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VeganOstomy
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March 25, 2019 12:48 pm  

Hey guys, I wanted to briefly share an experience I had over the weekend that left me a little shook up. I may write a longer post and followup about it, but I don't have that much time available at the moment. 

I was moving heavy wood from the backyard over the weekend - I was wearing a hernia prevention belt because I knew the lifting wouldn't be good for my stoma. 

After moving several of these logs, I could feel pressure building at my stoma, which I just assumed were my abdominal muscles pressing against the hernia support belt, so I didn't think anything of it. 

Several minutes later, however, I had some pains in my lower right abdomen - almost like a cramp, and decided to come back inside to rest. 

When I removed my jacket, I placed my hand over my ostomy bag to see if it needed to be emptied and I could feel a large mass in there - oh, crap! I knew immediately that something was wrong and because I was wearing a clear bag, I removed my pouch cover and checked it out. 

My stoma had prolapsed - probably about four inches or so. This freaked me out, no doubt, but I had to keep cool and get things under control. 

One thing I do remember about prolapsed stomas is that sugar can cause it to suck back in. So I filled up a quarter cup of sugar and headed to the bathroom. 

I laid on the floor (on my back) and waited to see if my stoma would retract on its own - incredibly, it went back in within a matter of a minute or so (I recorded it on video), and now it seems to be fine for the last few days. 

This was an unsettling experience, but I learned a lot from it. As I said, I may likely write about this or make a video at some point, but I can proudly say that I've earned one more experience point on this journey!

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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john68
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March 25, 2019 1:09 pm  

Hi Eric, Woh yer heart must have been in yer mouth. I hope all settles down and it’s not a problem. Take care lad.💪👍

ileostomy 31st August 1994 for Crohns


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VeganOstomy
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March 25, 2019 3:11 pm  
Posted by: john68

Hi Eric, Woh yer heart must have been in yer mouth. I hope all settles down and it’s not a problem. Take care lad.💪👍

It was quite unnerving for sure - but I grasped onto reality and calmed down quickly so I didn't make things worse by panicking. 

I've definitely lifted heavier things, and over multiple days, but these were awkward so I was not using "best practices". 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Dona
 Dona
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March 25, 2019 6:37 pm  

Thanks for sharing your experience, Eric. It sounds scary, but good to know what to do.. mainly not panic.

So, you are pretty sure it was brought on by the heavy lifting?

Anyway, happy it resolved.

Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


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sjlovestosing
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March 25, 2019 7:28 pm  

Hi Eric,

I am so sorry to hear of your experience. It does sound scary, but you handled it well. Hopefully, it won't happen again!

God Bless!

Stella


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LLNorth
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March 25, 2019 9:20 pm  

Wow, that was fast thinking! Glad it’s over!

I love the smell of coffee in the morning. It smells like .... victory.


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LK
 LK
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March 26, 2019 3:25 am  

Yes Eric, think you so much for sharing your experience, if I can have a vote, I would vote on the side of the video please.  It would be good to see the stoma and how you placed the sugar on it. I have seen or read something before on the sugar treatment, some time ago, when my stoma thought it would take a little walk and have some of its family along too. I had just vacuumed and washed all the floors and then went to empty the pouch because it felt like thicker output in it. Imagine my surprise when I saw Rose and the immediate family! I know that I had been told no heavy lifting after surgery, but no one told me I should not vacuum and wash floors and I could not find any volunteers, so I did. I did not know about the sugar treatment at that time. I reasoned out that there was not pain and her colour was good as usual so I did lay down and  took it easy for about two days and about a day or so later, it did return to its normal size. I know I do not have to explain this, but I was so relieved!!! 

I am so glad this turned out to be a good thing for you, and you had a right to feel the any alarm and dread you may have felt! Be well forever.

Linda

Linda


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VeganOstomy
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March 26, 2019 11:10 am  
Posted by: Dona

So, you are pretty sure it was brought on by the heavy lifting?

Absolutely - 100%. If I push out with my abdomen

Posted by: LK

It would be good to see the stoma and how you placed the sugar on it.

Just to clarify - I had the sugar handy, but I didn't need to use it. Just laying on my back was enough to cause my stoma to go back in. If that didn't work, I would have tried the sugar trick. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Fred
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March 26, 2019 11:46 am  

Eric,

I very much appreciate your posting this experience. You didn't panic as I probably would and your cool headed action led to a successful solution.  Thank you. Fred


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Bill Bell
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March 26, 2019 12:38 pm  

Glad that all is well.  I didn't know about the sugar.  Looked it up and here is a web site that discusses the sugar treatment with photos.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3604428/

Bill
Ulcerative Colitis... Ileostomy June 2016


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Pavo
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March 26, 2019 4:04 pm  

Eric, I am glad that everything turn out for the best and thank you very much for sharing this experience and the way you handled it. It is definitely worth writing about this topic.

Thank you


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VeganOstomy
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March 27, 2019 1:07 pm  
Posted by: Bill Bell

Glad that all is well.  I didn't know about the sugar.  Looked it up and here is a web site that discusses the sugar treatment with photos.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3604428/

Yeah, I learned about it through a friend's experience and it's always come to mind when I hear of prolapsed stomas. Pretty cool to see a low-tech, inexpensive, and widely available treatment option. 

