Why Do Stomas Change Their Size? (w/ video)

Why do stomas change size and shape?

Anyone with an ostomy will tell you that sometimes their stoma will often act as if it has a mind of its own!

In this article, I’ll be explaining why stomas move, shrink, and grow!


This video is brief, but it touches upon some of the major reasons why our stomas may change their shape.

Why do stomas shrink or change size?
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What’s Going On?!

It can be alarming to some and amusing to others, but there are several reasons why your stoma might move around and change size.

Some of these reasons are totally natural and should not worry you, and others may need surgical intervention to correct.

Reduction in Swelling After Surgery

Surgery is traumatic for the body, and it’s completely normal to have a swollen stoma soon after surgery.

If you measure your stoma, you may notice that it shrinks for the first 6 weeks or so after your surgery (with the most noticeable change happening in the first week). This is completely expected, and it’s the main reason why patients are asked to measure their stoma before each appliance change for the first little while post-op.

At the same time, it’s often not wise to keep your appliance on for more than a few days in the month following your surgery, as it may lead to leaks and skin irritation as the hole becomes too large for your changing stoma.

This happened to me when I tried pushing my wear time to a week while my stoma size was still in transition – it was a painful lesson that I hope nobody repeats.

There is no exact time frame for when your stoma will reach a consistent size, and you may find yourself having to measure your stoma months or years after your surgery (like I do) because of various factors.


One of the most common reasons why your stoma would change size and shape is peristalsis.

Peristalsis is a natural, wave-like movement of your intestines caused by muscle contractions in your gut. It serves an incredibly useful function of getting stool through your system and without normal peristalsis you may develop motility issues.

It’s important to realize that peristalsis is not something you can control; it’s like a heartbeat, so your body will know exactly when it should happen (unless you have a motility disorder).

Because a stoma is part of your intestine sticking out of your body, you might be able to see peristalsis in action whenever a bowel movement happens. This is actually one of the reasons why I like wearing clear ostomy bags – it’s interesting to see it in action!

Sometimes, it’ll look like your stoma is getting bigger, while other times your stoma may appear as if it’s retracting or getting smaller. Either case is normal, however, I tend to notice that my stoma will retract more with peristalsis when I have a partial blockage (you may notice this, too).

When cutting a hole for your appliance, always remember to make the hole slightly larger (only by a few millimeters) to account for peristalsis making your stoma larger.

While peristalsis on its own does not (and should not) cause you pain, you may notice sharp pains coming in waves around your stoma if your wafer is cut too small.

Likewise, you may also feel waves of pain caused by peristalsis if you have a blockage.

Weight Loss / Weight Gain

Whether you’re experiencing intentional weight gain/loss or if it came about due to illness or other factors, it can still cause your stoma to change size or shape.

Many of us experience dramatic changes in our weight after surgery, so it goes without saying that we may also find our stomas changing with the rest of our body.

If you use pre-cut wafers and are planning to go on a diet, be sure to keep this in mind as the hole in your wafer may no longer fit your stoma properly.

Along with our stoma changing size, weight loss/gain may also cause our skin to stretch our develop folds which can cause our wafers to no longer give us a good seal.

Always keep these things in mind so you can plan for them.

Flush or Retracted Stoma

Most normal stomas stick out a little bit, but some people may have what’s called a “flush” or “retracted stoma”.

In the case of a flush stoma, there is very little or no bump and the stoma is flat with the skin.

For a retracted stoma, the stoma actually points inwards, and this can be an ongoing problem for some ostomates. The cause of a permanent or chronically retracted stoma is often linked back to poor stoma placement.

Both a flush and retracted stoma can cause issues like leaks or poor appliance adhesion, and in some cases, a surgical revision needs to be made to correct it.

For me, having a blockage (whether it’s a partial or complete obstruction) causes my stoma to shrink and retract. In fact, it’s one of the red flags I use to warn me of blockages-in-progress, and it may be something you notice too.

This happens temporarily and my stoma returns to normal once the blockage is resolved.

Prolapsed Stoma

The opposite of a retracted stoma is a prolapsed stoma.

There are two types of stoma prolapse, one that is “fixed” and one that is “sliding”.

A fixed prolapse is usually caused by the stoma not being created properly while the sliding type can happen for various reasons.

Seeing a prolapsed stoma can be alarming and some extend out over 6″, which can cause problems fitting an appliance and can reduce a patients quality of life.

Prolapsed stoma
A prolapsed stoma comes out quite a distance.

