Hey there, Paul! Welcome, and thank you for your introduction.

You are right about urostomy info being hard to come across. It's not as common as colostomy or ileostomy surgery, but it's not rare, either.

What country do you reside in? There may be a specific urostomy association, or at least a major ostomy association, that could help point you to real-time support groups or other resources specific to urostomy care.

I'd love to hear any urostomy-specific tips you've come across along the way, and feel free to post them under their own post, so others can find it more easily 👍 

Hi Paul Welcome to the forum. It’s always great to see and hear from a new member and especially when you can bring knowledge and help from a different angle 😀👍

Hi Paul ... Welcome to VO! I do know there's been one other urostimate here from time to time. Keep checking back incase they show up.  We never know who's reading from the outside edges here! 

My Aunt had a urostomy due to cancer for well over 25 years but passed at age 96! She lived a happy healthy active life. Its nice you stopped in & introduced yourself! Don't be a stranger. 

Hi Paul, glad to meet you.  I am in northern Minnesota, your age, and sometimes attend an ostomy group. There are a couple of guys there with urostomies; they seem to be lunch buddies outside of the group also. A friend of my daughter’s, who is in her late forties, received a urostomy about two years ago. She was so happy about it.

Your experience will be of help and value as other urostomates pop in to the VO website and forums.

LL

Hi Paul. Glad you found us on VO. I am 66, with a colostomy due to cancer, almost 8 years ago. I’m in south western Ontario. The really nice thing about a group like VO is that we’re made up of people from all over the world, with a lot of different perspectives. Everyone has an interest in helping other ostomates - we know from experience that it can be hard to find good information! So, you’re likely to get lots of suggestions on this site, and you’ll be able to provide some suggestions of your own. It’s so important to have the opportunity to connect with people who have been there. Welcome!

Laurie

Thanks all for such a warm welcome :)

Still looking into uro-hernia supports. There's such a wide variety of styles/types available that it's difficult to find a starting point. These appliances seem to run the gamut from strap/belts to all encompassing wraps that go from mid-chest to hips! I'm sorta a "middle of the road" kinda guy, so perhaps a simple lycra band of a specific width will do? Ah well, I'll muddle on reviewing options.

Best to you all

Hi Paul,

Wellocome!

Eric has made a few videos on support belts and wraps. Those are worth checking out to narrow your choices.

You said in your opening post you were dealing with product failure. You can start a new thread about that, maybe people can offer some suggestions to help you out. 

A belated welcome to you Paul. Just now seeing your introduction. I hope you can get your products figured out so you can be comfortable. Us ileostomates have those types of issues when we first get the stoma as well. It’s all trial and error of trying different things.