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Sarah Green
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16/05/2017 9:50 pm  

If you have a high output ileostomy it is often recommended that you reduce the amount of fluids that you drink, otherwise you make become dehydrated (by washing sodium out of the body). Do you have a stoma nurse that you can discuss your fluid intake with?


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VeganOstomy
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16/05/2017 10:13 pm  
Posted by: Sarah Green

 

If you have a high output ileostomy it is often recommended that you reduce the amount of fluids that you drink, otherwise you make become dehydrated (by washing sodium out of the body).  

From what I understand, fluid restriction should only be done when fluids can be met through IV (i.e. under supervision.) 

But it's a bit more complicated than that. "Fluids" cover a wide range of beverages from water to coffee to sports drinks to alcohol. "Increasing fluids" does not mean drinking a bottle of wine per day ;) Although plain water is never recommended as a staple beverage for anyone with a stoma.

As you've suggested, a stoma nurse should be talked to in order to assess things properly. Out of control fluid loss can be a huge problem, and it may not be enough to reduce fluid intake and eat starches. 

 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Navey
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17/05/2017 8:03 am  

Hi Sarah:

I do not have a stoma nurse per se, I would have to contact Care Partners (professional nursing) through CCAC to see if I could speak with a stoma nurse. It certainly would be worth trying. Thanks for your comments.


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VeganOstomy
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17/05/2017 12:19 pm  
Posted by: Navey
 

I do not have a stoma nurse per se, I would have to contact Care Partners (professional nursing) through CCAC to see if I could speak with a stoma nurse. It certainly would be worth trying.    

I had CCAC help me at home after surgery, and they had more than one stoma nurse available! That would be a great place to start.

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Sarah Green
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18/05/2017 7:44 pm  

Sorry I should have been clearer, it's the normal fluids that may need to be reduced and substituted with something like St Marks solution. The following hospital page gives you more information about it, but as I mentioned before I would recommend talking to a nurse before trying it 

http://www.stmarkshospital.nhs.uk/wp-content/uploads/2014/05/High-output-stoma-2014.pdf


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Navey
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18/05/2017 8:20 pm  

Thanks Sarah, I have never heard of the St. marks solution and have gone to the site you provided and read it with interest. I'm glad you referenced it as I am planning to contact a stoma nurse tomorrow and it may be helpful to mention this site to them for their own information.

One thing I have been doing is adding more salt to my foods and eating saltier snacks than I used to since I received my stoma. Luckily I have always loved soda crackers and especially with peanut butter or cheese on them. It's a wonder how your body tells you what your body requires without your realizing it.

I celebrated my one year anniversary with my stoma a.k.a. as Eli yesterday. 

 


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VeganOstomy
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18/05/2017 8:49 pm  
Posted by: Navey

I celebrated my one year anniversary with my stoma a.k.a. as Eli yesterday.

Congrats! 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Navey
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18/05/2017 9:00 pm  

Thank you Eric. It feels like it's just been a few months and I still feel like a newbie, so much still to learn. That's why your site and forum is so great for people like me. Time does fly.


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VeganOstomy
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19/05/2017 12:20 am  

I'll be four years for me this August! Time really does fly!

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Sarah Green
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19/05/2017 7:18 am  
Posted by: Navey

 

Thanks Sarah, I have never heard of the St. marks solution and have gone to the site you provided and read it with interest. I'm glad you referenced it as I am planning to contact a stoma nurse tomorrow and it may be helpful to mention this site to them for their own information.

 

   

Happy stomaversary 

St Marks is a small specialist bowel hospital in the UK, the drink is named after them. Good luck at the appointment 


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LK
 LK
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03/05/2019 7:09 pm  

Wow...this is interesting. I have been trying to find something on the marshmallow trick since it came up again in a more recent forum. I found nothing, but I am also no computer genius either!  I have short gut and high output. I have to empty my pouch in the night sometime three times. Also, as soon as I get up or change positions there is most always output. I dehydrate easy so I am always drinking water. Depending on the whether, too hot, shorter wear time, cool outside, longer wear time, in order to have a dry pouch change, I will do it first thing in the morning. The night before, I will pace my intake of water and food, and then during the night, my worst and driest time, I even slow that way down. It is only a few hours of time and only when it is time to change the pouch over, this is before leak situations of course. With high output, I always have to empty my pouch in the night and do get frustrated with this. with high output, even a change in position can make things run, slowing down fluids, about once every five or seven days is not the end of the world to make a bag change early in the A.M.  a good compromise for me. If I get thirsty I may suck a hard small candy. I still do not get the marshmallow thing at all. Non-soluable fibers land me in the hospital so this is the best solution so far. Ten years in, so for so good! It is all trial and error.

Linda


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Marcie
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04/05/2019 12:56 pm  

Hey Eric- I will be 5 years the end of August..  We have come a long way baby!! 

Marshmallows seem to help  many BEFORE they change their pouching system... Got to time it right I guess.  I found what works for me - pouching area - and that toilet card board thing helps me greatly. Glad I discovered it !! I change every 3rd. day--no surprises and my skin looks great. (un-less ??  I have a real big surprise) 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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Marcie
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04/05/2019 2:19 pm  

I know many eat the marshmallows.  I am a bit afraid of them now-- Although at first, I did eat them like crazy for high out put.  Didn't help me much--hopefully, others will feel differently-but don't eat a lot of them at one time.

After many reading of this blog, I found WHAT to eat and how much MY body can adjust to.. THANKS Eric and friends...………….

Linda or anyone--- how much fluids do your drink per day ?  

 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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