Mornin John,

Its really great that you will be taking part in what looks like a large study of IBD and it's underlying causes and treatments.

It is also very generous of you as I know we all get kind of gun shy after going through this process. You will have much to add to the study since you have a long history with and managing this disease.

Good job... or well done, you!

Cheers to you Lad !!!! This is a nice thing of you to do . You are a good candidate for this with lots of experience to pass on and it will be useful to others through the research . Way to go my friend !

John, 

I consider you a very noble person for participating in this study. May it bring doctors a few steps closer to finding a cure for this disease! God bless.

Stella

Ya, John- Looks like you can stay with it all the way too !!  Wonderful!!  Happy for you! 

I am sota of a ginnie pig with this Gattex injection.  Things are not going to well for me right now- so I may have to stop my results for others-which saddens me.  Also, It is working for me.. but got issues.  But at least I got much info. for them on this.. 

Have fun with this too !!!  M.

John,

What  great opportunity for you. My hubby was on a trial drug for pancreatic cancer. They stopped the study for reasons we will never know.  I admired him for taking part and encouraged him as I will encourage you too.  There was lots of paper work involved and it lengthened our already long day to a much longer one. But they did find they could not keep on with that type of a drug. It is because of like people that we are where we are today in medical knowledge. 

Make sure and keep copies of everything you fill out. Every prescription and all the results you can get  hold of.  There may be a book in it for you some day!

My husband was reimbursed for mileage  in the car as part of the study.  All meds  were free related to it also. Keep your receipts.  I admire you for doing this as you are doing it for all of us. We know that Universities and Colleges share all impertinent information.   So, ahead of time, Thank you so much for being a willing participant.  Keep us up on what you are doing in this study, I know I am sure interested.

Linda

Hi Folks, Have responded to the letter about the research, what happens next is they are going to arrange a suitable venue where any one taking part can meet and get the trails started. It sounds like it will take place some time in September. Its great to see IBD being taken seriously. Many thanks for yer support folks. :-) 

It's great that you're doing that, John! We have similar research going on in Canada, and the larger the pool of data they have to work with, the better! 

Hi Folks, Yesterday I had a visit from a member of the team carrying out this research. It was really handy as the girl came to see me at home. She is a stoma nurse and over a cup of coffee although a lot of questions where being asked the time flew.

Hey John keep us posted there Lad .....