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Looking for info on Gattex medication  

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tiffanyhod
(@tiffanyhod)
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August 2, 2018 7:21 pm  

Hello.  I'm looking online for reviews on Gattex medication.  My mother's doctors are really pushing hard for her to take this medication and I can't find an reviews from actual patients.  The GI specialist has only had 3 patients ever take this medication.  I feel like it's too new and there is not enough reviews yet.  My mother has had an ostomy for 3 years.  She is losing too much weight too quickly and is malnourished due to short bowel syndrome.  Can anyone please give me advise regarding this medication?  Thank you for your time.


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Bubbles
(@bubbles)
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August 3, 2018 8:35 am  

A member named Marcie is taking this . Maybe you can Private message her . 


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VeganOstomy
(@veganostomy)
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August 3, 2018 12:27 pm  

Hi Tiffany,

We did have a thread on Gattex that might give you some insight: https://www.veganostomy.ca/community/ibd-forum-treatment-options/gattex-for-enhanced-nutrient-absorption/

I really don't know any other patients using Gattex, although there could be many reasons why. 

Good luck to you and your mother. I would trust our doctor's advice. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Marcie
(@shulmjs)
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Posts: 1445
August 3, 2018 3:56 pm  

Hi Tiffany-  I just sent u a p.m. message on this blog.  It (Gattex) has worked for me..  I am 69 yrs. - Shire company that provides this medication has a great team - will guide u through each step - even getting payment help-  Your Dr. that is in charge of you and this medication should be a great  help also-!!  Mine is.  Easy injection.. As soon as I was approved, The first injection came at about or less than 2 weeks.  The nurse will help u through the first one.  The nurse comes every week for 4-6.. wks. best Marcie..

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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Marcie
(@shulmjs)
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Posts: 1445
August 3, 2018 4:22 pm  

There are many many people on this Gattex.  And it is saving/making happier lives.. IT'S also a new medication.. That may be why people haven't heard of it.  IF your sick and your GI thinks this may help this is the only way you know about it.  This is not a over the counter type med.  Do we all know every  drug out there? Nope. But it is catching on fast and working well for many!! But as any special drug-get the questions and fears over with and feel comfortable with ANY new/old drug.  I choose it for a quality life. 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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Marcie
(@shulmjs)
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Posts: 1445
August 3, 2018 4:51 pm  

About Gattex, Your Doctor and you are a team!!  That is a must with this medication.  You must report anything u feel - We will discuss those later-- else where..

This is a 3 way team!!  "Sire company (their nurses-rep's. anyone to help you--also Dr. speaks to them about you if any reports u make) " AND MOSTLY YOU !! You the patient is the most important person of this team.  I have been taken off it a few times.  As any medication, there are side affects.  Learn them--ask about them.. For me as I took over a year to decide-I found that 3/4 t.v. ads of medications have the same or worse side affects and some less.  YOU are the boss of accepting to go on this.  No one should PUSH you-- may seem like it-- but?  It has helped me.  Less liquid out put within 2 weeks, and I have gained 10,pounds. I now have some fighting weight :-) And enjoying eating everything I enjoy!! --go to ******Gattex support group on line-********** I am there also-, big help!! Kinda of a blog like this, wish I found that also before I started Gattex.  IT really helps !! And I wish I found this blog when I got my stoma.. So much learning on and for both of us between the two!!! Best to your mom.. she will do well I hope with her and her Dr. They have to work together.. !!!!!!!!! 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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Marcie
(@shulmjs)
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Posts: 1445
August 3, 2018 6:11 pm  

Thanks Bubbles.  :-)  I have P.M. her 2 times as she to me.  Hopefully I have them both on the right rack-- and another support team of this Gattex for them.  This is an area that is so difficult to live with along with being an ostomate.  Mostly it is common.. And then again for a short time ONLY.  then again? ?????  I waited it out until I was sure that I wanted this med. My choice,  Not selling it . but it has helped me--but I see others worse off than me...……….  sad...……  But as any drug even if it is an older drug?   Your body is a temple-- everyone acts differently to "it."   this is why you read on the label of your medications..... do not give to others...………  BUT IT IS MADE FROM NON ANIMAL  products.  well, I gave it a whirl...……..  and I feel better..  got other issues???  maybe???? but I am doing well and my husband says that I look rather well. "his pretty girl"  still after all these years?  such a grand man I have huh?  But I see it also as he pointed it out to me in the mirror-  your face Marcie-is fuller!!  I got the help that I needed...………………….. (and I hate the mirror)  I guess it remindes  me of my Nellie = stoma.  got a ways to go huh? 

 

Thank You Bubbles for all of your support during this and the past many months.  Your a gem of a different kind.  And that is a great GEM!!  My Bubbles over whelms me!!!!! 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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Blewis041815
(@blewis041815)
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Joined: 4 months ago
Posts: 1
August 8, 2018 10:18 pm  

I have been on Gattex for almost 3 years. If you still have questions please feel free to message me.


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