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Update on the Cyrisse Chronicles

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(@cyrisse)
Joined: 6 years ago
Posts: 70
Topic starter  

Hello Friends-

If you had seen my other recent posts, I think I mentioned that a CAT on the abdominal/pelvic area would b done and that was today. I have just rec'vd the hard copy but have not heard from the doctor yet. I am sort of relieved Bec at his point maybe it will b wait and see. Here is what they found-

SMALL FAT-CONTAINING LEFT FLANK HERNIA IN THE AREA OF PREVIOUS LEFT LOWER QUADRANT COLOSTOMY.
2. PREVIOUS SIGMOID COLECTOMY AND REANASTOMOSIS. MODERATE RETAINED STOOL IN THE COLON.

Any thoughts friends ? :roll: 

It is about 3cm(small)


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 11 years ago
Posts: 4486
 

Sounds like they are presenting their findings without drawing any other conclusions, but I'm sure that's what your Dr. will discuss with you. 

What would you like to see happen at this point? Are you OK waiting? 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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(@cyrisse)
Joined: 6 years ago
Posts: 70
Topic starter  

@veganostomy 

I rec'vd the report b4 the PA/MD saw the results. Was told I should the PA who is excellent that I should go back to c the surgeon who did the surgery, which is cool. Will talk in depth with the PA this week. The surgeon was top notch too.

Being that the hernia is   small the surgeon may want to wait and c., which is ok. If he wants to do a lap or go for the surgery that's fine too. My case is considered to be complex. Despite the surgeries(colostomy and reversal, reversal was done one year ago, colostomy was done the year b4.) and following instructions I continue to have issues, which all of them r aware of. So we will c. Of course the GI doctor is not gonna touch this or b too opinionated, refer to the surgeon. No worry there.

Thx for the reply. Will keep everyone updated. Love this site.


   
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 LK
(@dlkfiretruck)
Joined: 8 years ago
Posts: 1617
 

@cyrisse...Hi there...I'm glad you got your results in. I suppose whether the hernia is troublesome may be part of the equation as well. 

Is it a long wait to see the surgeon ? 

Linda


   
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(@cyrisse)
Joined: 6 years ago
Posts: 70
Topic starter  

 

No problems getting an appt. The question will b is it ok for now .I continue to fluctuate between constipation and diarrhea but I don't know if that hernia has anything to do with it. If I had a choice I would say start sharpening your scalpel .  LOL

We will c. Thx so much for your support :)


   
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(@chrisandbagpus)
Joined: 5 years ago
Posts: 254
 

All the written report is saying in plain english is

A hernia has been seen on images

the surgery that has been done

there is some stool retained (maybe a hard stool sticking)

In others words better to have an appointment and see if the surgeon/radiologist can review the CT in more detail. Reports sometime are like this very brief  tell only what is obvious suitable report for your general physician  

Colostomy Jan 2020


   
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(@cyrisse)
Joined: 6 years ago
Posts: 70
Topic starter  

@chrisandbagpus 

100% right my friend. Cannot wait to c My surgeon this week and believe me he is sharp. 


   
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(@cyrisse)
Joined: 6 years ago
Posts: 70
Topic starter  

100% right my friend. Cannot wait to c My surgeon this week and believe me he is sharp. 


   
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(@cyrisse)
Joined: 6 years ago
Posts: 70
Topic starter  

Will see surgeon this Friday the 13th !  All kinds of ideas r going thru my mind, still have that erratic bowel, wear diapers the majority of the time. Surgeon's nurse said he likes to take these hernias out, I actually have two not one. Maybe this is reason  causing these issues. If this is considered an elective surgery, it may not be able to be done due to the hospital system here is not doing electives due to the increase of the COVID crisis here in Florida, I know they need the beds. One of the highest in the nation. If that is the case, I will have to deal with it ,with any recommendations the surgeon gives until that decision by the hospital system changes , u know hurry up and wait. This virus is no joke folks. Boy I do not want to have a blockage, I will keep on praying. In my complex case, the surgery may not b considered elective.  I have suffered so very long with this I but am strong enough to wait if needed. There r many people much worse than I. Will keep you all posted, any comments or encouragement is welcomed. My  66th birthday is tomorrow, oh I mean my 55th. . LOL :-P 

 


   
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LLNorth
(@llholiday)
Joined: 6 years ago
Posts: 591
 

Happy birthday, Cyrisse 🎂 ! And best of luck with your appointment.

Colostomy 4/30/18.
I love the smell of coffee in the morning. It smells like .... victory.


   
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(@stella)
Joined: 4 years ago
Posts: 82
 

Happy Birthday Cyrisse, All the good luck and blessings will be with you. You're very strong, all your issues will be solved soon and you'll have a very happy and healthy future.


