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Bubbles
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November 7, 2017 1:47 pm  
Posted by: Dona

Here is some perhaps useful info on C.Diff treatment:

The antibiotic called Vancomycin is often prescribed for the treatment of Clostridium Difficile (C diff). 

 

When the gastrointestinal tract is intact (fully connected) taking vancomycin by mouth can be used to treat C Diff in the bowel. The vancomycin moves through the intestinal tract and comes into direct contact with the C Diff infection. 

 

In the case of an ileostomy, where the bowel is no longer connected to the mouth, oral vancomycin will not be effective. This is because vancomycin ingested orally does not move through the intestinal wall into the blood stream.  That means that the drug can only treat infections that it comes into direct contact with. 

 

If a patient has a C Diff infection in a section of rectum or bowel that is no longer connected to the mouth, it can be treated using a vancomycin enema. Vancomycin enema is not on pharmacy shelves, but it can be prepared by a specialist compounding pharmacy. 

After my colectomy/illeo surgery I had to use these horrible enemas ( four a day for ten days...yikes!!). I had tested positive for C.Diff  during my surgery. They first treated me  with oral metronidaazole ( antibiotic) which does go into the blood. That just made me throw up. 

Metronidazole is, I think, far less expensive than the Vancomycin.

Yes this is what I used Metronidazole / Flagyl . Must take with food  . Leaves nasty metal taste in mouth but it's super cheap and works .


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Dona
 Dona
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November 7, 2017 1:57 pm  

Hi Bubbles ( and welcome),

I used to be able to take the Metronidazole, but then, in the hospital they didn't give me ANY food to take it with ...WOW. Not recommended. You are right about the 'flavor' I used to call it the heavy metal drug.  Still, WAY better than enemas. But what isn't.

Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


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Robert
(@njewell1)
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November 7, 2017 4:49 pm  

Barbara glad to hear your doctor is bringing someone else in for you to talk with . Hope it helps you . Dona and Bubbles good C-Diff info wish I had you all around when I had it .

Subtotal colectomy and Proctectomy , Ileostomy , Ulcerative Colitis


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Barbara
(@msbjlee)
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Posts: 389
November 7, 2017 5:06 pm  

Some of the docs seem to be tippy toeing around the c-diff thing and I finally found out why. C-Diff is a super bug meaning that it is antibiotic resistant.  They are wondering if it has morped yet again. There are 3 other rooms on my floor that have it too. The silver lining to c-diff for me is that I actually appreciate Stella. It is much easier to manage the awful runs (referred go in my family as "The Rocky Mountain Quickstep) with a pouch and not have to wonder if I will make it to the loo as I sprint there. (That is one tough way to find a silver lining).

Severe rheumatoid arthritis, spondoloarthropy, polymyalgia rhumatica, type 1 diabetic, IBS and finally, emergency diverticulitis surgery, colon removed Stella born Jan. 27, 2017. Enough already!!


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Zvitusk
(@zvitusk)
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Posts: 354
January 5, 2018 12:29 pm  

Now it's my turn. 

My CEA score has been getting higher and in December it crossed the line of 3.0 coming in at 3.2.

My oncologist told six different ways that it is not a problem. I SAID I would like to have further exams to relieve my anxiety. (Not in those words. I didn't make her cry.)

The CT scan report was no evidence of disease. (Besides highlighting my other defects.) 

We moved my yearly colonoscopy that I missed last year forward to now.

I am glad that I saw your comments about colonoscopies . All that is going through my head is " OH, SH#T". but your comments about short flushing made me feel "better".

Anyway, life goes on. 


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Robert
(@njewell1)
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January 6, 2018 12:59 pm  

Good luck Z . Hope it comes out alright .

Subtotal colectomy and Proctectomy , Ileostomy , Ulcerative Colitis


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Marcie
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Posts: 1279
January 6, 2018 1:27 pm  

z" s the others have said, taking a little nap is best.. I feel for the ones that their Doctors didn't do this for them and related rather nasty "man up" to them.  Not a good bedside manner!!  If any of remember a hard bowel movement, did or did not our eyes cross at times?  We are rather well packed in together as that is what we are designed for.. A bit of gas hurts.. Having a scope or other exam, is foreign to the human body..  Any Dr. that doesn't understand this or put us out even for 5 minutes, should have his licence taken way..  I , when I was 29years old had a huge cyst on my overy the size of a large mellon, I lived with the pain gradually, until I couldn't take it anymore, (1 year) long story short, I had an barium enama and was NOT put out..  (thought that this could have blocked my colon.. NO-- Well, They kept pumping this pink fluid in me, as I watched on a T.V. I screamed and got my nails into the Dr. then this stuff came out of my mouth!! They are watching this inside my body and NOT hearing me-- they over did it.. Ended up with peunimonia as of this.. Fluids in my lungs.. Never saw these Doctors again!! Spent 3 weeks in that hospital.. From then on---I make sure I am put out or I am out of there!! And trust me, I have left with those cute nities and of off the stretcher......... Dressed and gone!!!!!!  One Dr. did say "yes", and he lied to me.. Said it would be "nothing" I'm  gone!!

Don't know about the flushing's. I don't have any colon left.. But sure learning from you all..

So My "Z" take the nap and you will have a great day--and good luck with the outcome.. You have been through enough Already!! Be thinking of you................ M.

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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john68
(@john68)
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January 6, 2018 1:45 pm  

Zvitusk, If any one can handle it ye can, the very best

ileostomy 31st August 1994 for Crohns


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Zvitusk
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January 6, 2018 9:23 pm  

Next Tuesday.  

I appreciate all the positive encouragement. 


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Tony H
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Posts: 153
January 7, 2018 7:29 am  

Good luck with rhe scope Z 


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