Wow, Barbara! My God. I'm glad you're OK. I don't know if you've mentioned this before or if the conversation ever came up, but have you tried fecal transplants? It's one of the only highly effective treatments for c-diff, and I don't recall if you've done it already. Just your friendly neighborhood ostomate. Hi Barbara, You have certainly being through the mill, wishing you all the very best and better times are ahead. ileostomy 31st August 1994 for Crohns Thanks for your thoughts Eric. It has been a rough month in a pretty rough two years. When I think of what you've been through however I don't feel so bad. Think I'm making good progress. Since I am now and iliostomate instead of a colostomate I do feel so far like it is going to be easier to take care of even though it has to be emptied more often. I've had a long hard fight with dehydration I know I'm going to have to start paying extra attention. As far as the fecal transplant they did run on me in April and it failed fairly quickly. I was hoping that it was going to be the end of things but it wasn't. I was not a candidate for a second one and so the determination was removal of the rest of my colon was the safest thing to preserve my life. They felt another bout of c-diff would probably kill me. All that time that I had c-diff I didn't really realize how serious it was it was like it was a nuisance. Anyway thanks again for your wishes talk to you again soon Severe rheumatoid arthritis, spondoloarthropy, polymyalgia rhumatica, type 1 diabetic, IBS and finally, emergency diverticulitis surgery, colon removed Stella born Jan. 27, 2017. 6 bouts of c-diff, failed fecal transplant. Complete colonectomy and ileostomy July 30, 2018. ENOUGH!! Thanks John Severe rheumatoid arthritis, spondoloarthropy, polymyalgia rhumatica, type 1 diabetic, IBS and finally, emergency diverticulitis surgery, colon removed Stella born Jan. 27, 2017. 6 bouts of c-diff, failed fecal transplant. Complete colonectomy and ileostomy July 30, 2018. ENOUGH!! Hey there Barbara glad to see you back . Hope you are doing well . Proctectomy , Ileostomy , Ulcerative Colitis Thanks Severe rheumatoid arthritis, spondoloarthropy, polymyalgia rhumatica, type 1 diabetic, IBS and finally, emergency diverticulitis surgery, colon removed Stella born Jan. 27, 2017. 6 bouts of c-diff, failed fecal transplant. Complete colonectomy and ileostomy July 30, 2018. ENOUGH!! Things are improving slowly. Yesterday in therapy I walked a hundred and sixty eight feet. Considering last week it took two men and a small boy to get me out of bed progress is being mde. Barbara Severe rheumatoid arthritis, spondoloarthropy, polymyalgia rhumatica, type 1 diabetic, IBS and finally, emergency diverticulitis surgery, colon removed Stella born Jan. 27, 2017. 6 bouts of c-diff, failed fecal transplant. Complete colonectomy and ileostomy July 30, 2018. ENOUGH!! Well done Barbara, Every journey starts with just one step :-) ileostomy 31st August 1994 for Crohns Dear Barbara, BRAVO! Z P.S. MY WIFE GOT ME A FITBIT WATCH KNOCKOFF FOR $34. I AM PASSING 3,000 STEPS DAILY. SOON YOU WILL ,TOO. Z I am so excited for you, that I am shouting in caps. Awesome Barb soon you will walk the mall that's always a fun way to get the steps in . Big hugs , Bubbles Hello Barbara, Way to go. A step at a time and progress will be made. Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017. Way to go Barb! Raine Zvitusk and Barb...I like caps! They are a great way to express! Barb, you will get there. After my year in hospital, just going to the end of our driveway was a chore. It's short! I had no hospital therapy, just said...you get to go home tomorrow! I was itching to get out of there. I could not open a can of soup my first day home! I was amazed at how weak I had become when I thought I was already weak at the start. You just take all the time you need and do not push yourself too hard Lady! Your are okay so far! Remember that. I was only on the verge of death three times, and each day, no matter how I felt I would say...I'm okay so far. This is still my go to self encouragement! You can use it if you wish! Keep us up to date Barb, we are a interested in your progress...good or ***! Linda Well, Barb is typing away-- so that is good news!! so she is back to almost normal.. AT THE LOUNGE!! AND SHE GETS THE PURPLE CHAIR !!!! And the grand slams on a silver platter!! 2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie.. Linda, thanks for the encouragement. I will get there, I WILL go home. I WILL BE OK. That's my mantra right now. Walked over 200 feet yesterday and I will go further today!!! Severe rheumatoid arthritis, spondoloarthropy, polymyalgia rhumatica, type 1 diabetic, IBS and finally, emergency diverticulitis surgery, colon removed Stella born Jan. 27, 2017. 6 bouts of c-diff, failed fecal transplant. Complete colonectomy and ileostomy July 30, 2018. ENOUGH!! Thanks Marcie. Hmmm Grand Slam on a silver platter.. can hardly wait to see that one!!! Severe rheumatoid arthritis, spondoloarthropy, polymyalgia rhumatica, type 1 diabetic, IBS and finally, emergency diverticulitis surgery, colon removed Stella born Jan. 27, 2017. 6 bouts of c-diff, failed fecal transplant. Complete colonectomy and ileostomy July 30, 2018. ENOUGH!! Thanks Marcie. Hmmm Grand Slam on a silver platter.. can hardly wait to see that one!!! Severe rheumatoid arthritis, spondoloarthropy, polymyalgia rhumatica, type 1 diabetic, IBS and finally, emergency diverticulitis surgery, colon removed Stella born Jan. 27, 2017. 6 bouts of c-diff, failed fecal transplant. Complete colonectomy and ileostomy July 30, 2018. ENOUGH!!
~ Crohn's Disease ¦ Ileostomy ~
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