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LLNorth
(@llholiday)
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November 6, 2019 9:21 pm  

I am scheduled for a colonoscopy in a few days. This will be my first one since my colostomy surgery 18 months ago. Nervous, of course, for many reasons. Is the prep itself a terrible mess to handle?

I love the smell of coffee in the morning. It smells like .... victory.


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SqueakyandLiza
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November 6, 2019 9:57 pm  

Hi LL, 

I had a scope back in August, I think. The prep wasn’t fun, just because of the taste mostly. I had a sample of a high output bag I got from the ostomy nurse, with a spout instead of a roll up opening. That helped a lot, because it held more and was easy to empty. I still had to empty it quite often. 

The GI did both a colonoscopy of what was left, and also a scope of my stoma. They gave me the twilight anesthesia, so I don’t remember any of it. I had been nervous, but the worst part was the prep, and that was just not eating, and drinking the nasty prep drink. I’m sure you will do great!!

-Liza
“May your day be bright and your bag be light.”


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VeganOstomy
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November 6, 2019 10:22 pm  
Posted by: @llholiday

Is the prep itself a terrible mess to handle?

What kind of prep did your doctor ask you to do? For me, I took a purgative that essentially gave me high-output for a little while, but nothing that I would consider too difficult to manage. Most preps (with or without a stoma) suggest planning to stay home and near a bathroom during the process. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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LLNorth
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November 6, 2019 10:56 pm  

I have a big plastic jug that I will fill with water, and it has a powder that is lemon-lime flavor. Concerned about the pouch getting too full and falling off, especially during the night. I am supposed to drink half in the evening  and half very early morning.

I love the smell of coffee in the morning. It smells like .... victory.


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SqueakyandLiza
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November 6, 2019 11:47 pm  

LL,

That is exactly what I had.  And I had to do the same thing, half the night before and half the morning of.  My GI told me I could add flavor drops to it, as long as it wasn't red.  So I added grape drops, which made it slightly more palatable.  It tastes sort of salty.  Yech.

It really goes thru you pretty quickly, especially as you go along.  I think if you stop a while before you go to bed, you should be okay.  Especially if you can get your hands on a high-output bag.  You might have to get up a couple times during the night, but for me, it wasn't too bad.  But you definitely want to not wander too far from the restroom the whole time you are doing the prep.

All the best to you!!  Let us know how it goes.  :)

-Liza
“May your day be bright and your bag be light.”


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Tony
 Tony
(@ileostony)
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November 7, 2019 5:07 am  

Coloplast makes a really good high output bag if you can fit a large wafer on. The spigot style tap is definitely easiest to empty with such liquid output as it acts like a funnel and diminishes concerns of aim and dispersion.

 

That prep is probably just a big yummy solution of Epsom salts. Delicious.

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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john68
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November 7, 2019 6:01 am  

Hi LL, just a thought why not use the gelling agents to help thicken the loose output. All the very best 👍

ileostomy 31st August 1994 for Crohns


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Tony
 Tony
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November 7, 2019 6:27 am  

John That is brilliant💩 seems obvious now that You mention it.               

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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Valerie
(@valerie)
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November 7, 2019 1:22 pm  

I just got scheduled for an ileoscope, my first since surgery in 1986. No prep except fasting, will be out, but still nervous. 

UC at age 18, 1981. Diagnosed at 20, proctocolectomy with permanent ileostomy at age 23, 1986.


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SqueakyandLiza
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November 7, 2019 8:37 pm  

Valerie,

I have had two scopes in my ileostomy in the last year, with no problems at all.  Since I was doing the colonoscopy at the same time, I had to do the prep.  The second time, I wore a two piece bag, and they were able to take off the bag for the scope and then put it back on afterwards.  I was out too, which I would say is the way to go.  Good luck to you.

-Liza
“May your day be bright and your bag be light.”


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LLNorth
(@llholiday)
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November 8, 2019 6:44 pm  

Thank you, everybody - I found three little gelling packets in my box of samples, and was able to get some large capacity bags. Now on to the adventure.

I love the smell of coffee in the morning. It smells like .... victory.


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SqueakyandLiza
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November 8, 2019 7:46 pm  

You've got this!!!

-Liza
“May your day be bright and your bag be light.”


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LLNorth
(@llholiday)
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November 19, 2019 9:28 pm  

The gelling experiment - well .... I put two gel packets in the pouch, during my prep, and went to bed. Got up in the middle of the night to empty the enormous spouted high capacity bag and found that the gel had thickened to the consistency of rubber and clogged the bottom of the really full bag as well as the entire spout! Eeek! Picture me panicking in silence so I wouldn’t wake my husband because there was no way I wanted him to run into the bathroom and see me wrestling with a football sized plugged high capacity bag. There I was, wondering if the bag might explode or what - then I massaged the bottom of the bag and the spout which eventually softened the rubbery gel enough to empty the bag. So, it was a good idea in theory but I guess I won’t try it again when I have to have a colonoscopy  a year from now! 

I love the smell of coffee in the morning. It smells like .... victory.


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SqueakyandLiza
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November 19, 2019 10:44 pm  

I am totally picturing the silent panic 😂😂 I’m so glad you were able to work it out, both figuratively and literally. 😂

-Liza
“May your day be bright and your bag be light.”


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Tony
 Tony
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November 20, 2019 2:28 am  

I wonder if next time using just one would be better.🤔

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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john68
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November 20, 2019 4:27 am  

Oops!! Am sorry about that 😃 I meant to use them one at a time. Just think what would have happened if you had took 3. 

ileostomy 31st August 1994 for Crohns


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sjlovestosing
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November 20, 2019 7:56 am  

Experiences are always the best teacher! Glad things didn't go "south"!

Stella


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LLNorth
(@llholiday)
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November 20, 2019 11:27 am  

Haha! Yes, glad I didn’t use all three at once. I could do a commercial about these, give the manufacturer a testimonial that the gel packets really do work!

I love the smell of coffee in the morning. It smells like .... victory.


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john68
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November 20, 2019 1:04 pm  

If you use 3 it’s not called output any more it’s known as concrete 😂

ileostomy 31st August 1994 for Crohns


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VeganOstomy
(@veganostomy)
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November 20, 2019 1:40 pm  
Posted by: @llholiday

I put two gel packets in the pouch, during my prep, and went to bed. Got up in the middle of the night to empty the enormous spouted high capacity bag and found that the gel had thickened to the consistency of rubber and clogged the bottom of the really full bag as well as the entire spout!

My goodness! Well, that was a learning experience, to say the least! 😂😂

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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