Community Forums

1pc vs 2pc Ostomy Appliance - OSTOMY TIPS (w/ video)  

Page 2 / 2 Prev
  RSS

Brenda Fergus
 Brenda Fergus
(@Brenda Fergus)
Guest
Joined: 2 weeks ago
Posts: 1
January 5, 2019 10:11 am  

I’m so confused by all of this, I had a total proctolectomy on oct 11 2018 & I still can’t get used to this, I’ve tried almost every kind of bag from the samples they have sent me, I like the one piece but I have no luck, after a couple hours I end up with a leak, the hollister ones have been the best so far but I really don’t like the clip, so because of not knowing when I will leak I find myself being more house bound afraid to go out anywhere


ReplyQuote
VeganOstomy
(@veganostomy)
Admin
Joined: 5 years ago
Posts: 1983
January 7, 2019 11:31 am  

Hi Brenda,

I'm sorry to hear about your ongoing trouble. I understand how frustrating that must be for you.

You mentioned a clip on the Hollister bag. Have you tried their bags that have the "lock 'n roll" closure instead? I also don't like clips, but the lock 'n roll has been absolutely reliable in every situation.

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


LK liked
ReplyQuote
john68
(@john68)
Registered
Joined: 1 year ago
Posts: 1138
January 7, 2019 12:10 pm  

Hi Brenda, A leak can sure knock any ostomates confidence. The one peice is a little tricky to put on compared to a 2 peice. (Just my opinion) their is always a reason for a leak and could be a very simple cause. Have you discussed the problem with your stoma nurse 

ileostomy 31st August 1994 for Crohns


ReplyQuote
Raine
(@raine)
Registered
Joined: 9 months ago
Posts: 43
January 7, 2019 2:03 pm  

Sorry to hear you're having such a rough time.  It took me a few months to find what worked for me, so don't get discouraged.  I found for me that using a ring under the appliance helped with leaks, also using a belt helped.  Keep asking for samples until you find the right combination.  

Good luck

Raine


LK liked
ReplyQuote
Dona
 Dona
(@dona)
Registered
Joined: 2 years ago
Posts: 588
January 7, 2019 6:07 pm  

Hi Brenda,

I am sorry that  you are  having a hard time finding the right appliance/ fit etc. Like everyone says, it will get better! Not much help in the day to day, but you will find the right solution to this problem.

Sometimes it is because that after only three months, you are still healing. Your body is getting used to the stoma. The stoma can change in size as you heal. 

I also use the Hollister, with the lock and roll closure that Eric mentions. It works great.

If you have access to a stoma nurse, please see them.

It is so frustrating to go though all this , but these things do work, and it will get better.

Keep asking questions.

Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


ReplyQuote
LK
 LK
(@dlkfiretruck)
Registered
Joined: 1 year ago
Posts: 254
January 8, 2019 4:05 am  

Hey Brenda...welcome. I tried a few bags when I first had my stoma and just love the Hollister 8331 bag. It is also a velcro roll up. I tried one with the clip and took it off within hours of trying it. It has never come undone on its own and I do a fair bit of bending, leaks aside.  Make sure you measure your stoma frequently, the bag company. will send you extra of the guides if you need some. Just ask. Hollister sent me a lot of them a while back. Always save the ones you do not use, you just never know when you will be glad you had them. Check and see if you have healed up differently then it looks. Mine went fro a circle to a D shape.  Use a mirror to check all sides and a flashlight if you need to, so you can see in the small shadow. Also, one issue I had was in getting the bag on... my  stoma had leaked fluid and it would get on the plate (wrong term...I am working on it) and then on my skin and then the leak. Usually at night due to laying down, or to pancaking.  Are you bending the plate forward to place it onto your tummy for the lower part first?  I use a q-tip or tissue to dry the stoma then finish putting the bag over the stoma without getting tissue on it or the plate, to put the rest of it on. Fanning the area with the plastic piece you took off the plate. Then immediately apply slight pressure to the edge around the the bag around your stoma to make sure you have it stuck there. I also tried and succeeded in using a warm hot water bottle to the sight after applying the bag, with a facecloth over my stoma. Lay down for this if you can. Be sure it is not too hot, you do not want to damage your stoma or the skin. I did this to make sure that the extra bit of warmth  to attached the bag better. I would rest about 5 to 10 with the bottle on my tummy.  If you have trouble getting the bags off at all, this is where the Spray Adhesive Remover comes in nicely. As far as feeling house bound, believe me that is a normal thing at this point for many. It does take time to develop the confidence of going out with a  pouch. You may experience noise  at home from your stoma,  no one sent me home with a silencer for my Rose, so be prepared that it will happen when you are out also. Sometimes  I place my hand over Rose to help quiet her a bit. Try naming your stoma if you have not and it is okay to change her name as you go, mine has had three names altogether. Rose being the best to date.  Make sure you have what you need with you for a trip out of the house just in case of a leak...Eric has a video on this. But make a few little trips out first before a lengthy one, giving yourself more time out each time when you're ready. I started with small walks, they told me a lot about how Rose would do in public...not to mention myself.  All the best to you. Continue to heal well.

Linda

Linda


ReplyQuote
sjlovestosing
(@sjlovestosing)
Registered
Joined: 9 months ago
Posts: 129
January 8, 2019 11:05 am  

Hi Brenda,

I am late coming on to this, but I was wondering if you have checked with your stoma nurse as to what body type you are.  Your body type may be enabling the leaks and you may not be using the best system for you. I found out that I have imperfections in the area around my stoma and discovered that I needed a convex system. I use the Sensura Mio Convex, and so far, no leaks. I also use a paste in the areas around the stoma that are indented and that helps the skin to stick more to the barrier. I hope this gives you something more to consider. Good luck!

Stella


ReplyQuote
Page 2 / 2 Prev
Share:

  
Working

Please Login or Register