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danbh
(@danbh)
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14/04/2019 2:02 pm  

I have been using the lubricating deodorant mostly for the lubrication of the pouch, not so much the deodorant in it. I use it with my Hollister 18183 pouch. According to MFG instructions, you should pour the whole 8 ml packet into the pouch, every time you empty the pouch, and it mostly get sucked by the output after not too long if you let the output sit in the pouch. On the other hand at times I have to empty the pouch 3 to 4 times a day, and with my insurance (Medicare) allowing me only 30 packets in one order, once a month. I have written to them, my Doctor wrote to them, and my Stoma nurse did too, to no avail. I had to get the 30 from them, and buy a box on my own because I do not have enough.

6 weeks ago I got fed up with this absurd deal, and decided against every thing I was told by the Stoma nurse, and everyone else, to start using Johnson's baby oil, and see what happens. The pouch by Hollister is as Eric said has its own flows, but has not given me any trouble while using the baby oil, my output goes down to the bottom of the bag with no trouble, it does not effect the wafer at all, and I get 5 to 6 days from the wafer just like I did before, but I don't have to keep pushing output down, or take off the pouch, to clean what sits on the Stoma. The pouch stay lubricate for a lot longer time, I put the baby oil only twice a day, NOT after every time I empty the pouch.

I intend to keep using it for a while longer, and if it keeps working as it does now, write to Hollister and let them know. I have not tried it on any other MFG, so this may or may not work with other pouches.

Has anyone tried this? and if yes, what results did you have?

Dan

 


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VeganOstomy
(@veganostomy)
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15/04/2019 1:28 pm  

If it works, keep using it! 

I generally don't use a lubricating deodorant (M9 works well as it is), but I would probably experiment with oils if I had to pay for it or if my insurance capped how many sachets I could get per month. 

There shouldn't be any real danger of using baby oil as long as it's not really coming in contact with your stoma or the wafer hole. 

Continue to let us know how it works for you! 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Robert
(@njewell1)
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17/04/2019 12:01 pm  

Hi Dan

I too use Hollister lubricant 78500 (bottle) though . I also use it more for the lube than the deodorizer and like you I am on Medicare and they will only give me so much . So I too tried using the Baby oil to stretch it out so I wouldn't run out . But I mix a little oil and water  with my lubricant and I use it every time I empty which can be 10 times a day depending on how much I eat . I had heard not to put anything in your pouch that you wouldn't put in your mouth for fear of it harming the stoma but I have had no problems at all . I even have used a little hydrogen peroxide in the mix thinking maybe it would help with odor . But when I use it I only use a small squirt at a time in my bag . I also rinse my bag pretty much every time with water then give it a little squirt . I have an Ileostomy and use a 2 piece system . I just change barrier every Sunday and Thursday and bags 1 time in between on a regular schedule . And knock on wood I haven't had a problem of any kind in probably 2 years . I received my stoma (Norman) in Sept. 2016 .

Good Luck to ya

Subtotal colectomy and Proctectomy , Ileostomy , Ulcerative Colitis


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Marcie
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17/04/2019 2:46 pm  

Great idea Robert !! Some even use baby shampoo when there is no insurance. Works great

I have another advise that many men and woman use now that the hot weather is coming to us..

take a ladies pantie liner (not maxie pad) and press this to the back of the pouch.. this will provide comfort and avoid rash and pouch will not get stuck to your skin. Much success!!  (the cheaper ones r not suggested tho - drug store brand) 

 

 

 

 

gone?

 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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Robert
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17/04/2019 2:54 pm  

Hey Marcie

I don't know if I can do a pantie liner but I'll keep that in mind . Its not that hot here yet but it will be hey you never know right ? There's all kinds of tricks . What works for one may not for another .

Subtotal colectomy and Proctectomy , Ileostomy , Ulcerative Colitis


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Marcie
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17/04/2019 5:28 pm  

we wont tell Robert...………….. 

 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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sjlovestosing
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18/04/2019 7:55 pm  

Hi all,

My ostomy nurse recommended using mineral oil with a few drops of essential oil, such as peppermint or lavender, as a lubricant. (I use lavender because it is the most gentle of the essential oils.) Also, as Eric suggests, I don't put it near my stoma or barrier as I want to make sure my appliance doesn't fall off! However, mineral oil is very safe and can be  used  internally for those times when you need a little extra help softening stool. I use probably one or two teaspoons after I put on a clean appliance and after I empty my bag. 

Stella


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VeganOstomy
(@veganostomy)
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18/04/2019 9:52 pm  
Posted by: sjlovestosing

Hi all,

My ostomy nurse recommended using mineral oil with a few drops of essential oil, such as peppermint or lavender, as a lubricant. (I use lavender because it is the most gentle of the essential oils.) 

How do you find the smell with the essential oils? I tried it once using a few different types (separately) and the smell was very skunky after a day or two, so I stopped doing it. I'd be interested in knowing what your experience has been like. 

 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Marcie
(@shulmjs)
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19/04/2019 2:22 pm  

I found the same thing Eric..  Anything with a perfume sent seems to cover then turns just awful.. I don't mean to advertize-- but I do like M-9. 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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danbh
(@danbh)
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21/04/2019 1:49 pm  

To update my original posting above:

I am very happy with my decision to try baby oil as my lubricant for my pouch.

Not only does the out put of my Colostomy drop right to the bottom of the pouch, but the pouch also stays clean, including the bottom neck where I empty it through. I am glad I can drop the fight with Medicare in this regard, it looks like a lost cause, and they will not change their decision (none of them knows anything about Ostomy and what we go through day in, and day out).

I do not see that the baby oil cause any problem with the wafer, the pouch, or my Stoma, and as long as it works I will stick to this, not changing or adding any other oils to it.

I only wish I had the guts to try this long time ago, but was told that it is not a good idea to do so. It was not a good idea, it was a great idea.

Robert, I am glad it works for you too, your need to wash the bag is because you have Ileostomy and I have Colostomy, which is much easier to take care of I guess.

Hoping we all have a quite & peaceful Ostomy year (or what is left of it).

Dan

 


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