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Disability/Equal Access/Boarding Pass: Ostomy/IBD TIP (w/ video)  

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VeganOstomy
(@veganostomy)
Admin
Joined: 5 years ago
Posts: 2176
June 23, 2015 11:00 am  

Share your experience with accessibility passes!

My full written article can be found by clicking on the link below. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Tracy
 Tracy
(@Tracy)
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Joined: 4 years ago
Posts: 1
June 28, 2015 11:31 pm  

Fantastic informative blog. Didn't know us Ostomates could be entitled to such support. Keep up the great work. Tracy


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Marguerite Thomas
 Marguerite Thomas
(@Marguerite Thomas)
Guest
Joined: 4 years ago
Posts: 1
July 23, 2015 8:17 pm  

Wonder about people with just irritable bowel syndrome and not the bowel problems listed here. We often do not know when we will be able to be out of reach of a quick trip or trips to a washroom. Wish Chrohns, Colitis, etc. Associations were more inclusive of other conditions.


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VeganOstomy
(@veganostomy)
Admin
Joined: 5 years ago
Posts: 2176
July 23, 2015 8:22 pm  

Hi Marguertite, you might want to inquire specifically about that to any parks you frequent. In some places, like the UK, a doctor's note is required, and if your doctor feels that you cannot wait in long lines due to IBS, I see no reason why they would not approve it.

Each group of parks have their own policy, but it might be worth looking into.

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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VeganOstomy
 VeganOstomy
(@VeganOstomy)
Guest
Joined: 5 years ago
Posts: 492
November 20, 2016 10:13 pm  

Did I miss any parks on this list?


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Kay B
 Kay B
(@Kay B)
Guest
Joined: 8 months ago
Posts: 2
October 8, 2018 5:40 am  

Hello,

I know this thread is old but I hope you can help me. I’m due to go to Orlando with my 7 year old in 6 weeks and plan to utilise these passes as I have Crohns Disease and an ileostomy. I know it says that Guest Services are not allowed to probe into a diagnosis etc but I’m a little apprehensive about divulging personal details to a total stranger. I’m not shy in talking about my condition with others but at the same time I don’t like my daughter to think of me as differently abled and I just want her to enjoy the experience like her Mum isn’t sick for once! So what I’m asking is, how much information did you have to supply and were the cast members at Universal and Disney knowledgable about IBD and Stoma’s and is the whole thing handled discretely? I just have anxiety about having to say to someone ‘I can’t wait 60mins in a queue for Gringotts in-case Vladimir (my stoma) decides to boil over like mount Vesuvius!’ Lol!
Anything advice on how to make ot more dignified and less anxiety inducing would be more than appreciated! Thank you :) - Kayleigh


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VeganOstomy
(@veganostomy)
Admin
Joined: 5 years ago
Posts: 2176
October 8, 2018 10:14 am  

Hi Kayleigh, that's a good question. Will someone be able to watch your child while you get the pass? This could allow you the opportunity to be more open with the information you provide. If not, perhaps you can approach it in one or more of the following ways :

"I've had surgery that requires that I manage a medical device, which can be unpredictable and prevents me from standing in line for a prolonged period of time."

"I wear a medical device that collects my bowel movements and won't be able to wait in long lines because it needs to be managed at unpredictable times."

"I live with a bowel condition that makes bowel movements unpredictable and would require your accessibility pass to schedule ride times."

Of course, you can add as much detail as you feel comfortable with, but the important thing is that you make it clear that you have a condition that is unpredictable and long lines would not give you enough time or opportunity to manage it.

Have fun!

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Kay B
 Kay B
(@Kay B)
Guest
Joined: 8 months ago
Posts: 2
October 8, 2018 4:26 pm  

Thank you so much for all those great ways to put it! I know it may seem silly but I’m still new to this whole ostomy thing so my anxiety can get the better of me... but reading your various ways of explaining it just makes me realise that it’s not as big a deal as I’m imagining in my head. It is a medical device I need to manage and that’s that :) it’s nothing I need to be worried about explaining... I really appreciate your advice - thanks again!


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VeganOstomy
(@veganostomy)
Admin
Joined: 5 years ago
Posts: 2176
October 8, 2018 7:01 pm  

That's exactly it, Kay! Glad it helps!

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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