Hello, Thank you all for your inputs to my pre surgery questions. My surgery went well by all accounts, coming up on 2 weeks post surgery and so far no issues. Came home early on day 4 post surgery. Pain is very manageable, getting the hang of the bag, learning to eat more than I ever have and actually chew my food. Not loving the post surgery daily shots, but they are temporary so I will deal with them. Biggest challenge is not sitting down. My surgeon told me that if the perineum does not heal well / if there are issues then it can be difficult to repair so I am following his instructions to a tee. Waking daily and doing light chores is keeping me from sleeping all day. Had a close call with Covid on the recovery floor of the hospital. Fortunately my medical team all tested negative and I did not catch it, can not even imagine what that would have been like. One thing I recommend if you have the surgery on your perineum, they have an inflatable mattress pad with baffles for the bed in the hospital but you have to ask for it. What a huge difference it made, and I brought it and an inflatable pillow also with baffles home. It enables me to sleep on my back which for me is huge. Also there was at my hospital and I would guess most hospitals in the states a Social Care person who came to make sure I have all the support I needed. She made sure I was discharged early in the morning and arrange the taxi I required for the first leg of my trip home. These people can be very helpful so don't hesitate to ask about them if you need help with something. Have a good day. cygo Hi and it’s really great to hear all has went well. As part of this forum please don’t hesitate to ask questions. Best wishes for a speedy recovery 👍👍 ileostomy 31st August 1994 for Crohns I was recently in emergency a week ago last Friday and Sunday my angry and was super Inflamed it was 2 1/2 times larger after a violent abdominal pain I went to RUH. It was odd being there as the young doctor was about to put me under amd remove my stoma without even inquiring on why I had a stoma (first instance of surgery spoken). About an hour later after reading my translation of my papers from Quebec hospital where my surgery occured he admitted that this changed everything and I needed to be fixed first before the removal of my stoma (second mention of surgery). Blood work was done in the mean time but no imaging was ordered. Later he returned and told me that the surgery team could not do this today but could have to resort to surgery to fix my herniated or prolapsed stoma IF they couldn’t fix it manually. And so began the fun! he plunged his finger inside my stoma and proceeded to attempt to push the three folds back into my inside. After an hour an a half of pushing and moving about, which by the way felt as good as a thousand kids punching me in the stomach, I continued to tough it out however without any complaints. Unfortunately the young doctor had surgery to attend to and I was given a break. For 2 hours I relaxed a little contained the occasional bleeding from my experience occasionally having to tend to some output And with only gauze to contain it minimized the mess as best as I could. After two and a half hours the young doctor returned and resumed his work. This time with great resolve to save me a surgery. Having to resort to more force It in. Now this felt like a thousand adult punches to the stomach but to the young doctors credit he got the job done. For being such a good patient I was treated to some dilada which took away all the pain and made me feel great 😊 So two days later feeling great but having a good old mess as my bag failed overnight I got up and proceeded to clean myself and shower. After my shower I sat on the toilet getting my stoma dries when suddenly I felt a bowel movement. No biggie I thought just another phantom bowel movement. To my surprised it wasn’t phlegm but actual stool not much but it was there and concerned me as I was told if this happened I could get I to toxic shock again. After phoning my doctor (yes I have her personal number that’s how good of a patient I must be lol) she sounded surprised and concerned and ordered me at once to rush to the hospital to get some imaging and get checked out. to shorten an already long story I was at Pasqua hospital for 9 hours where everyone who spoke to me nurses and doctor all agreed it could be an issue. However after seeing the surgeon he dismissed me without any tests amd imaging and said that this was normal. But if I felt I well to return. Disapointed I returned home and a week later spoke to my doctor about my experience. She was outraged that no one even ordered imaging and decided to take matter in he her own hands. I’m glad to saw that within a week I received a call for imaging amd the surgeon which surpervised the young doctor who fixed my herniated stoma was notified that he should conduct the investigation and to fast track my surgery if possible. my stoma has popped out to its normal place again but isn’t prolapsed for now so happy news. It has returned to its docile self. And although there was another 5 instances of stool it wasn’t much and eventually stoped altogether. 
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Topic starter
June 22, 2022 12:13 pm
June 22, 2022 3:07 pm
June 27, 2022 10:14 pm
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