So many of you have emailed me or sending me private messages asking where I’ve gone lately. Thank you for the concern! I’m hoping this post will answer some questions.
First off, let me say that VeganOstomy is one of the most important things in my life, and new content is on the way (I promise!).
Members of my Community Forums likely haven’t noticed my absence since I am still active there. But a few things have come up that have taken time away from working on the website and being able to advocate the way I would like. I do wish to remain private with some things, but I’m comfortable enough to open up about these, so here it goes…
Earlier in the year, I had a health setback that’s created an extra physical and mental burden on me. I haven’t shared much about it because we’re still not sure exactly what’s going on yet.
So, back in February of this year, I received two vaccines: one was a Hepatitis B shot and the other was Prevnar 13 (pneumococcal vaccine).
Several days after the shots I started to get body pains, which worsened and spread over the course of several weeks and months. Well, after over a dozen x-rays, an MRI, blood tests and specialists, we still don’t know what is actually happening in my body.
And this isn’t the first time this has happened. Back in Feb 2014, I had the “TDAP” (Tetanus, Diphtheria, Pertussis) vaccine and experienced the same symptoms beginning several days after that one.
In that case, the pains lasted nearly a year and then went away. The health department was notified of this possible adverse reaction back then and they suggested that I continue to have regular vaccines.
And I did, without trouble, until this year.
But this time, the symptoms haven’t been going away. Seven months later and they seem to be getting worse. My doctor’s appointments are still ongoing and I have a special appointment in November to explore what triggered this (so I can avoid it in the future).
That said, these chronic symptoms have been draining and make it difficult to move with the energy I’m used to having. It also creates more challenges as I still have to maintain all my work and family responsibilities on top of that.
But I’m no stranger to physical pain and I’m generally able to persevere through it.
What’s really grounded me to a halt, however, is witnessing a family member, who I love dearly, struggle with substance abuse over the course of the last year and having no power to alter their course.
It feels like I’m watching someone drown ten feet away from me and I have no way of rescuing them.
This has taken a significant toll on my drive to help others. I carry a huge sense of guilt every time I plan to make a new video or write another article to help others while knowing the one person I desperately want to help is out of reach.
Please, accept my apology for this absence.
There has been so much that I’ve wanted to share with you, but social media has been a source of anxiety, so I’ve avoided it. And my newsletter – well, quite frankly, I’ve been embarrassed that I have so little new content this year when my goal was to have at least 30 new articles/videos done for 2018, so I haven’t sent out any newsletters for most of the summer.
If there’s one thing I’ve learned through the last 10 years of having Crohn’s Disease, and 5 years of living with an ostomy, it’s resilience.
I will find a way through this.




P.S. I just got the Shingex vaccine too, no problems. And I do keep up with all my other vaccines too. So thats not much help I guess. UC is also an autoimmune disease, so maybe it is something else.All the best..
Eric, You have my ( and I know) all of our support. You have done so much for this community that it is impossible to ever thank you enough. Take all the time you need for yourself and your family.Like John said above, VO has so much great content already that if you go awhile without posting new stuff, it will still be better than anything else out there ( by a mile).
Wow Eric so sorry you are going through all this . I was told that peeps with autoimmune disease ( I have Crohns and AS ) that we should never get any type of vaccines etc.. An infectious disease doc told me this over 20 years ago . We should spread the word to help others . Big hugs , Bubbles
Eric, I have re-read ——– you have to many spokes in the fire.. and u did not put them in there!! take a f ew days off and get out and away a good week!! a softer place– your heart is broken in ways that you can not heal.. your illness and the mental being of life around you will continue-until one of them resolves itself. Hopefully this is the shots that u received and has taken over…….. YOUR RESPONISABILTY is to YOUSELF ! you know this– so your excused to exit for awhile– you have to much pressure……. let the tears flow-release some stress…..your exhusted my friend!! Time for a time out for you——— We will behave ourselves!!!!!!!!!! :-) ANd I am sure that others can answer my question…………. and I have a Dr. Sweet dream to you. Marcie………….
Your first priority is your health and family. Prayers the doctors find answers and you have total healing physically and emotionally. I too am dealing with loved ones with crippling substance abuse. It’s Hell. Thank God you have great healthcare and try to stay positive. Thanks for sharing your struggles.