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Sarah Green
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May 16, 2017 9:50 pm  

If you have a high output ileostomy it is often recommended that you reduce the amount of fluids that you drink, otherwise you make become dehydrated (by washing sodium out of the body). Do you have a stoma nurse that you can discuss your fluid intake with?


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VeganOstomy
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May 16, 2017 10:13 pm  
Posted by: Sarah Green

 

If you have a high output ileostomy it is often recommended that you reduce the amount of fluids that you drink, otherwise you make become dehydrated (by washing sodium out of the body).  

From what I understand, fluid restriction should only be done when fluids can be met through IV (i.e. under supervision.) 

But it's a bit more complicated than that. "Fluids" cover a wide range of beverages from water to coffee to sports drinks to alcohol. "Increasing fluids" does not mean drinking a bottle of wine per day ;) Although plain water is never recommended as a staple beverage for anyone with a stoma.

As you've suggested, a stoma nurse should be talked to in order to assess things properly. Out of control fluid loss can be a huge problem, and it may not be enough to reduce fluid intake and eat starches. 

 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Navey
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May 17, 2017 8:03 am  

Hi Sarah:

I do not have a stoma nurse per se, I would have to contact Care Partners (professional nursing) through CCAC to see if I could speak with a stoma nurse. It certainly would be worth trying. Thanks for your comments.


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VeganOstomy
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May 17, 2017 12:19 pm  
Posted by: Navey
 

I do not have a stoma nurse per se, I would have to contact Care Partners (professional nursing) through CCAC to see if I could speak with a stoma nurse. It certainly would be worth trying.    

I had CCAC help me at home after surgery, and they had more than one stoma nurse available! That would be a great place to start.

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Sarah Green
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May 18, 2017 7:44 pm  

Sorry I should have been clearer, it's the normal fluids that may need to be reduced and substituted with something like St Marks solution. The following hospital page gives you more information about it, but as I mentioned before I would recommend talking to a nurse before trying it 

http://www.stmarkshospital.nhs.uk/wp-content/uploads/2014/05/High-output-stoma-2014.pdf


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Navey
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May 18, 2017 8:20 pm  

Thanks Sarah, I have never heard of the St. marks solution and have gone to the site you provided and read it with interest. I'm glad you referenced it as I am planning to contact a stoma nurse tomorrow and it may be helpful to mention this site to them for their own information.

One thing I have been doing is adding more salt to my foods and eating saltier snacks than I used to since I received my stoma. Luckily I have always loved soda crackers and especially with peanut butter or cheese on them. It's a wonder how your body tells you what your body requires without your realizing it.

I celebrated my one year anniversary with my stoma a.k.a. as Eli yesterday. 

 


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VeganOstomy
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May 18, 2017 8:49 pm  
Posted by: Navey

I celebrated my one year anniversary with my stoma a.k.a. as Eli yesterday.

Congrats! 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Navey
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May 18, 2017 9:00 pm  

Thank you Eric. It feels like it's just been a few months and I still feel like a newbie, so much still to learn. That's why your site and forum is so great for people like me. Time does fly.


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VeganOstomy
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May 19, 2017 12:20 am  

I'll be four years for me this August! Time really does fly!

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Sarah Green
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May 19, 2017 7:18 am  
Posted by: Navey

 

Thanks Sarah, I have never heard of the St. marks solution and have gone to the site you provided and read it with interest. I'm glad you referenced it as I am planning to contact a stoma nurse tomorrow and it may be helpful to mention this site to them for their own information.

 

   

Happy stomaversary 

St Marks is a small specialist bowel hospital in the UK, the drink is named after them. Good luck at the appointment 


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