I have heard of that happening, and hopefully your doctor can confirm it and get you some treatment! Praying for a quick recovery.

Posted by: @sjlovestosing

One thing that was suggested was that I may have adhesions on my spine from my ostomy/rectal surgery. Has any one who had similar surgery had this experience?

I'm sorry that you are in pain :(

Can you refresh my memory? When did you have your surgery? 

Adhesions (i.e. scar tissue) can be pretty common after surgery like this, and it should get better over time.

However, in rare instances, I've known people who've needed to get corrective surgery because of adhesions creating issues. The caveat is that corrective surgery can also result in adhesions, so this option should be discussed ahead of time with your surgeon. 

@veganostomy

Hi Eric, 

I had my surgery four years ago. I have been exploring options for spinal relief, but am not happy with all the side effects that might happen. Pain killers are out as I usually don't do well with them, spinal I injections have side effects that are very scary. Surgery is out, since I am dealing with stage 4 cancer. Currently, I am experimenting with CBD oil that I apply directly on the painful area. I only just started with that, so I'll have to let you know how it goes.

I am finally seeing my doctor tomorrow, because she suddenly had to cancel all her appointments last week.

Thanks for your response.

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@goatherder 

Thank you for your kind words and prayers. They are greatly appreciated! I have been praying as well.

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@sjlovestosing Stella, I’m so sorry that you’re having pain. I have heard good things about CBD oil for nerve pain, so let’s hope that it helps you. What about laparoscopic surgery? Less intrusive, so less chance of adding to the adhesions. I hope you will get some answers tomorrow.?

Laurie

@tigerlily

Hello Laurie,

Thank you for your encouragement. I am hoping that my doctor will have some suggestions and help.

God bless,.

Stella

@sjlovestosing I should also have mentioned alternate pain meds. Some anti-depressants are effective at blocking the message of pain to the brain. I was on Nortriptylene for about a year for that very purpose. It was helpful - it didn’t take the pain away entirely, but it did blunt it somewhat. I was seeing a pain specialist doctor at the cancer clinic for this. Is that a possibility for you? 

Laurie

@tigerlily 

I'm afraid pain meds are out of the question. I do not respond well to them as they make me very nauseous. Thanks for the recommendation, though. Also, I prefer alternative medicine to conventional meds. I use pulsatilla for my depression when it hits.

Stella

Stella, what about mindfulness meditation? Here’s a link to what they’re doing at Vanderbilt U on mindfulness for pain control. 

https://discover.vumc.org/2022/02/fight-flight-or-focus-on-your-breath/

My husband and I took a mindfulness meditation course many years ago; not for pain, but for general relaxation techniques. We both liked it, and continue to use some of the techniques we learned. I can see how it could be used in pain control too. 

Laurie

Stella, I hope that you are feeling better. LL

@sjlovestosing 

when I first found out about my tumor a friend recommended highly concentrated THC called Rick Simpson oil. He said that it had many properties to shrink tumors, etc. it comes in a syringe and is almost like a tar consistency.  The dosage Is the size of a grain of rice. It’s recommended three times a day, but it is also something that could be taken less - I would certainly never want to take it at work, so nights would be the only way for me.

We ordered some to help with chemo and then I never ended up needing it as I was sent straight to a resection surgery. 

once im off my pain meds I may try it at night to help with sleep and as a preventative for the possibility of another tumor showing up. 

im not sure that it really does what is claimed, but there is research out there. 

@tigerlily 

Thank you. I will definitely check it out!

Stella

@elledubuque 

Thank you so much. I will definitely check it out. I saw my doctor Tuesday, and I have an appointment to have more blood work and an x-ray for next week.

Stella