Someone who has a prolapsed stoma may experience it at random times, and this can make measuring the stoma more challenging.

Unless a prolapsed stoma is causing dangerous complications (like bowel strangulation), the surgical correction is often planned and not urgent (1).


Parastomal Hernia_side view

Parastomal hernias are caused when a part of your bowel pushes through the muscle wall of your abdomen and can affect a very large percentage of ostomates.

Parastoma hernia from front

Hernias cause bulges under the skin that can change the size or appearance of your stoma.

Many hernias in ostomy patients are repaired surgically or supported using specialized hernia belts.

Unfortunately, recurrence of hernias is quite high following surgical repair (2) and every new surgery puts a patient at risk of developing one (since the integrity of the abdominal wall is compromised with surgery).

It’s best to consult with a stoma nurse if you have a parastomal hernia because it’s important to manage it in some way to prevent it from worsening.


As one observant reader mentioned, pregnancy can have an effect on the size, shape, and location of a stoma! (Thanks, Laura!)

These changes are normal and are more common in the second and third trimester. Regardless, the rapid changes to your body can cause difficulties in managing your appliance.

If you do become pregnant and have an ostomy, I would suggest working with both a stoma nurse and an obstetrician so that both your baby and stoma are being looked after :)

My good friend Stephanie Hughes from the Stolen Colon has detailed some of the other changes she’s experienced during pregnancy with an ostomy on one of many articles.

Tips to Manage a Changing Stoma

Here are a few general guidelines for dealing with a stoma that’s not staying a consistent size or shape.

  • Measure your stoma. The reason why I like cut-to-fit appliances is that it doesn’t matter what size or shape your stoma is because you’ll be creating the hole yourself. But in order to get the best fit, you should be measuring your stoma before each appliance change (or whatever frequency makes sense to you). If you’re using pre-cut products, I would suggest measuring before placing any new orders, just in case the size is different from what you’ve used previously.
  • Try moldable products. If cut-to-fit and pre-cut appliances aren’t working out for you, consider using a moldable appliance. These allow you to fit the wafer around your stoma and then shape it without needing to measure or cut anything.
  • Expect change. No stoma will be exactly the same size and shape for a person’s entire life. Knowing that your stoma will change can help you to plan things out and make it less likely to be a surprise when it happens.
  • Manage your parastomal hernia. A parastomal hernia can change the landscape of a person’s abdomen, and one that isn’t properly supported or corrected can make ostomy life very inconsistent. Speak with your nurse if you’re having difficulties.
  • Learn to “read” your stoma. Our stomas can often give us clues as to what’s going on inside. If you know that your stoma prolapses when exercising or retracts when you have an obstruction, you have an opportunity to prevent these things from happening. You may still need to consult a nurse or surgeon for help, but learning how to “read” your stoma is a great way of providing information that can help them to come up with a plan.
  • Don’t take it personally. You may be experiencing a lot of anger or frustration over your shape-shifting stoma. Know that it’s not your fault, but it is something you can learn to manage and work around. The more experience we have with taking care of our stoma, the better we get at anticipating and solving these challenges.


As you can see, there are plenty of few reasons why a stoma may change shape or size.

A few of these things are in our control, but if you are having continued difficulties with a stoma that’s irregular or changes dramatically then I would highly recommend consulting with a stoma nurse to help you come up with a plan.

I hope that some of the suggestions I’ve offered are helpful, but please let me know if you have any other tips to share.


  1. Kim JT, Kumar RR. Reoperation for Stoma-Related Complications. Clinics in Colon and Rectal Surgery. 2006;19(4):207-212. doi:10.1055/s-2006-956441.
  2. Gillern S, Bleier JIS. Parastomal Hernia Repair and Reinforcement: The Role of Biologic and Synthetic Materials. Clinics in Colon and Rectal Surgery. 2014;27(4):162-171. doi:10.1055/s-0034-1394090.

19 thoughts on “Why Do Stomas Change Their Size? (w/ video)”

  1. Thanks for the informative article and video, Eric. Do you happen to know if we can expect changes in my child’s stoma as he matures from early childhood to adulthood? Will the placement always be okay, regardless of how short or tall or he becomes (his father is 6’5″), or will he need adjustments or even a new placement?

    • Hi Helena,

      That’s a great question. I’m going to at some point have an article on pediatric stomas, but I’ll need to get information from a stoma nurse or surgeon who can answer specific questions I have.

      From what I understand, the rules of stoma placement are quite a bit different in children and anecdotally, I’ve heard of stoma ending up in different locations as someone grows taller.