   
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VeganOstomy
(@veganostomy)
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Joined: 11 years ago
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@cyrisse Happy Birthday Cyrisse. I'm so sorry to hear that you are in limbo with your treatment plan. It's so unfortunate that Florida has gone backward in its fight to stop COVID, especially when it affect people like you. 

Because it's causing so many problems for you, perhaps your doctor can suggest that it's an emergency surgery so you can get in sooner. If not, I suspect you'll be waiting for some time, no? 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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(@cyrisse)
Joined: 6 years ago
Posts: 70
Topic starter  

What a birthday yesterday, had to go to the ER. Was still having these erratic bowel patterns mostly diarrhea daily, but yesterday it felt different. Very painful. Long story short on a CT this is what they found:

1. AN OVOID MIXED DENSITY ADJACENT TO THE STAPLE LINE AT THE RECTOSIGMOID JUNCTION. AN EXCLUDED LOOP OF BOWEL OR DIVERTICULUM WITH A LARGE FECALITH IS THE PRIMARY CONSIDERATION.
2. COLITIS FROM THE DESCENDING COLON TO THE RECTUM.
 
What the hell this means IDK. Diagnosed with colitis, given antibiotics, WBC's high, pain meds I am not messing with them unless I ready need it. They still did see those two hernias, surgeon appt 8/13/21, can't wait so worried. Any thoughts friends ?

   
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(@squeakyandliza)
Joined: 6 years ago
Posts: 1055
 

Happy belated Birthday, Cyrisse. I hope the planned surgery Friday helps you. It is no fun being in pain. Be sure to be safe. Covid is no joke, especially to those of us with a compromised immune system. Best wishes for a successful surgery and a quick recovery. 

-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


   
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(@cyrisse)
Joined: 6 years ago
Posts: 70
Topic starter  

@squeakyandliza

TY so much for your reply.Friday’s appt was actually made to discuss CT Scan results from 7/15 which showed the two hernias around Ostomy and reversal scars with likely surgery  Now with the results of the CT of yesterday there will b more to discuss. I have no idea about what those findings mean. Being a nurse and an anxious person does not help things. I don’t feel great today but am coming along.


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 11 years ago
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Posted by: @cyrisse

COLITIS FROM THE DESCENDING COLON TO THE RECTUM.

If I recall correctly, you had a reversal. Was your diagnosis Crohn's or Ulcerative Colitis? These parts of the bowel always come back to haunt us when they are left in place with IBD. 

Do you have any appointments with a Gastroenterologist who can help to make more sense of this? 

I'm so sorry that this has been happening, especially not cool that you were in the ER during your birthday! 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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(@chrisandbagpus)
Joined: 5 years ago
Posts: 254
 

Hi Cycisse

The docs love their big words LARGE FECALITH means  what they think is some impacted stool. OVOID MIXED DENSITY I guess is a oval shape shadow that they are not sure what it is? is it stool water or gas? or a artefact (Image failure/ shadow)? AN EXCLUDED LOOP OF BOWEL OR DIVERTICULUM  no simple idea what they mean here. only an experienced radiologist can give a clearer answer.

Colitis as I'm sure you already know is the pain which can be very excruciating caused by the cramping of your intestines trying to move something?

No doubt what you have described can be seen on the CT's something is occurring the question is can they do something to improve the situation.

What Eric says is quite correct, what would we do without him.

Hope this helps until you get the report decipher by the consultant in what it means, what can be done and what is the best on-going treatment.

What a S**T of a birthday treat?

 

 

Colostomy Jan 2020


   
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(@cyrisse)
Joined: 6 years ago
Posts: 70
Topic starter  

To both of you. Yes I am waiting to talk with my GI .Big words ,non-specific. I agree with both of you. This whole thing is what happened with my  original surgery for diverticulitis in 2018 started out the same way . We all know the deal. So tomorrow I already made an appt to speak with my surgeon about the hernias which they  found in July, so now we have a little more to talk about, lol, on Friday the 13th. Feeling better today still going, on Augmentin but I am grateful that I am still here compared to many others who have lost their lives for many things lately. I's also like to to to apologize for asking you for your thoughts regarding this matter because that is crossing the line somewhat. This is such a great group to be in to share our issues. I will keep all of you posted. Thx !!! 8-) 


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 11 years ago
Posts: 4486
 
Posted by: @cyrisse

I's also like to to to apologize for asking you for your thoughts regarding this matter because that is crossing the line somewhat.

No way. That's what this forum is for. While none of us can really give you MEDICAL advice, just talking about things can help to mentally sort our concerns and sometimes even provide clarity so you can make your own decision moving forward. 

I hope that your appointment goes well.👍💪

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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(@john68)
In Memorandum
Joined: 8 years ago
Posts: 2059
 

Totally second what Eric says. A problem shared is a problem halved. Plus the members here are only to happy to help 😀👍 Best wishes going forward 

ileostomy 31st August 1994 for Crohns


   
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