Where Did I Go? (Sept 2018 Update)

So many of you have emailed me or sending me private messages asking where I’ve gone lately. Thank you for the concern! I’m hoping this post will answer some questions.

First off, let me say that VeganOstomy is one of the most important things in my life, and new content is on the way (I promise!).

Members of my Community Forums likely haven’t noticed my absence since I am still active there. But a few things have come up that have taken time away from working on the website and being able to advocate the way I would like. I do wish to remain private with some things, but I’m comfortable enough to open up about these, so here it goes…

Earlier in the year, I had a health setback that’s created an extra physical and mental burden on me. I haven’t shared much about it because we’re still not sure exactly what’s going on yet.

So, back in February of this year, I received two vaccines: one was a Hepatitis B shot and the other was Prevnar 13 (pneumococcal vaccine).

Several days after the shots I started to get body pains, which worsened and spread over the course of several weeks and months. Well, after over a dozen x-rays, an MRI, blood tests and specialists, we still don’t know what is actually happening in my body.

And this isn’t the first time this has happened. Back in Feb 2014, I had the “TDAP” (Tetanus, Diphtheria, Pertussis) vaccine and experienced the same symptoms beginning several days after that one.

In that case, the pains lasted nearly a year and then went away. The health department was notified of this possible adverse reaction back then and they suggested that I continue to have regular vaccines.

And I did, without trouble, until this year.

But this time, the symptoms haven’t been going away. Seven months later and they seem to be getting worse. My doctor’s appointments are still ongoing and I have a special appointment in November to explore what triggered this (so I can avoid it in the future).

That said, these chronic symptoms have been draining and make it difficult to move with the energy I’m used to having. It also creates more challenges as I still have to maintain all my work and family responsibilities on top of that.

But I’m no stranger to physical pain and I’m generally able to persevere through it.

What’s really grounded me to a halt, however, is witnessing a family member, who I love dearly, struggle with substance abuse over the course of the last year and having no power to alter their course.

It feels like I’m watching someone drown ten feet away from me and I have no way of rescuing them.

This has taken a significant toll on my drive to help others. I carry a huge sense of guilt every time I plan to make a new video or write another article to help others while knowing the one person I desperately want to help is out of reach.

Please, accept my apology for this absence.

There has been so much that I’ve wanted to share with you, but social media has been a source of anxiety, so I’ve avoided it. And my newsletter – well, quite frankly, I’ve been embarrassed that I have so little new content this year when my goal was to have at least 30 new articles/videos done for 2018, so I haven’t sent out any newsletters for most of the summer.

If there’s one thing I’ve learned through the last 10 years of having Crohn’s Disease, and 5 years of living with an ostomy, it’s resilience.

I will find a way through this.

57 thoughts on “Where Did I Go? (Sept 2018 Update)”

  1. Dear Eric,No apologies, please!  You need to take care of the awful things happening to your body right now.  You have been such a remarkable support to ostomates in the past, and will continue to be (I’m sure) once your own health is under control.  Do not worry about about us now.  It is so very sad to hear of a family member who cannot be helped…or does not wish to accept help.  I am sorry for the pain this causes you.  Please know that my thoughts and best wishes are with you.

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  2. When I was sick, but before my UC diagnosis, I had a typhoid shot. The shot site turned into a horrible abscess and I got a 105 fever and was very sick. Be careful! Good to hear from you!

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  3. Hi Eric,
    Please no apologies. You need to take care of your body, first and foremost! Your help to others has been invaluable…and I know will continue once you get your health sorted. I am so very sorry to hear of the family member who you so wish to help, but can’t. It is emotionally exhausting and painful. Please know that thoughts are with you!

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  4. Hi Eric,I just came on board and read what’s going on. Please take time to take care of  yourself – that is paramount. You cannot help others until you take care of your own physical issues. I do suspect that because of the Crohn’s, the vaccines could be wreaking havoc on your immune system. It must be so difficult to watch someone you love go deeper and deeper into addiction and not be able to help in any way. I understand the situation you are in, but in a different way. Watching your loved ones die or suffer is not easy – you feel so helpless. All you can do is be there for them and pray that God will intervene.  I will keep you and your loved one in my prayers. Stella

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  5. Eric, no reason to apologize! You and your family are most important right now and I pray you all will find comfort and healing soon. Your content that you already posted was beyond amazing to help me Dec of 2017- may 2018 when I ruptured my bowel and emergently had a Colectomy and colostomy with no prior issues. Your content gave me the language to use with my doctors and nurses and understanding of products and their uses and helped me to advocate for myself in a world I was unfamiliar with. For that I am forever grateful and I have since had a reversal. As I work in a hospital, I have linked many others to your content and videos. I am sure there are countless others who are still being helped with your materials and we’ll look forward to when you are healthy again to resume. In the meantime, know that you are appreciated and thank you for the gifts you have already shared with us. Praying for you to feel better!

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