      I don’t want to put out any information until I’m certain that it is accurate but I’m glad you’ve reminded me of it.

  2. There is one other “female” explanation for stoma size change…pregnancy. This has been the only reason for me. The hospital ENT is great for supplies as it changes so frequently you could really get sucked in financially to not finish your box before it changes again.

  3. Where can I get a Stoma measuring guide other than the paper one Hollister provides? I use Hollister products and just recently it seems like the wax ring I apply is not adhering. No leaking out just leakage when I remove my barrier to change.
    I have gained weight and do not know how to lose weight.
    Too many of the belts, etc, are just too expensive. I am on a low fixed income.
    I am short waisted and could never wear my bag on the side the way you do. My stomps Nusrse is very busy and there is no one to talk to and a year after my surgery I am not very happy.
    Frustrated would be the word abs I have meds I have to take so I am at a loss and all alone in this. I am 64 and getting miserable and I may try to but the Gel tablets bit I am at a loss here. My precut wager fits and the next size precut is too big. I do not know what to do. I wish I could have this surgery reversed bit that is not possible.
    I guess I would welcome any suggestions as a fat, shorteaisted 64 year old and the top of my bag is just above my waist.
    I just wake through each day waiting to change my bag and it still takes me a half hour with getting everything ready. I look nothing like the tall, no cellulite girls in the videos.

    • HI Susan, This ostomy game aint an easy one but when you get it sorted it will seem better, Get to see that nurse if she is busy there must be another. See if you have a support group near that ye could join. Start today and go through the site and see what relates to the issues you have. And rem none of us look like any of the models

      • Hi John. My Hospital has only one Stoma Nurse. She is very busy and tells me other patients do not have the problems I do.
        Went to a support group and they have a speaker, an evening agenda and no one talks to me.
        I am just frustrated beyond belief with no one to talk to
        I really hate my life and I keep getting sick.
        Thanks anyway.

    • Hi Susan,

      The first question is easy: You’d normally get other measuring guides with the respective pouches for different brands. However, I’m sure that if you contact any of the major manufacturers, they’d be happy to send you some extras – they often include them when sending samples too.

      Your other challenges do need the help of a stoma nurse to address, and if the one you have is too busy, find another or consider telenursing as an option (you don’t even have to leave the house).

      I would suggest going with cut-to-fit as pre-cut requires a VERY consistent stoma to work well with and it doesn’t sound like you’re there yet. The gel sachets are a blessing and they should be tried by anyone with loose or liquid output.

      Hey, a half hour isn’t bad! It usually takes me longer to change my appliance!

      Stay positive and continue to tap into available resources around you.

      • Hi. Thank you for responding.i an not able to cut to fit. I just cannot do it. That was how I started out. It has been a year as of Feb 6.
        I am always taking medication of some kind and for some reason the wax ring I put on my bartier/ wafer is not adhering as well and I am not sure I am putting it on wrong.
        I measure my Stoma each change and it is always 38m as 41 is too large – these are the cut to fit.
        I talk to someone but babying no friends or any support is the biggest issue.
        I just do not want to be around people and I have no idea how to lose weight.
        Cannot find a Dietitian who knows about Ileostomies that is in my HMO Insurance and I do not have the $30 a visit for each specialist.

        I am trying to get rid of so upper respiratory infection and doykf Steroids, a Nebulizer & an Inhaler so I feel drained.

        Thank you anyway. I do use the Hollister 2 piece system with a wax ring and the other bags feel uncomfortable & I had a reaction to Coloplast and I had to remove it right away. It felt like pins & needles and the bag was cumbersome. I am able to change my bag every other day per my Stoma Nurse. The bag material is not ideal but it is not heavy. I cannot wear my bag sideways as I am very short waisted and the belts are like $100 and my Insurance does not cover it.
        Thank you for your advice.

        How do you telestomanurse?
        I can talk to Hollister but lint about product.
        (my email is:
        snorth2@me.com—easier for me to get your reply.)

        Thank you very much.

  4. Yep I still find it weird to watch the stoma wriggle about, after surgery one feeling I found really hard to get used to was the movement it did when I started to eat. Measuring is very important no matter how long you have a stoma. I was given a plastic wipe clean measure recently and compared to the card type I had it’s great.

  5. Excellent! thank you so much for this — explantions that i can understand aided by pics — Great —— this article was so needed – have not seen anything elsewhere that gives me this info —- man,y many thanks!


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