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glenn.giroir
(@glenn-giroir)
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July 30, 2020 9:10 pm  

Just a random thought.  I never thought I'd ever be so well acquainted with what comes out of my body.  It's kind of like, "Well, hello there.  How've you been?"  Sorry, but my mind is a strange place sometimes.  😆


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SqueakyandLiza
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July 31, 2020 1:13 am  

I think a lot of our minds are in strange places these days. But I agree with you about this whole new awareness. It is a little odd. 🙃


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VeganOstomy
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July 31, 2020 2:45 pm  

LOL. I had a child-like fascination with what came out of my stoma for several years after surgery - I'm not sure I'm over it yet, and we're almost on year 7 =) 


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rosepritchard
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July 31, 2020 5:47 pm  

Hi all

Well I thought it was just me..... Quite happy to watch it for a while trying to anticipate what's going to be coming out. And of course I do like the clear bags! Maybe not such a good idea though to talk about all this to anyone other than another ostomate......


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glenn.giroir
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August 1, 2020 1:10 am  

I find myself keeping my hand on top of my stoma at times so that I can feel the action down there.  I do it a lot when watching TV without even thinking about it. And while hiking, or driving, or anything that is kind of mindless.  Sometimes at school I have to laugh to myself when I do that, watching my students work, thinking to myself, "Don't mind me.  I'm just sitting here monitoring the output of my small intestine."  

 


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LK
 LK
(@dlkfiretruck)
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August 1, 2020 4:09 am  

Too funny...not to worry folks...this too shall pass, lol, 💩🙈🙉🙊...eventually I've been  told! Eleven years still holding & still checking but I keep such a close connection to avoid blockages and making sure what went in DOES come out! I call it trauma experience & avoidance! We are parenting &  protecting a living,  active, moody, foriegn  object to most humans so we are naturally protective. Have you all named yours yet?  Mine is Rose, a beautiful thing, sometimes volcanic, sometimes not so much! Lol! 


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sjlovestosing
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August 1, 2020 1:24 pm  

It's funny, but I don't always have any sensation when I empty out. When Sometimesmy bag starts to get heavy, then I notice! 😂Sometimes, I get phantom feelings in the bum when I am about to have output, but that's becoming less and noticable.

Stella


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glenn.giroir
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August 1, 2020 6:00 pm  

@sjlovestosing

I often get the phantom feelings after a meal.  It's so weird.  I want to run to the bathroom, then realize that I don't have to do anything.  I've had several dreams that I am doing #2 the old way.  I'm always so confused in my dream as to how I'd doing it.  The mind is such a crazy and amazing thing.  

 


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glenn.giroir
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August 1, 2020 10:10 pm  

The phantom urges remind me of when I was in the hospital after my surgery, my Dr had a good sense of humor.  He came in one time to check on me.  He was sitting there with his charts.  I told him that the stoma was working well, and I was having good output, but I was concerned because I had not had a bowel movement since I was there.  He just about dropped his chart, looked at me with a confused look, and said, "I thought we had discussed what this surgery would do.  You can't go down there anymore."  I looked surprised and said, "WHAT??"  Then I started laughing.  He was pretty relieved.  Then on another visit I asked him when I would be able to be reconnected (I had a proctocollectomy with a permanent ileostomy).  He started to stutter, then said, "You're messing with me again, right?" I think he was glad to see me go.  He did get me back, though.  During one visit, I had a rash near my abdominal incision.  He asked if I was allergic to anything.  I told him that I was allergic to bananas.  He said, "Well that explains it.  I must have dropped some banana on your abdomen during your surgery when I was eating breakfast."


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SqueakyandLiza
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August 1, 2020 10:27 pm  

@glenn-giroir

That is really funny. It is great having a doctor with a good sense of humor. Since i’ve had my wound so long, we have had several follow ups with the surgeons assistant and everyone in their office knows us. We were going in for a follow up one time and our favorite nurse came in and asked us to help them play a trick on Tim (the assistant). Apparently the surgeon had started watching Breaking Bad and was always asking Tim if he had seen it yet. So they asked us to ask him if he had seen it, and record his response. So he came in and was chatting with us for a few minutes. Then he put on his gloves and said, how is your wound doing? I responded, well, have you ever seen Breaking Bad? He cracked up and said not you guys too!  He said he had been wondering why my husband was so focused on his phone (he was the one recording). They nurses loved it. It was such a good reaction.  I guess they wanted the video for something they were doing for his birthday. 🤣🤣

I also cracked up my GI the first time I met him, but by accident. It was not too long after I got out of the hospital. The surgeon had told us he thought it was Crohn’s, so the GI was telling us he wanted to do a scope of the stoma and then look at the colon. I looked at him in all seriousness and asked him, they kept it?????  He must have laughed at that for a full minute.  😂


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