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Stoma scopes

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Chelly
(@chelly)
Joined: 4 years ago
Posts: 938
Topic starter  

Hi, 

Im in the ER right now because still having some diarrhea on and off and something is off with the smell of my ileostomy poop. I tested negative for stool samples they usually order when I went to the doctor last month. 
ER doc did a ct scan with contrast and a bunch of bloodwork. Waiting in those results now. But she said if nothing they see ion the CT that I will wind up being referred to GI doc. She said with ileostomy that a lot of times they have to scope the stoma to go in and get a sample to find infections. 
Have any of you here ever been stoma scoped? If so are you awake or sedated? Is it done in the office or hospital? And lastly is it painful or dangerous? 



   
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 LK
(@dlkfiretruck)
Joined: 9 years ago
Posts: 1702
 

Hey Chelly... I hope you feel better soon!! Keep us in the loop please.  Have no fear! I have been scoped several times thru my ileostomy.   YES,  they sedate you. I was only mildly tender after bcuz of deep scar tissue. It is done in Hospital here in Canada & all involved were very kind before & after.

I would advise to bring a few pre-cut pouches along bcuz even with a brand new one on they remove it instead of going through the end of the velcro opening.  

Do yourself a favor & if your pouch sticks to you like velcro in some areas ask them to go slowly removing the pouch or it can tear your skin if they just rip it off. 

I had one scope & with all due respect the BOZO ripped  off a new pouch & my skin tore off me like a banana peel in 9 places!!   It was bleeding when I woke up under the incorrectly placed new one &  my 1st sensation on waking was intense burning under the wafer! I was not a happy camper & made a big fuss to any Nurse in recovery willing to look at my 9 areas of ripped off bleeding skin. I was livid! 

I took pictures of the bleeding angry wounds in hospital & as the  healing went to document the time it took to heal.   I also took pics of my bracelet & the info on it so there was no mistaking the procedure date & who dunnit'!!!   When I went back to that Dr. who did the scope we had a mighty  come to Jesus moment along with a picture show!!! 

NOW PLEASE... don't think this is a common accurance bcuz it really is not,  but you need to know this ignorance can happen.  After that any scope I had I  gave my little speach before each scope & then removed the pouch myself to as close to my stoma as I could get. 

When my GP saw the damage at 3 weeks along & the 9 weeks it took to heal changing the pouch as he followed closely   the 3 times a day in the beginning of pouch changes, he was pretty shocked about the carelessness involved. I don't think referrals ever went to that GI again from my GP.  Doctors talk to Doctors so I was counting on a deep cut in the Bozos paycheck!! 

I know I could have sued but its not in my DNA to support lawyers out for blood. 

Just be aware & go prepared to protect that tender skin under your wafer & please don't worry. 


Linda


   
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Chelly
(@chelly)
Joined: 4 years ago
Posts: 938
Topic starter  

@dlkfiretruck thank you so much for the wealth of information just in case I have to get this done. Oh I would be so upset if they ripped my skin like that. I will defiantly remember what you told me. That sounds like it was a painful and expensive experience and all do to negligence.



   
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VeganOstomy
(@veganostomy)
Admin
Joined: 12 years ago
Posts: 4746
 

Posted by: @chelly

Have any of you here ever been stoma scoped? If so are you awake or sedated? Is it done in the office or hospital? And lastly is it painful or dangerous? 

Yes. I chose to be awake, but was offered sedation. I had it done at a hospital, since that's where my GI doc worked out of. I did have pain that felt like bad gas pains, but nothing crazy painful.

There are risks from having the scope, even through the bum, but the risks are outweighed by the benefits of this type of exam.

Good luck! I hope you get some answers.


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Chelly
(@chelly)
Joined: 4 years ago
Posts: 938
Topic starter  

@veganostomy thank you for the info. Very helpful as well.



   
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