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VeganOstomy
(@veganostomy)
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December 18, 2019 2:53 pm  

@iebrowne

If you aren't using a filtered bag, make sure you start with a little bit of air when changing your appliance (or after emptying it) or roll up a wad of toilet paper and that will create a gap between the walls of your bag to prevent pancaking. 

Let us know if that helps. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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iebrowne
(@iebrowne)
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December 18, 2019 4:33 pm  

Sorry to be a Debbie Downer but I have tried both of these things with no luck.

When you say roll up a wad of toilet paper, what does that look like? When I put the pouch on it is like a vacuum. How much to use?

 


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john68
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December 18, 2019 5:25 pm  

No need to be sorry! For me I use 3 sheets crunched up. That creates enough air to allow room for flow. 

ileostomy 31st August 1994 for Crohns


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VeganOstomy
(@veganostomy)
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December 19, 2019 4:51 pm  

@iebrowne

No need to apologize! We're all here to learn and share!

Posted by: @iebrowne

When I put the pouch on it is like a vacuum.

When I put on a new pouch or when I empty one I've already got on, I'll make sure that there's a little air in it before I closed it up. If you don't get a little air in there to start, then the vacuum effect will be quite strong. 

For the wad of toilet paper, I maybe take three sheets and roll it into a ball then put that in my appliance (not too big or you'll have trouble emptying your bag!). Even with the toilet paper, I still make sure that my bag has some air in it. 

 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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iebrowne
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December 19, 2019 5:38 pm  

@veganostomy

Thank you, I will give it another try.


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iebrowne
(@iebrowne)
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December 22, 2019 11:55 am  

Hi,

Thanks for your reply. The issue seems only when I change my appliance, I have tried everything ( blowing air into the pouch, putting tissue in it ) and nothing is working.

I had been using Convatec pouch 401521 with a 401754 flange. Until I discovered a more comfortable flange 413165. However the issue seems to be with 413165 I wonder if they are not compatible?

The only problem is that I in Mexico for the Winter and have a large supply of the new product so I have to find a way to make it work, as the product is not available here in Mexico.


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LK
 LK
(@dlkfiretruck)
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December 23, 2019 11:19 am  

@iebrowne

Welcome to this  amazing site! Merry Christmas🎄 and Happy 2020🥳🎆 to you and yours. If you live in my neck of the woods feel free to bring me back some Vanilla...lol. 

I have an ileostomy. When I deal with pancaking it is usually because I am not drinking enough fluids before, during or after a meal. or the filter is actually working.  Could this be an altitude issue for you?  I wear a one piece and it has a filter.  The first 2 - 3 days I have suction issues and some upper accumulation of output.   I have learned to put some tape over the filter till about the 2nd. or 3rd.  day.  By then it is usually clogged a bit and won't work as well.  The filter gives my arthritic hands a chance to rest.   *I also use the liquid gel deaoderant in my pouch right away and then the regular liquid the rest of the time.  I smoosh it between the layers of plastic and then  rub it up and around to make for a more slippery place for the output to go down. I find smooshing it around to the top of the pouch helps a lot. I have never tried the TP trick but I find this gel deaoderant works well for slipping output down where it belongs. 

 Plus, it gets a bit into the filter and then air can not escape so easily.  To help a bit with clearing the filter, I take a square of TP and fold it over the filter and the back of the upper pouch and squeeze it, then slide from right to left a few times to squish some of what blocks the filter our of the filter area.   I once cut a pouch  apart to see how the filter  works and noticed the little bits of plastic framing the filter. Most filters if you get 2 good days and a 3rd. mediocre day out of it, your lucky.  But I put the squeeze on and it seems to help it work a bit longer to keep it working.  I also put the Osto EZ Vent on my pouches and use that to let air in or out as needed by pulling the sides gently apart but not by the vent. But I still find the gel deoderant keeps the output moving. I put it in after  every empty time also. It comes in an individual measure amount.  To keep the gel up  into the bag and not  around the opening at the bottom, I will slip the little packet in the pouch just past the neck and squeeze it a out from there thru the little spout area in the packet.  I always  rinse my pouch too,  this helps for a clean little packet when I take it out. Could it be your clothes may he a bit  snug¿  I hope you find a solution that works for  you! All the best. 

Linda

Linda


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VeganOstomy
(@veganostomy)
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December 23, 2019 11:50 am  
Posted by: @iebrowne

Thanks for your reply. The issue seems only when I change my appliance, I have tried everything ( blowing air into the pouch, putting tissue in it ) and nothing is working.

I had been using Convatec pouch 401521 with a 401754 flange. Until I discovered a more comfortable flange 413165. However the issue seems to be with 413165 I wonder if they are not compatible?

This is very strange! 

Can you list the order of steps you use when putting on your bag since that's when you said it happens? Maybe we can identify where the air is escaping. 

After you've changed your appliance (say, after 2 or 3 days), are you able to keep air in the bag without trouble? 

Do you notice any other problem like leaks or smells from your appliance? 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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iebrowne
(@iebrowne)
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December 23, 2019 11:59 am  

Thanks again for your support. It is so nice to talk to other people that understand the issues to have to face.

I follow the steps outlined in the video "How to change an Ostomy Appliance". Yes, after I change my appliance I can keep air in the pouch.

The one small change I did yesterday, is that I put tissue in the pouch but first rolled it in a ball and that seemed to work!!! I am hopeful that will work again next time.

Merry Christmas to everyone.


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iebrowne
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December 23, 2019 12:50 pm  

@dlkfiretruck

Hi Linda,

Thank you for your suggestions, I am so glad I have joined this group, everyone certainly tries to help one another.

I live in Vernon, BC back there in April from Mexico, so what neck of the woods do you live in?


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VeganOstomy
(@veganostomy)
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December 23, 2019 4:17 pm  
Posted by: @iebrowne

The one small change I did yesterday, is that I put tissue in the pouch but first rolled it in a ball and that seemed to work!!! I am hopeful that will work again next time.

That's wonderful! I hope that's the solution for you :) Update us when you can.

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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