 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Chris
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March 28, 2019 12:37 am  

So.. does that mean you are now st constant risk of prolapse? Or is this a one time deal kind of thing?


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sjlovestosing
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March 28, 2019 8:30 am  

Eric,

I was reminded by my husband that my surgeon had the nurses put sugar on my stoma after surgery to bring down the swelling. It's something that he's done for a while.

Stella


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LK
 LK
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March 28, 2019 9:00 am  

Bill Bell...Thanks  to you and Eric for posting the sites where the sugar treatment was used. When it happened to me, I did not know what it was called, but I did say that I thought my stoma fell out, and that was exactly what it had done. It was not painful to me, and had come out about 6 inches.  Like Eric, laying down was what helped it rest enough to go back in.  By reading the article, it sounds like the percentage of prolapse patients is 2-26%.  It is wise to avoid heavy lifting if you have an ostomy anyways, and as for me I was only cleaning my floors but I used a mop.  I have avoided doing so since, and it says that a risk of a repeat can happen.  It also sounds like they used to rush the patient into surgery to fix the issue. From what I was told, it can repeat easier the next time.  Repeats would require a planned surgery if the stoma is producing its liquids all normally and the colour is good,  but they also specify bed rest as soon as it is noticed. If Its colours and fluids change that can be dangerous and surgery is required. My stoma has turned deep blue and black a few times in one week, this is how my heat condition showed itself. The body is capable of amazing things and these are all warning systems to us their owners, just the same way pain can be telling you that something is wrong with your body. Regardless as to whether the bowel retracted or not, it is best to keep and eye on the colours and fluid production, and as always, this can be serious stuff, so always tell your doctor about it after it happens, but if the colour and fluids are not good, get your stoma to the hospital stat.

Linda


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VeganOstomy
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March 29, 2019 1:33 pm  
Posted by: Chris

So.. does that mean you are now st constant risk of prolapse? Or is this a one time deal kind of thing?

From what I understand - yes, I'm more at risk for this happening again. 

I'm honestly glad that it was a prolapse and not a hernia - those don't "go away" as easily as this did, so I consider myself lucky. I really do have to be more mindful when lifting things.

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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danbh
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March 29, 2019 4:43 pm  

Hi Eric,

Sorry to hear about your prolapse. After having two of those, I can tell you it is not dangerous or anything like that, it is however uncomfortable, specially when you need to change the wafer, being that in order to measure the Stoma in its normal size you need to do it while laying down, giving the Stoma time to return to the hole it crawled out from. Please do yourself a favor... DO NOT use the sugar trick, my surgeon warned me that sugar though it would do the trick, sometimes may cause the Stoma to get stuck outside, then it is an emergency, and time to go to the ER. One more thing I was told was No lifting anything heavier then 20 LB, and this is for life time, the lifting of heavy items will cause this to happen again, I know I did that.

I hope you have no more of these, and take care of yourself.

Dan

 


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LK
 LK
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March 29, 2019 6:28 pm  

Danbh...Okay, on that note, of suggesting we not use the sugar,  does anyone know what the sugar is supposed to do to actually make it safe to use, and make the stoma retract?   Also, just a point here, when sugar is wet or warmed it will melt, and continue to do so as long as it is wet.  Stomas produce a fluid, we all know that. Our bodies are not warm enough to melt sugar into the caramel or toffee stage as it does when heated on the stove, so I have to ask,  how could it make a stoma stuck? Any takers on this question?

Linda

Linda


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LK
 LK
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March 29, 2019 6:38 pm  

Danbh...just for the record, it can be dangerous to have a prolapse if the colour is bad and it is dry. Time to go to emergency.  Blue bowel is on its way to turning black and tissues can die and that leads to other dangerous situations. If in doubt, check it out.

Linda


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danbh
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March 30, 2019 10:21 am  

Linda: Yes, if the Stoma changes color, stop functioning correctly, or gets dry it is dangerous, but that goes even with no prolapse. Any changes as such should be taken care of right away.

As for what the sugar does in a prolapse situation, here is a note from a Stoma nurse in Norfolk & Norwich Univercity hospital (NHS):

"The sugar works by drawing out fluid from the swollen stoma so helping to reduce the size. Be aware that as the sugar draws fluid out of the stoma you will end up with a syrupy fluid in the bag."

The best way to get the stoma to retract back to normal, and the easiest is here by the same above nurse, and this is what I did in the two times I had a prolapse:

" Lay flat so that your abdominal pressure is reduced. Lie with your head back, looking up at the ceiling. If you are trying to look at what you are doing you will be straining your abdominal muscles and hence increasing your abdominal pressure" - this worked for me every time, while waiting for the revision surgery.

I do not have an answer as to how can a sugar get the Stoma stuck, however my information comes from my sergeon whom I totally trust, and hid her advise to the letter. She never failed me.

Here is one more thing regarding prolapse:

"A prolapsed stoma can often become swollen If the stoma remains prolapsed for long periods of time then there is more risk that it will become swollen. This is because when the stoma hangs down, fluid pools at the tip of the stoma and causes it to become swollen. It may then be more difficult at the end of the day for the stoma to be reduced back to its normal size."

Dan

 


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