at the start until one morning I decided to give it ago. as well as the deep clean its giving our skin that extra time to breath and recover. BUT be warned this new found sense  of freedom can be additive. before you know it you wont be able to drive passed a corn field without striping off and running free. Still no chicken allowed here either! Yep its coffee here as well but as a CULCHIE we refer tea


ileostomy 31st August 1994 for Crohns


   
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